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Depakote

Tue, 08/10/2004 - 21:50
Hi, I am new to this comunity, and I need some support.In December 2002 my husband had a scheduled aneuryzm surgery. 3 days later he had a stroke, was in coma for 15 days, and paralized on his left side. Doctors put him on Dilantin 300mg a day. This medication worked pretty well at the beginning, and he did not have seizures, but later on his Dilantin level was very unstable, and every time it was out of the therapeutical level he had seizures. As you know the free level is therapeutical btw 1-2, and the total level is btw: 10-20. These seizures lasted sometimes 30, 40, and 50 minutes, so we ended up at the ER, and in the ICU with status epilepticus. Every time they knocked him out, because they were not able to stop the seizures otherwise. What was stange in this seizures, he was always conscieus, you talked to him, and he aswered your questions. In 2003 he was more at the hospital, and rehab centers than at home. They changed his medication several times. First Dilantin, than Keppra, than Dilantin again, than they added Topomax to his Dilantin. This last combination was on for a long time, but because he was still having this long seizures, some doctor called it grand mal, some other partial tonic clonic seizure, doctors changed again medication. Left him on Dilantin and added Trileptal. This combination was no good either, then they eased him off of Dilantin and added Keppra. I think the best combination for him was Trileptal and Keppra, because he acted like as he was before the surgery. But doctors changed again (in my opinion for some mistake,because they thought he had a seizure, and he did not) and we ended up with Depakote and Keppra. Now he is taking 1250mg of Kepra 2x a day and 500mg of Depakote 3x a day. He is very sleepy, sleeps from 8PM to 8AM every day, sometimes longer, and takes other naps during the day, and now lately he has difficulty walking with the cane, or walker and has difficulty transferring to the wheelchair or bed or toilet. The last time we checked, his Depakote level was 100.33, still acceptable, because the therapeutical level is btw. 50-100. I kind of don't like Depakote, but I am afraid of a change, because he still has some seizures, about every 2 weeks, but they are now 2 min or less. He was disabled after the stroke, but rehabilitation get him back, almost as he was before. Then the seizures started, and he was not able to walk again, he is very week. Doctors say, that the scar tissue in the brain causes these seizures. He cannot be left alone, I have a lady who is watching him during the day, when I work. He stilll has therapy, but if it is after a seizure it seems that he made 1 step forward and two steps back. His Neuroligst gave us Diastat, what is a great medication: it is a rectal gel (valium), it has to be given only if the seizure is longer then 5 min. Wherever we go, I take it with me. I had to use it one time, and have to tell, it stopped the seizure instantly.Sorry to bore you, but perhaps sombody has some suggestions, and support for me.ThanksK

Comments

RE: RE: RE: RE: RE: Depakote

Submitted by mexican_fire on Wed, 2004-08-04 - 22:28

TIA is the medical abbreviation for Transient Ischemic Attack, sometimes referred to as a "mini stroke" because the symptoms are transient and are just passing through temporarily.  Symptoms are very similair to a real stroke, but they subside in 24 hours, and the person is back to doing whatever, with NO damage done.  Eventually if enough of those occur, it can lead to a major stroke.

CVA is the medical abbreviation for Cerebral Vascular Accident, or stroke.

It means that blood vessels whether small or large have either burst, broke, annurysmed(spelling), sheared off, or cracked leaving the blood to escape either slowly or abruptly.

Yes, it matters if the stroke was hemorrhagic in nature.  That means that the blood vessel in his head popped wide open and the amount of blood in his head is what the problem is.  Hemorrhagic strokes are the worst kind there are.  They do the most damage, will cause clots, bleed out into the brain causing all kinds of havoc in there, they cause bleeding inbetween any one of the three membranes that cover the brain, between all of them as a whole and the brain, between the skull and the membranes, among other things, and they kill people.  If not on the fist one, stats show alarming numbers for people's lives being taken by this problem.  This is NOT meant to scare you, so don't think that I am.

They mess with the bodily functions, coordination, speech, hearing, ability to follow commands and be talked to, it messes up how they think, and alot of times they revert back to being a small child and actually act like it repeating the words no, yes, yucky, mine, not hungry, and wetting and defecating themselves etc. 

I am on crutches after just getting off of them 5 months ago when I was in the EMU.  I had surgery in Feb to repair a faulty fascia in my heel--known as heel spurs or plantar fascitis.  I was crippled from it for 11 months, before I finally got referred to the right doc.  He did all the necessary treatments like inserts, PT, cortizone shots etc, and none of them worked, so he did the surgery.

Because of my epilepsy, I couldn't have general anesthesia, so I was given Versed, and another narcotic to knock me out, and they did a nerve block from my knee down, that actually didn't wear off for 4 days, but when it did...it wasn't fun.

I re-injured it stepping on a clear plastic hanger that was on the floor of my room under something, and I didn't see it.  I should have picked up the mess when my mother asked me to.

I stepped right across the surgical site and inscision sites.  I know have a swelled up foot from front to back on the bottom, because that is the path of the fascia, and swelling on the lower top of my foot near my toes, and bad bruising as well, not to mention the pain all over again.

