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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Topic: New to Epilepsy.com
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: RE: Seizures while sleeping~

Submitted by BrodiesMom on Mon, 2005-03-07 - 17:55

My 9 year old has been diagnosed with benign rolandic   and he has been having seizures quite often usually at 6:45  am  but he just had one in the evening,  we are not medicating him yet.  but can you tell what your child is taking 

The seizures are very scary  usually when hes done his right side of his  body stays paralyzed for a while.

My 9 year old has been diagnosed with benign rolandic   and he has been having seizures quite often usually at 6:45  am  but he just had one in the evening,  we are not medicating him yet.  but can you tell what your child is taking 

The seizures are very scary  usually when hes done his right side of his  body stays paralyzed for a while.

RE: RE: RE: RE: Seizures while sleeping~

Submitted by Sdionne on Fri, 2005-04-08 - 08:46
I know what you are saying...My son was diagnosed with Benign Rolandic epilepsy about a year ago. He started by having his first seizure about 10 mintues into his nap. Over the past year he has had five in total. The first two were 8 minutes induration and the last three were only about 2 minutes or less. It is a very scary thing...We sit on egg shells everyday wondering when it could happen again.

RE: RE: RE: RE: Seizures while sleeping~

Submitted by antcon on Sat, 2005-04-30 - 21:13

Hi brodhes mom

My son is also 9 and had BRE.  We are not medicating him.  But today he had a seizure that lasted 2 minutes then was paralized for a few minutes afterward.  Is your son on med's???

 

Please reply asap

Thanks

nk

Hi brodhes mom

My son is also 9 and had BRE.  We are not medicating him.  But today he had a seizure that lasted 2 minutes then was paralized for a few minutes afterward.  Is your son on med's???

 

Please reply asap

Thanks

nk

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