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Headaches, Epilepsy & Car Travel

Thu, 02/05/2004 - 16:31
For a year now I have been getting bad headaches whenever I drive or travel in a car. OTC pain relievers don't work on these and neither did any of the migraine medications I tried. My current Neurologist did an EEG and diagnosed Epilepsy. Apparently they are ictal headaches, where the headache is the only symptom of a seizure. Now we are in medication trials of anti-seizure drugs with all the joys of side effects I remember from back when I was diagnosed with Bi-Polar disorder. I just wanted see if there was anyone else out there I could talk to who has ictal headaches or anyone who has headaches or seizures that are triggered by being in a moving car. Am I alone in this bizarre condition that confounded the doctors for so long?

Comments

RE: Headaches, Epilepsy & Car Travel

Submitted by pongosmommy on Sat, 2005-04-30 - 11:40
ToubleCat,I have a question. How is your periferal vision? I have had seizures when I am the passenger in the car. My hubby just pulls over and waits til it is over. You know how some people have very good periferal and get car sick from the moving things in their vision? Well I have the opposite problem...I have almost no periferal vision and it is getting worse. Needless to say when I drive I have to concentrate and turn my head alot to see what is around me.The Neuro has no idea why my periferal is failing.Dayna

RE: RE: Headaches, Epilepsy & Car Travel

Submitted by classy1g on Sun, 2005-05-01 - 06:37
Pongo,Believe it or not, loss of peripheal vision is my 'aura', so to speak. I know I'm headed for the tunnel, when I get that feeling of things closing in. Somtimes I do seize, other times I don't. But the initial feeling starts with a buzz, almost a tickling sensation in my head...then wham...I can see and feel my peripheal vision closing in on me, until I feel like I'm in a deep dark tunnel, struggling to get out. Sometimes I seize at this point, and hold my breath. Othertimes, I don't.I hope my 2 cents has helped a littled...lolKeep safe...classy

Re: RE: RE: Headaches, Epilepsy & Car Travel

Submitted by elxtuner on Sun, 2008-08-03 - 17:10
also have had a problem with that "aura" feeling.  However, i have yet to have a seizure from it.  I have taken benadryl before to see if it would help and it helped a couple times.  If i feel like i may have problems while in a car i close my eyes and listen to my ipod to keep my mind off of it because the more i think about it the more my mind races and i get stressed out which worsens it.  Have you ever got that aura when in a public place like a mall too with a lot of people talking?  It seems like once in a great while this happens to me just from all the stimulus around me...

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