Then 2 days ago, I jumped into our pool to try and land on my noodle, and got the noodle, but also got the bottom of the pool doing so.  I scraped the top of my toes on the bad foot all up, and hyper-flexed my foot straight back, and now I have a sprained ankle on top of all the other crap.

Nothing has been done with the cab driver.  They probably won't, because as we were leaving the parking lot, he called his supervisor and made some asinine complaint about MY behavior and how out of line I was.

He was acting like a fool before I ever came in the scene. 

He was being nasty and bad to the receptionist at the office where I had an appointment with, and he was being argumentitive with her and got nasty with her when she told him that my time is not up yet, becaaue the counselor started late.

He wouldn't allow me to schedule next week's appoinment, and was nasty when I asked him if I could, and I still haven't. 

When we left and were in the main lobby of the building, some man approached him and told him that he couldn't park his car where it was, because his wife has a scooter and had to go the long way around.

That made him more mad, and I apologized to him for it two times, and he said sorries aren't going to get me paid lady.  Then I told him while he was throwing things around in disgust in the front, that if he didn't want to take me, I would gladly call dial-a-ride, well then he was even uglier about that, because I was threatening him.  He told me that I was way out of line.

He called the supervisor and told him half the truth, and then said that I have a crap attitude, and that I was listening, and he didn't care if I was listening, and said that I got testy with him making threats about getting a different service.

I am not going to put up with that kind of abuse, when I can ride Dial-a-Ride and be respected all the way around both by the drivers and the passengers.

I almost had a seizure from his performance.  I was already shaking.

I tried, but I doubt anything will come of it.  He is just an ass.

He is in it for the money, not for helping the people.  He gets or any other drivers only get a 5 dollar voucher when they take calls to pick up people who are state insured.  He just didn't like it.

I need to go.

TTYL:)

Nancy

TIA is the medical abbreviation for Transient Ischemic Attack, sometimes referred to as a "mini stroke" because the symptoms are transient and are just passing through temporarily.  Symptoms are very similair to a real stroke, but they subside in 24 hours, and the person is back to doing whatever, with NO damage done.  Eventually if enough of those occur, it can lead to a major stroke.

CVA is the medical abbreviation for Cerebral Vascular Accident, or stroke.

It means that blood vessels whether small or large have either burst, broke, annurysmed(spelling), sheared off, or cracked leaving the blood to escape either slowly or abruptly.

Yes, it matters if the stroke was hemorrhagic in nature.  That means that the blood vessel in his head popped wide open and the amount of blood in his head is what the problem is.  Hemorrhagic strokes are the worst kind there are.  They do the most damage, will cause clots, bleed out into the brain causing all kinds of havoc in there, they cause bleeding inbetween any one of the three membranes that cover the brain, between all of them as a whole and the brain, between the skull and the membranes, among other things, and they kill people.  If not on the fist one, stats show alarming numbers for people's lives being taken by this problem.  This is NOT meant to scare you, so don't think that I am.

They mess with the bodily functions, coordination, speech, hearing, ability to follow commands and be talked to, it messes up how they think, and alot of times they revert back to being a small child and actually act like it repeating the words no, yes, yucky, mine, not hungry, and wetting and defecating themselves etc. 

I am on crutches after just getting off of them 5 months ago when I was in the EMU.  I had surgery in Feb to repair a faulty fascia in my heel--known as heel spurs or plantar fascitis.  I was crippled from it for 11 months, before I finally got referred to the right doc.  He did all the necessary treatments like inserts, PT, cortizone shots etc, and none of them worked, so he did the surgery.

Because of my epilepsy, I couldn't have general anesthesia, so I was given Versed, and another narcotic to knock me out, and they did a nerve block from my knee down, that actually didn't wear off for 4 days, but when it did...it wasn't fun.

I re-injured it stepping on a clear plastic hanger that was on the floor of my room under something, and I didn't see it.  I should have picked up the mess when my mother asked me to.

I stepped right across the surgical site and inscision sites.  I know have a swelled up foot from front to back on the bottom, because that is the path of the fascia, and swelling on the lower top of my foot near my toes, and bad bruising as well, not to mention the pain all over again.

Then 2 days ago, I jumped into our pool to try and land on my noodle, and got the noodle, but also got the bottom of the pool doing so.  I scraped the top of my toes on the bad foot all up, and hyper-flexed my foot straight back, and now I have a sprained ankle on top of all the other crap.

Nothing has been done with the cab driver.  They probably won't, because as we were leaving the parking lot, he called his supervisor and made some asinine complaint about MY behavior and how out of line I was.

He was acting like a fool before I ever came in the scene. 

He was being nasty and bad to the receptionist at the office where I had an appointment with, and he was being argumentitive with her and got nasty with her when she told him that my time is not up yet, becaaue the counselor started late.

He wouldn't allow me to schedule next week's appoinment, and was nasty when I asked him if I could, and I still haven't. 

When we left and were in the main lobby of the building, some man approached him and told him that he couldn't park his car where it was, because his wife has a scooter and had to go the long way around.

