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Please I have another question...

Wed, 02/09/2005 - 10:40
Thank you so much for the help and support you offered when I introduced myself and my son last weekend (I am Karen, mom of 4, dd (10)absence epilepsy, ds(4) currently undx seizure)..we are still waiting for our referral to a neuro but my son had an odd "event" this afternoon that i hope you might help me identify as being seizure activity or just "something else"....it stated at around 3pm (he was spending time in his room reading playing) and i went up to find him asleep, unusual but not worrisome but when i tried to wake him he was very "slow" to wake, had difficulty standing and coming down stairs but after about 20minutes he seemed much better and went downstairs to play with friends who were over....about 40minutes later he came upstairs and seemed to trip up the last stair and landed prettyhard ...when i looked at him he looked  a little dazed ...I picked him up and brought him to the couch when he started to fling his right arm up and down to his face and bring his left arm to his right elbow...he did it about 10 times and i assumed he was trying to let me know that his elbow hurt...he wasn't saying much but still with me....then he suddenly cried out as if in severe pain, hunched over his belly and then violently rocked from side to side ..... he would then stop and bring his hands to his head, cross them and close his eyes...then he would do it again crying out first....his eyes seemed to dart around as he rocked and he looked very distressed and in pain....I must admit i was really concerned.....he then seemed to calm down and fell asleep for about an hour....when he started to wake he again was slow to wake and complained of pain in his head and belly (he has severe GI issues)...now he had a grand mal before christmas but this was very different in the way he moved this afternoon...today was rhythmic but not necessarily symetrical...at points it seemed like he might hear me whereas before he definitely did not...after the fact he didn't seem to remember what happened but being 4 it is hard to judge his recollection ability....after he had "woken" up it was like nothing had happened and he was perfectly fine the rest of the evening......it seems seizure like but not what i understand to be a seizure...I do not want to "create" a seizure when it could be a pain response (to his GI issues) which does happen for him but not "this" way in the past....I feel like i am looking for seizure"activity" to justify the EEG results (several generalized spike and waves during drowsey period) which i do not want to do....can anyone tell me what this may or could have been...i do remember that you are not all drs but your experience seems so vast and full...i hope that you might be able to offer me some advice and guidance...of course this all happened after our paeds office had closed and on a Friday so i haven't contacted anyone...thank you all so much and please if i am asking too much let me know...

Karen

Comments

RE: Please I have another question...

Submitted by feeve69 on Tue, 2005-02-08 - 12:56
I hope things are agetting better. I would say that those episodes were probably siezures my 3 yo son has gran mal sz but his very in all different ways iI don't think thatit could be caused from  gi problems. request to see the neuro asap you need to get this controled. good luck

RE: Please I have another question...

Submitted by Stars007 on Tue, 2005-02-08 - 21:30

Hi, my daughter who is 18 years old had odd "movements".  I finally borrowed a video camera and was able to show this to the myriad of specialists.  It would be a good idea to bump up the appointment.  My daughter has developmental disabilities, and it does complicate things.

Hope this helps!  Mary

Hi, my daughter who is 18 years old had odd "movements".  I finally borrowed a video camera and was able to show this to the myriad of specialists.  It would be a good idea to bump up the appointment.  My daughter has developmental disabilities, and it does complicate things.

Hope this helps!  Mary

RE: RE: Please I have another question...

Submitted by kaaye on Tue, 2005-02-08 - 22:25

Thank you all again for your wonderful support and information....unfortunately he can't get in to see the neuro until Apr 28 but i have him on the cancelation list and the paed has said to bring him straight in to see him if anything further happens....thankfully nothing has. So we wait as usual...thank you all again for your great help!!

Karen

Thank you all again for your wonderful support and information....unfortunately he can't get in to see the neuro until Apr 28 but i have him on the cancelation list and the paed has said to bring him straight in to see him if anything further happens....thankfully nothing has. So we wait as usual...thank you all again for your great help!!

Karen

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