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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: Seizures while sleeping~

Submitted by tracul66 on Fri, 2005-02-18 - 11:25

Hi Bruce: "And everyone else in our Group".,.

I just wanted to 'thank-you' for 'correcting' some people about what exactly a 'petite-mal-seizure' is. I started with 'Grand-Mal-Seizures' when I was '6-yrs old',,,but was 'Lucky',,& they changed to 'petite-mal-seizures'. With me, I have the tendancy to NOT remember what happens,,& when people don't tell me (after I've had 1) it really bothers me.Believe it or not,,my 'Specialist/Neurologist' & many other 'Dr's' have agreed that 'Women' are more likely to 'reduce' in types ot 'Epilepsy' (due the fact that when they have a 'child' being the most 'strenuous' thing in life they can go through, & as to myself,,it helped me go from 'Grand-Mal' to 'Petite-Mal'.) Bye the way,,,have you 'Bruce' , or anyone else in the 'Group',,heard of or been on 'Keppra' yet,,,,,Well , if you haven't , it's Honestly 'Awesome' stuff. They say, that you take it with your 'other meds' up to 4-mths. During that time, your 'Seizures' Reduce anywhere from '20%-40%'...And when you're on "Keppra" Alone,,,it Reduces 'Seizures' from '50%-75%' ,,,Pretty neat eh?  Hopefully it will work on ALOT of other's out there too,,,!! Anyone can check the 'website' @,,,,www.keppra.com/or just ,,www.keppra.

Hopefully "Someone" out there won't mind being a 'True-Friend' (Pen-Pal) with me,,at times, I can Really use one,,,,Thanx, & all of you's take-care,,

Your Friend Tracey

Hi Bruce: "And everyone else in our Group".,.

I just wanted to 'thank-you' for 'correcting' some people about what exactly a 'petite-mal-seizure' is. I started with 'Grand-Mal-Seizures' when I was '6-yrs old',,,but was 'Lucky',,& they changed to 'petite-mal-seizures'. With me, I have the tendancy to NOT remember what happens,,& when people don't tell me (after I've had 1) it really bothers me.Believe it or not,,my 'Specialist/Neurologist' & many other 'Dr's' have agreed that 'Women' are more likely to 'reduce' in types ot 'Epilepsy' (due the fact that when they have a 'child' being the most 'strenuous' thing in life they can go through, & as to myself,,it helped me go from 'Grand-Mal' to 'Petite-Mal'.) Bye the way,,,have you 'Bruce' , or anyone else in the 'Group',,heard of or been on 'Keppra' yet,,,,,Well , if you haven't , it's Honestly 'Awesome' stuff. They say, that you take it with your 'other meds' up to 4-mths. During that time, your 'Seizures' Reduce anywhere from '20%-40%'...And when you're on "Keppra" Alone,,,it Reduces 'Seizures' from '50%-75%' ,,,Pretty neat eh?  Hopefully it will work on ALOT of other's out there too,,,!! Anyone can check the 'website' @,,,,www.keppra.com/or just ,,www.keppra.

Hopefully "Someone" out there won't mind being a 'True-Friend' (Pen-Pal) with me,,at times, I can Really use one,,,,Thanx, & all of you's take-care,,

Your Friend Tracey

RE: Seizures while sleeping~

Submitted by batman on Fri, 2005-02-18 - 14:18

Tracey,

 

First and most important thing I want to say is that you have a ‘true friend’ [pen-pal] right here. Me.

 

I have been on Lamictal since Sept 1997 and have bounced around on other AEDs with this. Just this past year, in mid-July 2004, I started the process of being weaned off of Depakote and slowly onto Keppra. Not real difference at controlling my seizures [simple partial/auras] at all, but my grand mal and complex partial seizures are still under control.

 

Something new has come up though. Back in January this year of 2005, I did some more online searching for information with diet, digestion and epileptic seizures. I found some information, ordered & received the treatment plan, and so far have only made a slight adjustment with by diet as to what particular foods & liquids I consume at the same time. For example, instead of having milk & cereal along with fruit and juice, I divide the two up. One morning just milk & cereal, then the next morning just fruit and orange juice. This and a few other diet changes have lowered the amount of sps I was having, and when the sps do happen, theyÂ’re not a strong and/or last long. But there are other separate steps I need to do and my plans are to talk to my primary doctor and neurologist when I see them both next week, about this treatment plan.

Found an update on one website just last week. Instead of there being over 2.5 million people in the United States who have epilepsy, like I posted in message #11 on this post topic, itÂ’s now over 2.8 millionPwE in the US.

Got any more questions or comments just to share with anyone here, please do so. Stick with us Tracey.

Bruce J

 

Tracey,

 

First and most important thing I want to say is that you have a ‘true friend’ [pen-pal] right here. Me.

 

I have been on Lamictal since Sept 1997 and have bounced around on other AEDs with this. Just this past year, in mid-July 2004, I started the process of being weaned off of Depakote and slowly onto Keppra. Not real difference at controlling my seizures [simple partial/auras] at all, but my grand mal and complex partial seizures are still under control.

 

Something new has come up though. Back in January this year of 2005, I did some more online searching for information with diet, digestion and epileptic seizures. I found some information, ordered & received the treatment plan, and so far have only made a slight adjustment with by diet as to what particular foods & liquids I consume at the same time. For example, instead of having milk & cereal along with fruit and juice, I divide the two up. One morning just milk & cereal, then the next morning just fruit and orange juice. This and a few other diet changes have lowered the amount of sps I was having, and when the sps do happen, theyÂ’re not a strong and/or last long. But there are other separate steps I need to do and my plans are to talk to my primary doctor and neurologist when I see them both next week, about this treatment plan.

Found an update on one website just last week. Instead of there being over 2.5 million people in the United States who have epilepsy, like I posted in message #11 on this post topic, itÂ’s now over 2.8 millionPwE in the US.

Got any more questions or comments just to share with anyone here, please do so. Stick with us Tracey.

Bruce J

 

RE: RE: RE: Seizures while sleeping~

Submitted by sweetpea on Sun, 2005-03-13 - 00:01
You can email me anytime and you have a friend here

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