That made him more mad, and I apologized to him for it two times, and he said sorries aren't going to get me paid lady.  Then I told him while he was throwing things around in disgust in the front, that if he didn't want to take me, I would gladly call dial-a-ride, well then he was even uglier about that, because I was threatening him.  He told me that I was way out of line.

He called the supervisor and told him half the truth, and then said that I have a crap attitude, and that I was listening, and he didn't care if I was listening, and said that I got testy with him making threats about getting a different service.

I am not going to put up with that kind of abuse, when I can ride Dial-a-Ride and be respected all the way around both by the drivers and the passengers.

I almost had a seizure from his performance.  I was already shaking.

I tried, but I doubt anything will come of it.  He is just an ass.

He is in it for the money, not for helping the people.  He gets or any other drivers only get a 5 dollar voucher when they take calls to pick up people who are state insured.  He just didn't like it.

I need to go.

TTYL:)

Nancy

RE: RE: RE: RE: RE: RE: Depakote

Submitted by ermeszter on Thu, 2004-08-05 - 22:24

Hi Nancy,

Thank you.  You did not scare me,  I kind of knew, but I wanted to know.  I am very afraid  for him and  hope something can be done.  What you are describing some of it is happening. I will let you know what the doc will say.

Sorry to hear about your injury, and really hope it gets better soon.

About the cab driver, I find that outrageous, how people act sometimes.  He must be a very unlucky man,  otherwise I cannot immagine being so rude and nasty to somebody.

God bless, I pray for you.

Thanks again

Katalin

Hi Nancy,

Thank you.  You did not scare me,  I kind of knew, but I wanted to know.  I am very afraid  for him and  hope something can be done.  What you are describing some of it is happening. I will let you know what the doc will say.

Sorry to hear about your injury, and really hope it gets better soon.

About the cab driver, I find that outrageous, how people act sometimes.  He must be a very unlucky man,  otherwise I cannot immagine being so rude and nasty to somebody.

God bless, I pray for you.

Thanks again

Katalin

RE: RE: RE: RE: Depakote

Submitted by ermeszter on Sun, 2005-03-06 - 22:32

Hi Nanacy,

I am back again, my husband is doing now a little better, he was 5 months in the hospital and in several skilled nursing facilities.  It was just a nightmare.

I brought him to the hospital on the 6th of August 2004, and he came home on the 8th of January 2005.  To make the long story short in between he had several times aspiration pneumonia, w/respiratory distress, MRSA, heart surgery because he had 700cc liquid around his heart, his bloodpressure went down to 54 over 24 sometimes and his heart rate was 120, naturally he was in and out of the ICU.

As you remember he was on Depakote, and I thank God and the lady doctor, she changed Depakote to Tileptal.  He is now on 1000 mg of Keppra 2x a day and 900mg of Trileptal in the morning and 600 mg in the evening.

He is now alert, and talking a lot  more, he walks also a lot more then before (w/walker).  On Depakote he was a zombie.

His seizures are now 2 to 3 minutes long and usualy about every 23 days.  Today he had two, one at 8:20 AM  3 minutes long and an other one at 11:45 AM 2 minutes.  The second one left him more week on the left side, his left cheek was not mooving for a long time either, he was confused a bit.  Is this usual how it happends? 

I have a question: I have Ativan 1 mg at home and the doctor said (it was in 2003) to give it to him at the onset of the seizure.  I never used it.  Is this in case only if the seizure is longer of 5 minutes?  For that I have Diastat at home also.  I used it once, it stopped the seizure instantly (here I do not know, if the seizure  would have stopped anyhow).

I hope you are doing better now, and kind of everything is setteling down.  Please let me know.

Katalin

 

Hi Nanacy,

I am back again, my husband is doing now a little better, he was 5 months in the hospital and in several skilled nursing facilities.  It was just a nightmare.

I brought him to the hospital on the 6th of August 2004, and he came home on the 8th of January 2005.  To make the long story short in between he had several times aspiration pneumonia, w/respiratory distress, MRSA, heart surgery because he had 700cc liquid around his heart, his bloodpressure went down to 54 over 24 sometimes and his heart rate was 120, naturally he was in and out of the ICU.

As you remember he was on Depakote, and I thank God and the lady doctor, she changed Depakote to Tileptal.  He is now on 1000 mg of Keppra 2x a day and 900mg of Trileptal in the morning and 600 mg in the evening.

He is now alert, and talking a lot  more, he walks also a lot more then before (w/walker).  On Depakote he was a zombie.

His seizures are now 2 to 3 minutes long and usualy about every 23 days.  Today he had two, one at 8:20 AM  3 minutes long and an other one at 11:45 AM 2 minutes.  The second one left him more week on the left side, his left cheek was not mooving for a long time either, he was confused a bit.  Is this usual how it happends? 

I have a question: I have Ativan 1 mg at home and the doctor said (it was in 2003) to give it to him at the onset of the seizure.  I never used it.  Is this in case only if the seizure is longer of 5 minutes?  For that I have Diastat at home also.  I used it once, it stopped the seizure instantly (here I do not know, if the seizure  would have stopped anyhow).

I hope you are doing better now, and kind of everything is setteling down.  Please let me know.

Katalin

 

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