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parents of young children with petit mal
Fri, 09/30/2005 - 18:21Topic: Family & Friends
My 10 year old daughter has just been diagnosed with petit mal. She's been on Zarontin for 1 week with increases each week for 3 weeks. I would love to chat with other parents in the same situation. I've got lots to talk about and would like to find some sort of support system.
Comments
Petit mal
Submitted by kdroot1 on Fri, 2005-11-04 - 00:53
My nine-year-old daughter was just diagnosed with petit mal. We just started Depakote this week. Have been told that there is a 80-90% chance that she can grow out of it. Also there is a 30% chance that it might lead to a Grand mal. Depakote is supposed to prevent both types of seziures but can present a risk for birth defects as females get closer to the child-bearing years.
Depakote
Submitted by patboy3 on Fri, 2005-11-04 - 11:12
My wife and I are facing this right now. She has been on Depakote since childhood and has had 100% prevention from seizures while on it with very few side effects. We are now looking at having children and are being forced to change meds. We were told that Depakote carries a 10% chance of a spinal deformation in pregnancies and are currently looking at other options. She started Topamax yesterday but there is not enough information on Topamax and pregancies to make us comfortable. Has anyone else heard anything about this?
Thanks
To: ohleigh
Submitted by txrhb1 on Sun, 2005-10-23 - 20:34
Hi, I just saw your posting about your daughter. My daughter is now 22, but was 9 years old when she was diagnosed with epilepsy. She has gran mal seizures. I was 47 when I was diagnosed with complex partial and simple partial (petit mal) seizures. Even though our experiences are somewhat different, I would love to talk to you anytime. You can e-mail me at txrhb1@aol.com Blessings, Barb