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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: RE: Seizures while sleeping~

Submitted by susienovack on Mon, 2005-05-16 - 19:39
My daughter is 10.  Two years ago she had three seizures within a three month period - after she fell asleep.  She was not put on meds and did not have a seizure for two years.  Last night she had another...  There is definately a pattern of being overly tired, and excitement in her life.  She has had headaches for the past two weeks, which she didn't have before.  She has always talked in her sleep sporadically, and would sleep walk at times as well.  Has anyone else with BRE had the same symptoms?  Thanks much!

RE: RE: Seizures while sleeping~

Submitted by batman on Tue, 2005-01-25 - 17:03

alliepeanut,

FYI, there are over 2.5 million people in the United States who have epilepsy. Over 50 million in the world.

I was in the Navy and stations onboard the aircraft carrier USS SARATOGA CV-60, now a museum some where on the east coast. But it had @5,000 people on it. So yes, there are alot of people with epilepsy in the same boat, just much bigger that the boat I was on.

Welcome aboard shipmate. lol

Bruce J

 

alliepeanut,

FYI, there are over 2.5 million people in the United States who have epilepsy. Over 50 million in the world.

I was in the Navy and stations onboard the aircraft carrier USS SARATOGA CV-60, now a museum some where on the east coast. But it had @5,000 people on it. So yes, there are alot of people with epilepsy in the same boat, just much bigger that the boat I was on.

Welcome aboard shipmate. lol

Bruce J

 

RE: RE: Seizures while sleeping~

Submitted by Renezellweg on Wed, 2005-02-16 - 15:12

Alliepeanut,

 

First of all I have to make this comment.  We have a daughter whose name is Allie and her nickname is peanut so I couldn't resist commenting on how cute your screen name is to me. 

My poor husband informed me that it was a night of two seizures for me lastnight.  I've had CT, EEG, and MRI and they have shown no abnormalities,  but I continue to have these seizures that seem to be increasing in number.  I recently switched from Atkins diet to a low fat diet and apparently that is definitely not the right diet so back to Atkins I'll go (LOL)!  I live my life on the Atkins diet so I'm not sure why I decided to change.  That was the only thing that the doctor said may be contributing to the frequency of the nighttime seizures.  I have the complex partial seizures and have only ever had them at night and I too seem to have them when I am sleep deprived.  It's weird because it's when I'm exhausted that I have them.  It's almost like I can predict them.


 

My first seizure which happened about 6 years ago they attributed to a diet pill called Diet Fuel that contained ephedra.  I am always obsessing about my weight.  Then I tried another diet pill that was Ephedra free afew years later and had another one almost immediately so they attributed the seizures just to the pills.  It's all so strange, but I wanted to ask you about medications and if you have had any success with them.  I've been reluctant to start medication, I guess that I'm just scared of them.  Do you have any advice. 

 

Sorry to have dragged on, but you seemed to have some knowledge and I'm pretty new to all of this as my seizures up until recently were so far apart and not frequent that I sort of neglected them.  I'm hoping that changing my diet back and making sure that I'm getting adequate rest will help!  Thanks in advance for any helpful information that you may have for me!

 

 

 

 

 

 

 

 

Alliepeanut,

 

First of all I have to make this comment.  We have a daughter whose name is Allie and her nickname is peanut so I couldn't resist commenting on how cute your screen name is to me. 

My poor husband informed me that it was a night of two seizures for me lastnight.  I've had CT, EEG, and MRI and they have shown no abnormalities,  but I continue to have these seizures that seem to be increasing in number.  I recently switched from Atkins diet to a low fat diet and apparently that is definitely not the right diet so back to Atkins I'll go (LOL)!  I live my life on the Atkins diet so I'm not sure why I decided to change.  That was the only thing that the doctor said may be contributing to the frequency of the nighttime seizures.  I have the complex partial seizures and have only ever had them at night and I too seem to have them when I am sleep deprived.  It's weird because it's when I'm exhausted that I have them.  It's almost like I can predict them.


 

My first seizure which happened about 6 years ago they attributed to a diet pill called Diet Fuel that contained ephedra.  I am always obsessing about my weight.  Then I tried another diet pill that was Ephedra free afew years later and had another one almost immediately so they attributed the seizures just to the pills.  It's all so strange, but I wanted to ask you about medications and if you have had any success with them.  I've been reluctant to start medication, I guess that I'm just scared of them.  Do you have any advice. 

 

Sorry to have dragged on, but you seemed to have some knowledge and I'm pretty new to all of this as my seizures up until recently were so far apart and not frequent that I sort of neglected them.  I'm hoping that changing my diet back and making sure that I'm getting adequate rest will help!  Thanks in advance for any helpful information that you may have for me!

 

 

 

 

 

 

 

 

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