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Please I have another question...

Wed, 02/09/2005 - 10:40
Thank you so much for the help and support you offered when I introduced myself and my son last weekend (I am Karen, mom of 4, dd (10)absence epilepsy, ds(4) currently undx seizure)..we are still waiting for our referral to a neuro but my son had an odd "event" this afternoon that i hope you might help me identify as being seizure activity or just "something else"....it stated at around 3pm (he was spending time in his room reading playing) and i went up to find him asleep, unusual but not worrisome but when i tried to wake him he was very "slow" to wake, had difficulty standing and coming down stairs but after about 20minutes he seemed much better and went downstairs to play with friends who were over....about 40minutes later he came upstairs and seemed to trip up the last stair and landed prettyhard ...when i looked at him he looked  a little dazed ...I picked him up and brought him to the couch when he started to fling his right arm up and down to his face and bring his left arm to his right elbow...he did it about 10 times and i assumed he was trying to let me know that his elbow hurt...he wasn't saying much but still with me....then he suddenly cried out as if in severe pain, hunched over his belly and then violently rocked from side to side ..... he would then stop and bring his hands to his head, cross them and close his eyes...then he would do it again crying out first....his eyes seemed to dart around as he rocked and he looked very distressed and in pain....I must admit i was really concerned.....he then seemed to calm down and fell asleep for about an hour....when he started to wake he again was slow to wake and complained of pain in his head and belly (he has severe GI issues)...now he had a grand mal before christmas but this was very different in the way he moved this afternoon...today was rhythmic but not necessarily symetrical...at points it seemed like he might hear me whereas before he definitely did not...after the fact he didn't seem to remember what happened but being 4 it is hard to judge his recollection ability....after he had "woken" up it was like nothing had happened and he was perfectly fine the rest of the evening......it seems seizure like but not what i understand to be a seizure...I do not want to "create" a seizure when it could be a pain response (to his GI issues) which does happen for him but not "this" way in the past....I feel like i am looking for seizure"activity" to justify the EEG results (several generalized spike and waves during drowsey period) which i do not want to do....can anyone tell me what this may or could have been...i do remember that you are not all drs but your experience seems so vast and full...i hope that you might be able to offer me some advice and guidance...of course this all happened after our paeds office had closed and on a Friday so i haven't contacted anyone...thank you all so much and please if i am asking too much let me know...

Karen

Comments

RE: RE: RE: Please I have another question...

Submitted by AmyQ on Wed, 2005-02-09 - 10:40
Is there any other neuro that you can go to? Two months seems way too long to wait. If not - you should call them once a week and ask if there have been any cancellations. Basically, get to know the receptionist/admin. Be really nice to her/him. They're the ones who will get you in when you're in a pinch. That has worked for us. Good luck,AmyQ

RE: Please I have another question...

Submitted by benosmom on Wed, 2005-02-09 - 07:41
Hi Karen,My son is newly diagnosed but I do know that after a seizure, kids are very tired and typically fall asleep..then may be slow to rise and be dazed. The arm jerking was probably part of a seizure as well. Seizures can be very outright and also somewhat subtle. Once you get settled with child neuro, they will tell you about it. There is a book by John M. Freeman called Seizures and Epilepsy in Childhood A Guide. I would suggest you purchasing it as I look at it often and it has a lot of information.jGood luck to you. I know how hard this is. A lot of childhood seizures are situations that kids grow out of in their teens. I pray for you and me both that our situations will be like that.Diane

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