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Please I have another question...

Wed, 02/09/2005 - 10:40
Thank you so much for the help and support you offered when I introduced myself and my son last weekend (I am Karen, mom of 4, dd (10)absence epilepsy, ds(4) currently undx seizure)..we are still waiting for our referral to a neuro but my son had an odd "event" this afternoon that i hope you might help me identify as being seizure activity or just "something else"....it stated at around 3pm (he was spending time in his room reading playing) and i went up to find him asleep, unusual but not worrisome but when i tried to wake him he was very "slow" to wake, had difficulty standing and coming down stairs but after about 20minutes he seemed much better and went downstairs to play with friends who were over....about 40minutes later he came upstairs and seemed to trip up the last stair and landed prettyhard ...when i looked at him he looked  a little dazed ...I picked him up and brought him to the couch when he started to fling his right arm up and down to his face and bring his left arm to his right elbow...he did it about 10 times and i assumed he was trying to let me know that his elbow hurt...he wasn't saying much but still with me....then he suddenly cried out as if in severe pain, hunched over his belly and then violently rocked from side to side ..... he would then stop and bring his hands to his head, cross them and close his eyes...then he would do it again crying out first....his eyes seemed to dart around as he rocked and he looked very distressed and in pain....I must admit i was really concerned.....he then seemed to calm down and fell asleep for about an hour....when he started to wake he again was slow to wake and complained of pain in his head and belly (he has severe GI issues)...now he had a grand mal before christmas but this was very different in the way he moved this afternoon...today was rhythmic but not necessarily symetrical...at points it seemed like he might hear me whereas before he definitely did not...after the fact he didn't seem to remember what happened but being 4 it is hard to judge his recollection ability....after he had "woken" up it was like nothing had happened and he was perfectly fine the rest of the evening......it seems seizure like but not what i understand to be a seizure...I do not want to "create" a seizure when it could be a pain response (to his GI issues) which does happen for him but not "this" way in the past....I feel like i am looking for seizure"activity" to justify the EEG results (several generalized spike and waves during drowsey period) which i do not want to do....can anyone tell me what this may or could have been...i do remember that you are not all drs but your experience seems so vast and full...i hope that you might be able to offer me some advice and guidance...of course this all happened after our paeds office had closed and on a Friday so i haven't contacted anyone...thank you all so much and please if i am asking too much let me know...

Karen

Comments

RE: RE: Please I have another question...

Submitted by pongosmommy on Sat, 2005-01-29 - 22:44
Hi Karen,I am glad you are going to comtact the Pediatrician...I don't know about where you live...but I know my Paed has his Cell on him at all times...except when he forgets it in his car, or forgets to check the battery. LOL Sorry, I got off track...you see my Paed is my Husbands best friend. I even dragged him (literally) into the Pharmacy with me one time. My reason for saying this is ... If it happens again before your Doc appt, then maybe you can get into an Urgent Care facility. The doctors say that being able to actually see what is happening does hep with diagnosing. I don't know why I felt compelled to answer...I still battle with getting my Doc appts even though my best friend and my husbands are both MDs. Stupid HMO's.Dayna

RE: RE: RE: Please I have another question...

Submitted by kaaye on Sun, 2005-01-30 - 09:20

We live in Ontario Cda so our biggest problem is lack of specialists and waiting times.  If the paed wants to see him I know he will get an appt tomorrow if necessary (he is the best but there is no answering service that i can contact to get in touch with him beyond office hours) but we have to "wait" to see a ped neuro but i am hoping it will be a quicker referral bc the referral was to my DD neuro and i have already warned them that a referral was coming through for Ethan....but time will tell.  We had to wait 4 mths for Kiana's referral but thankfully her ped was able to start treatment prior to her visit (with over the phone consult) but her dx was a little more clear cut.  But I will let you know what happens....thanks for the advice

Karen

We live in Ontario Cda so our biggest problem is lack of specialists and waiting times.  If the paed wants to see him I know he will get an appt tomorrow if necessary (he is the best but there is no answering service that i can contact to get in touch with him beyond office hours) but we have to "wait" to see a ped neuro but i am hoping it will be a quicker referral bc the referral was to my DD neuro and i have already warned them that a referral was coming through for Ethan....but time will tell.  We had to wait 4 mths for Kiana's referral but thankfully her ped was able to start treatment prior to her visit (with over the phone consult) but her dx was a little more clear cut.  But I will let you know what happens....thanks for the advice

Karen

RE: Please I have another question...

Submitted by mlbspnc on Mon, 2005-01-31 - 13:59
Hi:My only thought is that he mioght have had a grand mal seizure while up stairs, amd that was why it was so hard to wake him. My son after a gtrand mal siezure sleeps for several hours. CALL the nurse at the neuro and beg for them to bump you up, if no success try your primary, if no help, go to Children's emergency room, there are Neuro Dr's on call. Just a suggestion. It's hard to know what to do, and it's even harder to do nothing. I know, my son is 3 and I have no idea what to do as it's hard to understand seizures.Best to you and your son!

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