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pseudoseizures

Sat, 07/09/2005 - 21:05
can someone please help me? i don't think that i'm doing this right. can someone please respond ? i have been havin these "so called seizures" i start by getting a funny feeling like a tingley sensation and start to space out i i shake and twitch and either pass out or fall asleep i have a doc appointment with neuro in tampa on the 27 can someone tell me what to expect? nervous in chuluota.

Comments

RE: RE: RE: RE: RE: pseudoseizures

Submitted by taho on Sat, 2005-07-09 - 13:52
Hi everyone,I have had a normal EEG and two normal MRI's and my neuro didn't even blink at saying I have E...she said it is TLE based on some discussions of things that I have always done that I didn't realize were simple partials...I thought that to have had a seizure you had to pass out or loose time or something like that. But, if you look on this site and read the link to auras, you can find that there are all kinds of behaviors that are called auras here but most people agree that they are "mini seizures"...I appreciated that she wasn't caught up in semantics but after ruling out things like brain tumors or heart problems, she moved on to treating my symptoms!Anyway, find someone who isn't more concerned about the name of what you have but is concerned about how to help you deal with what you are experiencing and how you feel and what you need to help you move forward in life. Good luck,Toni

RE: RE: RE: RE: RE: pseudoseizures

Submitted by maggie on Sat, 2005-07-09 - 21:05
Hi Anna, I can relate to how you feel.Had to take a leave from work,which I really did enjoy,cannot drive,cannot swim(unless I have a life gaurd)haha.All I do is clean and clean some more,true,how much cleaning can one do? I also have a loving family,but when you are use to being independent and now you have to rely on everyone it gets depressing,to say the least.Some of these docs don't want to believe that they could be wrong.Good luck and don't give up.Please keep us posted on how you are doing.

RE: RE: RE: RE: pseudoseizures

Submitted by basilwalker on Sat, 2005-07-16 - 21:20
hi maggie,i really identified when you talked about feeling crazy without being correctly diagnosed. i had this crazy psychiatrist who diagnosed temporal lobe epilepsy, especially after she asked if i had moments of missing time, i replied many times. the crazy part was she never described what the seizure was like and i had complex partials which made me halucinate alotwith them. she prescribed tegretol and an antipsychotic. every time i mentioned a halucination(usually distinct visual, some auditory and one olfactory) she upped the dosed of the antipsychotic leaving the tegratol alone! not knowing the halucinations where a part of the seizure, i thought i had TLE but was also crazy and they couldnt do anything about it. of course she also gave me two other incorrect diagnosis-basil basil6466@yahoo.com

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