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sounds trigger seizures?

Thu, 02/05/2004 - 18:14
I havent been diagnosed with epilepsy or with having siezures, even though I have been having what I call siezures for the last 6 years. I am going for an MRI next month, for the first time. I have had an eeg done 2 years ago and it came back normal. My question is...Can a sound or maybe even a certain song trigger on a siezure? I ask this because it seems like a sound or even the sound of a word makes me feel like I am going to have a siezure. I feel like a anxiety feeling inside me happens before I accually go into the siezure, when the siezure happens I am awake but unaware of what is going on around me, everything freezes and sounds become muffled and I cant understand what I hear. Another thing my husband has told me is when I feel like I am going to have the siezure and I try to warn him, I dont make any sence in what I am saying and sometimes it somes out like I am shouting. I dont know that I am not making any sence or even that I am shouting it, to me I have said " Im having a siezure" clearly. He also said my eyes get huge and my pupils dialate, also I turn white as a ghost. I think my siezures last for a few seconds, but he has timed them and sometimes they last as long as 5 minutes. After the siezure I dont remember anything prior to the siezure or anything during the siezure, all I know is that I had one. I also feel sick to my stomach and sometimes throw up afterwards, I get a extreme hot flash sometimes, but mostly I am worn out and extremely tired for about and hour or two after the siezure. A co-worker said that her brother has twilight siezures and what I described sounds identical to his siezures, he also said a certain song has brought on his siezure, which is what I have experienced twice now. I dont remember the song or even the words to the song, by the time I come out of the siezure the song has long been over. I have a siezure about 2-3 times a month. Does anyone have any simular triggers as I do? Does it sound like what I have is accually a siezure? Or am I just going crazy? I have been told maybe it is a panic attack, but I dont know why I would be having those because I am a laid back person with no or very little stress in my life. I have also awaken to a siezure, I dont think a panic attack happens in your sleep. Thanks for any input.

Comments

RE: RE: RE: sounds trigger seizures?

Submitted by classy1g on Wed, 2005-05-18 - 06:51
hehe jinx...yea seizurish does explain alot...like 20hours out of my day!...lol Now to relay that to my new neuros on Friday!Lights really seem to affect me lately, like looking at the way the sun rests on the leaves? It's painful...and puts my head in a bad place, I can't describe it, but I have to look away and quickly.But I can relate to the commercials on TV. There are a couple, that make me jump, they are alarming, and I literally cover my eyes and ears! EVen to hear them, puts me in the seizurish mode.Keep safe...classy

RE: sounds trigger seizures?

Submitted by roxeeco on Thu, 2005-05-19 - 19:25
My daughter has similar episodes. She begins to call out MAMA , her eyes get real big, her facial expression is strange, then falls to the floor with her hands over her head and is in a fetal position. She then gets up and is very very pale. She then starts mumbling and says she needs to go take a nap becasue she is tired. Sometimes when i ask her what happened, she states something about noise. She is only eight. She has them at school and home. She sometimes will have bruises or scratches from when she falls and the next day she will ask me what happened to her. She has had two EEG'S and an MRI. Everything came back normal. She also has sleep terrors.

RE: sounds trigger seizures?

Submitted by tomdarling on Mon, 2005-05-23 - 09:11
I think my son with MAE had one when I was using loud hair clippers--they vibrate and he was watching and had a atonic.  I posted the sound question on crazymeds.org in the epilepsy room and a surprising number of people had it to music, both techno and other music (one to the "thong song", which I imagine is quite embarassing).

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