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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: Seizures while sleeping~

Submitted by pongosmommy on Thu, 2005-02-17 - 17:14
Hi All,Here I thought I was perfectly fine and controlled by my meds...Seizure free...Right? WRONG! I guess I am still having them in my sleep. My poor Hubby and Dog are showing the signs of them.

Re: RE: RE: Seizures while sleeping~

Submitted by Sincereply on Fri, 2008-04-18 - 07:44

Same here, only no memory of anything happening. I do talk in my sleep and it wakes me up. But, migraines in the morning are common. Dilantin400mgs. at night does seem to keep it in check during the day.

You are definitely not alone on this one.

 

Same here, only no memory of anything happening. I do talk in my sleep and it wakes me up. But, migraines in the morning are common. Dilantin400mgs. at night does seem to keep it in check during the day.

You are definitely not alone on this one.

 

RE: Seizures while sleeping~

Submitted by ednagarcia on Fri, 2005-02-18 - 16:59

Hi Everyone,

My name is Edna.  I am new to this site.  My son Miguel, he's 7 1/2 years old, started having seizures when he was about 6 1/2 years old.  He has tonic clonic seizures also when he is sleeping.  Some have been when he first goes to sleep (between 5 and 30 minutes into sleeping) and some early in the morning.  He's now on Lamictal 150 mg in the morning and 200 mg at night and Zonegran 250 mg at night.  He was also on Carbatrol for a while but the neuro thought it wasn't controlling his seizures.  He used to have one seizure a month (every 4 to 6 weeks when he was on the Cabratrol) now he's having them every two weeks.  This is really puzzling me because the neuro thought he was improving.  She told me that his last EEG showed that he was improving.  Doesn't really make sense to me, so I'm looking into a new neurologist because something doesn't seem right.  I'm sorry I'm straying from the subject.  When my son has seizures when he sleeps or close to sleeping, he could feel them, I guess he has an aura.  Most of them start in his right hand and then his whole body goes.  I try to let him stop on his own but I usually end up giving him the Diastat.  Then he comes out of it crying and screaming because he gets so scared.  The neuro says he will probably outgrow them and I'm hoping he will.  It's a very scary thing to see, but everyone tells me that he's not suffering.  I'm so glad that he's never had them during the day, like in school. 

Thanks for letting me vent a little.

Take care.

Edna

 

   

Hi Everyone,

My name is Edna.  I am new to this site.  My son Miguel, he's 7 1/2 years old, started having seizures when he was about 6 1/2 years old.  He has tonic clonic seizures also when he is sleeping.  Some have been when he first goes to sleep (between 5 and 30 minutes into sleeping) and some early in the morning.  He's now on Lamictal 150 mg in the morning and 200 mg at night and Zonegran 250 mg at night.  He was also on Carbatrol for a while but the neuro thought it wasn't controlling his seizures.  He used to have one seizure a month (every 4 to 6 weeks when he was on the Cabratrol) now he's having them every two weeks.  This is really puzzling me because the neuro thought he was improving.  She told me that his last EEG showed that he was improving.  Doesn't really make sense to me, so I'm looking into a new neurologist because something doesn't seem right.  I'm sorry I'm straying from the subject.  When my son has seizures when he sleeps or close to sleeping, he could feel them, I guess he has an aura.  Most of them start in his right hand and then his whole body goes.  I try to let him stop on his own but I usually end up giving him the Diastat.  Then he comes out of it crying and screaming because he gets so scared.  The neuro says he will probably outgrow them and I'm hoping he will.  It's a very scary thing to see, but everyone tells me that he's not suffering.  I'm so glad that he's never had them during the day, like in school. 

Thanks for letting me vent a little.

Take care.

Edna

 

   

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