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Smelling smells that are not there?

Fri, 03/18/2005 - 16:38
I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently started wondering.I smell gasoline. It has happened probably 4 times in the last 6 months. One time I was in my classroom by myself, once I was in an assembly, another time my husband and I were getting my son in the car to leave and the other time just watching tv. It only lasts for a few seconds, but no one else smells it and they thing that I am all crazy!I do have a meningioma brain tumor that I am having removed in about a month. I have been under the care of a neurosurgeon for awhile but not a neurologist. I have never mentioned this to the NS. I see a N on Monday and will ask her this question, but wanted to see if anyone else has experienced this? Thanks!!

Comments

RE: RE: RE: RE: Smelling smells that are not there?

Submitted by spiz on Thu, 2005-03-17 - 02:51
Gretchen, Was I supposed to put a filter over my nose before I put my nose in the coffee can and deeply inhaled? (Smiles!) Seriously though, I was smelling the burning rubber smell today and finally I remembered what you had said about the coffee grounds, tried it and the smell wasn't near as pronounced as it had been.Thanks for the info!!!-Spiz

RE: Smelling smells that are not there?

Submitted by stella on Tue, 2005-03-15 - 21:23

I don't necessarily smell things but after a seizure my senses do get crossed and things feel different.   I always pet the dog for an hour or so after because it feels different, my hair feels different, and (I smoke, and I know...not good) but that is another thing that I have a craving for after, not because Im having a nic fit or anything but because it FEELS different.  As for smells, no.  but I figured it was similar.

Tiffany

I don't necessarily smell things but after a seizure my senses do get crossed and things feel different.   I always pet the dog for an hour or so after because it feels different, my hair feels different, and (I smoke, and I know...not good) but that is another thing that I have a craving for after, not because Im having a nic fit or anything but because it FEELS different.  As for smells, no.  but I figured it was similar.

Tiffany

RE: RE: Smelling smells that are not there?

Submitted by Gretchen on Tue, 2005-03-15 - 23:39
Hi KelliI nearly wept FOR you - I'm so glad someone has a responsive, informed,compassionate, patient advocate, appropriate, time giver, reassuring --- DOCTOR. Good grief where do you live? Any good rental possibilities close? I'm about to shove out of this place. It's like shoving cattle through a chute but I don't happen to want to go through some of the chutes. IOW One size (or treatment) fits all? I've lived here since July? I've been FIRED by 4 doctors - so far. Well darn't I just ASKED a question of one neuro? I was outta there. Whyz come? BECAUSE one ethic/treatment fits all. But Doctor - I don't know if that fits! FIRED!I ask where you live (now don't tell - I'm kidding really) because I have lived in Malpractriceville, Failed Doctor Depot, I Don't Give a Darn - USA. What happened to Mayberry RFD?In serious, but I WAS serious above, when I had meningitis years ago I had a headache of gigantic proportions and was discharged from the hospital STILL with this blasted headache and I did wonder - well, what ARE "we" going to do about this? I was positively amazed. I had been getting Toradol injections in the hospital every 8 hours and they were WONDERFUL! I swear -no side effects! I wasn't staggery, sleepy, memory loopy - as on narcotics AND they worked! I was a little afraid to go home and loose those precious injections. We had to discuss this "issue". I was prescribed ONE Toradol injection a day? I was very dubious about ONE when I'd been getting them every 8 hours. But? It lasted nearly 24 hours and significantly reduced the pain of that really bad headache about 20+ hours. Go figure. Note: Toradal also comes in pill form and it is a for definite stomach ripper/upchucker for most so if your doctor tries to "reduce" you to pills? I would still be in it for injections. Trade hips every other day if you're getting them daily - IOW rotate sites. Sometimes the injection can rip the stomach too, not often. An RN friend of mine taught my husband how to give me my nightly Toradol injections which I got for 30 days after I was discharged with meningitis and marked the triangle area on my hip in a water proof marker where he should inject. My husband said THE most quotable thing though about injecting me and none of us will ever let him live it down. My meningitis? Long forgotten. His remark made in nervousness? Shall always be remembered. He was nervous about injecting me. I was overweight then = I needed a long needle to get through the fat and to the muscle and he was a little freaked by it all plus he had two seasoned RN's watching his performance too, but to reassure me and my friend he was up for it, he said close to this:"I'm not that nervous because I've got experience giving shots. I used to give shots to all our hogs when we were running pigs!" EEEEKKKKSSS I later learned I was glad he had so much experience with his hogs because in fact, he was pretty smooth. But it was really hard with my fat butt sticking up in the air every night and this vision of - the hogs.SO glad you had such a good appointment! Your post was the shining moment for my day!GretchenPS So wish me well tomorrow. I'm going to a NEW doctor. Or? Firing No. 5. I think I'm having a failure of communication?

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