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Seizures while sleeping~
Tue, 01/25/2005 - 17:03Comments
RE: Seizures while sleeping~
Submitted by batman on Fri, 2005-02-18 - 14:18
Tracey,
First and most important thing I want to say is that you have a ‘true friend’ [pen-pal] right here. Me.
I have been on Lamictal since Sept 1997 and have bounced around on other AEDs with this. Just this past year, in mid-July 2004, I started the process of being weaned off of Depakote and slowly onto Keppra. Not real difference at controlling my seizures [simple partial/auras] at all, but my grand mal and complex partial seizures are still under control.
Something new has come up though. Back in January this year of 2005, I did some more online searching for information with diet, digestion and epileptic seizures. I found some information, ordered & received the treatment plan, and so far have only made a slight adjustment with by diet as to what particular foods & liquids I consume at the same time. For example, instead of having milk & cereal along with fruit and juice, I divide the two up. One morning just milk & cereal, then the next morning just fruit and orange juice. This and a few other diet changes have lowered the amount of sps I was having, and when the sps do happen, theyÂ’re not a strong and/or last long. But there are other separate steps I need to do and my plans are to talk to my primary doctor and neurologist when I see them both next week, about this treatment plan.
Found an update on one website just last week. Instead of there being over 2.5 million people in the United States who have epilepsy, like I posted in message #11 on this post topic, itÂ’s now over 2.8 millionPwE in the US.
Got any more questions or comments just to share with anyone here, please do so. Stick with us Tracey.
Bruce J
Tracey,
First and most important thing I want to say is that you have a ‘true friend’ [pen-pal] right here. Me.
I have been on Lamictal since Sept 1997 and have bounced around on other AEDs with this. Just this past year, in mid-July 2004, I started the process of being weaned off of Depakote and slowly onto Keppra. Not real difference at controlling my seizures [simple partial/auras] at all, but my grand mal and complex partial seizures are still under control.
Something new has come up though. Back in January this year of 2005, I did some more online searching for information with diet, digestion and epileptic seizures. I found some information, ordered & received the treatment plan, and so far have only made a slight adjustment with by diet as to what particular foods & liquids I consume at the same time. For example, instead of having milk & cereal along with fruit and juice, I divide the two up. One morning just milk & cereal, then the next morning just fruit and orange juice. This and a few other diet changes have lowered the amount of sps I was having, and when the sps do happen, theyÂ’re not a strong and/or last long. But there are other separate steps I need to do and my plans are to talk to my primary doctor and neurologist when I see them both next week, about this treatment plan.
Found an update on one website just last week. Instead of there being over 2.5 million people in the United States who have epilepsy, like I posted in message #11 on this post topic, itÂ’s now over 2.8 millionPwE in the US.
Got any more questions or comments just to share with anyone here, please do so. Stick with us Tracey.
Bruce J
RE: RE: Seizures while sleeping~
Submitted by tracul66 on Fri, 2005-02-18 - 11:25
Hi Bruce: "And everyone else in our Group".,.
I just wanted to 'thank-you' for 'correcting' some people about what exactly a 'petite-mal-seizure' is. I started with 'Grand-Mal-Seizures' when I was '6-yrs old',,,but was 'Lucky',,& they changed to 'petite-mal-seizures'. With me, I have the tendancy to NOT remember what happens,,& when people don't tell me (after I've had 1) it really bothers me.Believe it or not,,my 'Specialist/Neurologist' & many other 'Dr's' have agreed that 'Women' are more likely to 'reduce' in types ot 'Epilepsy' (due the fact that when they have a 'child' being the most 'strenuous' thing in life they can go through, & as to myself,,it helped me go from 'Grand-Mal' to 'Petite-Mal'.) Bye the way,,,have you 'Bruce' , or anyone else in the 'Group',,heard of or been on 'Keppra' yet,,,,,Well , if you haven't , it's Honestly 'Awesome' stuff. They say, that you take it with your 'other meds' up to 4-mths. During that time, your 'Seizures' Reduce anywhere from '20%-40%'...And when you're on "Keppra" Alone,,,it Reduces 'Seizures' from '50%-75%' ,,,Pretty neat eh? Hopefully it will work on ALOT of other's out there too,,,!! Anyone can check the 'website' @,,,,www.keppra.com/or just ,,www.keppra.
Hopefully "Someone" out there won't mind being a 'True-Friend' (Pen-Pal) with me,,at times, I can Really use one,,,,Thanx, & all of you's take-care,,
Your Friend Tracey
Hi Bruce: "And everyone else in our Group".,.
I just wanted to 'thank-you' for 'correcting' some people about what exactly a 'petite-mal-seizure' is. I started with 'Grand-Mal-Seizures' when I was '6-yrs old',,,but was 'Lucky',,& they changed to 'petite-mal-seizures'. With me, I have the tendancy to NOT remember what happens,,& when people don't tell me (after I've had 1) it really bothers me.Believe it or not,,my 'Specialist/Neurologist' & many other 'Dr's' have agreed that 'Women' are more likely to 'reduce' in types ot 'Epilepsy' (due the fact that when they have a 'child' being the most 'strenuous' thing in life they can go through, & as to myself,,it helped me go from 'Grand-Mal' to 'Petite-Mal'.) Bye the way,,,have you 'Bruce' , or anyone else in the 'Group',,heard of or been on 'Keppra' yet,,,,,Well , if you haven't , it's Honestly 'Awesome' stuff. They say, that you take it with your 'other meds' up to 4-mths. During that time, your 'Seizures' Reduce anywhere from '20%-40%'...And when you're on "Keppra" Alone,,,it Reduces 'Seizures' from '50%-75%' ,,,Pretty neat eh? Hopefully it will work on ALOT of other's out there too,,,!! Anyone can check the 'website' @,,,,www.keppra.com/or just ,,www.keppra.
Hopefully "Someone" out there won't mind being a 'True-Friend' (Pen-Pal) with me,,at times, I can Really use one,,,,Thanx, & all of you's take-care,,
Your Friend Tracey