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Smelling smells that are not there?

Fri, 03/18/2005 - 16:38
I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently started wondering.I smell gasoline. It has happened probably 4 times in the last 6 months. One time I was in my classroom by myself, once I was in an assembly, another time my husband and I were getting my son in the car to leave and the other time just watching tv. It only lasts for a few seconds, but no one else smells it and they thing that I am all crazy!I do have a meningioma brain tumor that I am having removed in about a month. I have been under the care of a neurosurgeon for awhile but not a neurologist. I have never mentioned this to the NS. I see a N on Monday and will ask her this question, but wanted to see if anyone else has experienced this? Thanks!!

Comments

RE: RE: RE: RE: RE: RE: RE: RE: RE: Smelling smells that are not

Submitted by MeningiomaMommaKelli on Tue, 2005-03-15 - 10:00
Well, I went to the N yesterday and finally came clean with the gasoline smell and she immedialty started telling me about olofactory(sp?) hallucinations and that she does believe this is a simple seizure. I did finally also decide to mention that I hear things that are not there. I really thought she would think"Get the psych down here!!" but she did not and reassured me that this is very valid things in addition to other things I described. We were in her office for nearly 2 hours. She was amazed that I have gone so long with uncontrolled migraines and this. I am now taken zonagran(?sp), toradol injections for the migraines and a nasal spray for the migraines (migranal).I really hope that this is going to help me. Not too keen on the shot thing but I do know that this does help.THanks!!Kelli

RE: RE: RE: RE: RE: RE: RE: RE: RE: RE: Smelling smells that are

Submitted by spiz on Tue, 2005-03-15 - 14:32
Kelli, I'm so happy you found meds that help and your Neuro sounds like a definite keeper! I know being able to talk to her and finding she listened took a load off right then. Keep us posted,ok?-Spiz

RE: RE: RE: RE: RE: RE: RE: RE: RE: RE: Smelling smells that are

Submitted by pongosmommy on Tue, 2005-03-15 - 17:39
Kelli, Please keep us posted. I am interested about those migraine meds. I take the Zonegran at night, I think it is working. I know about having to take shots, kind of a drag, but maybe you wont have to take them for too long.Dayna

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