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parents of young children with petit mal
Fri, 09/30/2005 - 18:21Topic: Family & Friends
My 10 year old daughter has just been diagnosed with petit mal. She's been on Zarontin for 1 week with increases each week for 3 weeks. I would love to chat with other parents in the same situation. I've got lots to talk about and would like to find some sort of support system.
Comments
hi
Submitted by solis on Fri, 2005-11-04 - 23:46
My post was written with sarcasm not hostility. (Guess it doesn't translate well online)
Apologies if anyone was offended.
~sol
hey kdroot1 :) I am sorry
Submitted by Jill on Fri, 2005-11-04 - 16:19
hey kdroot1 :)
I am sorry about what your daughter (and family) is going through right now. Is your little girl scared? How often does she have seizures? Did her neuro prescribe Depakote as the first measure? I am asking because I have JME- juvenille myoclonic E and it is known that the best treatment for that is Depakote but my neuro told me that he was going to try the less "harsh" for lack of a better word meds before Depakote to see if any of those worked out. Check into some of the posts here and read up on meds used for the type of E that your daughter has to see if another one could be tried out first. I understand all the concern you have because of the risks involved with Dep. I was 15 when my neuro told me he wanted me to take Depakote and then told me about the birth defects as a possible side effect and even at that time I was like "oh heck no." People respond differently to taking medications so it is very understandable and normal that you are already thinking of this stuff. It is your daughter, it would be, in my opinion, weird if you were not concerned over what got put into her body to help out with this. I hope your family is feeling better and good and happy :) he he. Keep in touch and let me know how you guys are doing.
God Bless,
Jill
simmer down
Submitted by Jill on Fri, 2005-11-04 - 19:13
Hey there solis :), Sometimes in writing things can come across pretty harsh. Maybe you didnt mean to sound abrupt or slightly rude but it kinda came across that way. I wanted to let you know just so no one is offended now or in the future. Have a wonderful night :) God Bless, Jill