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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Topic: New to Epilepsy.com
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: RE: RE: RE: RE: RE: Seizures while sleeping~

Submitted by Renezellweg on Thu, 2005-02-24 - 15:40
Geez,  I never thought of the aspartame in the millions of diet pepsis that I drink!  I am a Diet Pepsi junkie, to say the least!  Man, Cookie you've had some tough times, I admire how you manage to stay upbeat!  I dread it when my kids are old enough to get into "serious" trouble!  I just pray that none of them end up having seizures!  I am still just thankful that they only occur in my sleep!  I though about drinking a Red Bull the other night but was fearful that I might have a seizure from whatever makes a Red Bull a Red Bull!  Well, gang, I'm off to Cancun.  Just dropped the kids off at grandma and grandpas's house two hours away and I feel so free!  I just want to go to Cancun, have some exotic drinks and not have any seizures!  I'm thinking that since I just had one last week that I should be in the clear, but I guess you never know!  Wish me luck!

RE: RE: RE: RE: RE: RE: RE: RE: Seizures while sleeping~

Submitted by cookieparty on Thu, 2005-02-24 - 15:58

Don't worry , be happy! That's what they say in the Carribean!

I wouldn't go scuba diving or drink the water...and if you have drinks outside the hotel, drink them up (without ice) , take my word for it , it's still water and it's not always water that's filtered...I know, I learned the hard way!

Have fun!!!!

Don't worry , be happy! That's what they say in the Carribean!

I wouldn't go scuba diving or drink the water...and if you have drinks outside the hotel, drink them up (without ice) , take my word for it , it's still water and it's not always water that's filtered...I know, I learned the hard way!

Have fun!!!!

RE: RE: RE: RE: RE: RE: RE: RE: Seizures while sleeping~

Submitted by pongosmommy on Thu, 2005-02-24 - 17:46
Have a great time in Cancun! ENJOY!

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