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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: RE: RE: Seizures while sleeping~

Submitted by cookieparty on Wed, 2005-02-23 - 18:21

Hi ReneeZ...I just read your last post. I feel like maybe you are a younger version of me. Except that once I started having seizures in my sleep, they continued to happen bi weekly or monthly at best when I haven't been medicated heavily enough. Compared to the dosages of medications I read about on this site, it takes a whole lot less for me to stay seizure free. At least I am not having gran mal type episodes.

I do have the shakes sometimes and I do twitch a little...and when I had the first seizure, the first medication prescribed was keppra and it made me want to hurt other people AND myself! I didn't understand the danger back then of  choosing 'how much' or 'how little' of the meds I should ingest and I stopped taking it without discussing it with the doc...guess what? Another seizure within 24 hours.

The topamax makes me feel stupid. No other way to put it. It makes my hands and feet tingle and I can't remember words. I can't remember what I did with the 'stuff' I wanted to take upstairs when I  am cleaning the house on the weekends and I can't carry on an intelligent conversation at work which could cost me my job.

I am in transition to Lamictal at present. Suddenly, I can focus! I have my ability to think back. My ambition is back and while I also have my appetite back (one advantage of the t-max) , I still work out so I can handle any potential weight issue.

I am baffled too about why I started having seizures when I never had this problem before, but I am NOT GOING TO LET IT STOP ME, period. 

Could it be the anti depressant I was taking for 18 months that later was taken off the market ? Maybe. But, it was discontinued for liver damage, not mental problems, so who knows?

Could be onset of menopause?...ok..... That just means better sex with a really handsome hubby if I can find the right meds to keep me from freaking out at night and still feel good during the day.

If this Lamictal works without the Tomamax, I'll be my 'type A' self again and God help the rest of the world. Good luck!

Hi ReneeZ...I just read your last post. I feel like maybe you are a younger version of me. Except that once I started having seizures in my sleep, they continued to happen bi weekly or monthly at best when I haven't been medicated heavily enough. Compared to the dosages of medications I read about on this site, it takes a whole lot less for me to stay seizure free. At least I am not having gran mal type episodes.

I do have the shakes sometimes and I do twitch a little...and when I had the first seizure, the first medication prescribed was keppra and it made me want to hurt other people AND myself! I didn't understand the danger back then of  choosing 'how much' or 'how little' of the meds I should ingest and I stopped taking it without discussing it with the doc...guess what? Another seizure within 24 hours.

The topamax makes me feel stupid. No other way to put it. It makes my hands and feet tingle and I can't remember words. I can't remember what I did with the 'stuff' I wanted to take upstairs when I  am cleaning the house on the weekends and I can't carry on an intelligent conversation at work which could cost me my job.

I am in transition to Lamictal at present. Suddenly, I can focus! I have my ability to think back. My ambition is back and while I also have my appetite back (one advantage of the t-max) , I still work out so I can handle any potential weight issue.

I am baffled too about why I started having seizures when I never had this problem before, but I am NOT GOING TO LET IT STOP ME, period. 

Could it be the anti depressant I was taking for 18 months that later was taken off the market ? Maybe. But, it was discontinued for liver damage, not mental problems, so who knows?

Could be onset of menopause?...ok..... That just means better sex with a really handsome hubby if I can find the right meds to keep me from freaking out at night and still feel good during the day.

If this Lamictal works without the Tomamax, I'll be my 'type A' self again and God help the rest of the world. Good luck!

RE: RE: RE: RE: RE: Seizures while sleeping~

Submitted by pongosmommy on Wed, 2005-02-23 - 18:40
Great way of thinking!I love the menopausal stuff. I had a hysterectomy in August. No one thinks my seizures are related to that though.What Antidepressant were you on? Dayna

RE: RE: RE: RE: RE: RE: Seizures while sleeping~

Submitted by cookieparty on Thu, 2005-02-24 - 15:27

Hi Dayna...I was on serzone. That was terrific. I have never and I mean NEVER had a need for an anti depressant before. I have a terrific and blessed life...I am a naturally upbeat Pollyanna type who usually has kids following me around to see what the next fun thing is going to be and if I'm working, I'm the one who is 'rallying the troops' y'know?

I took the serzone when a lot of stuff happened at once: lost my mom, broke two feet at once, lost my job, smart kid in HS doing really stupid stuff, and then he got his girlfriend pregant (all in the space of about 4 months!) . I learned that this causes a chemical problem in the brain that causes the extreme depression I felt. I couldn't work out or power walk (hard to do in a wheel chair), I gained weight, I was in mourning and my son (well, I don't even want to go there)....

The serzone was a life saver and all those issues did work themselves out....Everything and everyone is back on track. The doc let me take this drug for 18 months before I read somewhere that you shouldn't take an anti depress. for longer than 6 months ( there may be side effects).

I was also drinking a lot (and I mean a lot of diet soda which contains aspartame.) Now, the docs dismiss this chemical as an issue too. But if you research it, you will find that the FDA has a lot of documentation on the ill effects , including its ability to cause violent behavior and seizures. There is evidence as well that it becomes a volatile chemical when it is stored in temperatures that are like over 70 ° or something like that which may explain why some soldiers come home from combat in the desert after eating ready meals and are violent (they often contain items with aspartame in them).

I stopped ingesting both of these things in my own search for the reasons I might be having seizures at this stage of an otherwise normal and very healthy life.

 

Hi Dayna...I was on serzone. That was terrific. I have never and I mean NEVER had a need for an anti depressant before. I have a terrific and blessed life...I am a naturally upbeat Pollyanna type who usually has kids following me around to see what the next fun thing is going to be and if I'm working, I'm the one who is 'rallying the troops' y'know?

I took the serzone when a lot of stuff happened at once: lost my mom, broke two feet at once, lost my job, smart kid in HS doing really stupid stuff, and then he got his girlfriend pregant (all in the space of about 4 months!) . I learned that this causes a chemical problem in the brain that causes the extreme depression I felt. I couldn't work out or power walk (hard to do in a wheel chair), I gained weight, I was in mourning and my son (well, I don't even want to go there)....

The serzone was a life saver and all those issues did work themselves out....Everything and everyone is back on track. The doc let me take this drug for 18 months before I read somewhere that you shouldn't take an anti depress. for longer than 6 months ( there may be side effects).

I was also drinking a lot (and I mean a lot of diet soda which contains aspartame.) Now, the docs dismiss this chemical as an issue too. But if you research it, you will find that the FDA has a lot of documentation on the ill effects , including its ability to cause violent behavior and seizures. There is evidence as well that it becomes a volatile chemical when it is stored in temperatures that are like over 70 ° or something like that which may explain why some soldiers come home from combat in the desert after eating ready meals and are violent (they often contain items with aspartame in them).

I stopped ingesting both of these things in my own search for the reasons I might be having seizures at this stage of an otherwise normal and very healthy life.

 

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