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Please I have another question...

Wed, 02/09/2005 - 10:40
Thank you so much for the help and support you offered when I introduced myself and my son last weekend (I am Karen, mom of 4, dd (10)absence epilepsy, ds(4) currently undx seizure)..we are still waiting for our referral to a neuro but my son had an odd "event" this afternoon that i hope you might help me identify as being seizure activity or just "something else"....it stated at around 3pm (he was spending time in his room reading playing) and i went up to find him asleep, unusual but not worrisome but when i tried to wake him he was very "slow" to wake, had difficulty standing and coming down stairs but after about 20minutes he seemed much better and went downstairs to play with friends who were over....about 40minutes later he came upstairs and seemed to trip up the last stair and landed prettyhard ...when i looked at him he looked  a little dazed ...I picked him up and brought him to the couch when he started to fling his right arm up and down to his face and bring his left arm to his right elbow...he did it about 10 times and i assumed he was trying to let me know that his elbow hurt...he wasn't saying much but still with me....then he suddenly cried out as if in severe pain, hunched over his belly and then violently rocked from side to side ..... he would then stop and bring his hands to his head, cross them and close his eyes...then he would do it again crying out first....his eyes seemed to dart around as he rocked and he looked very distressed and in pain....I must admit i was really concerned.....he then seemed to calm down and fell asleep for about an hour....when he started to wake he again was slow to wake and complained of pain in his head and belly (he has severe GI issues)...now he had a grand mal before christmas but this was very different in the way he moved this afternoon...today was rhythmic but not necessarily symetrical...at points it seemed like he might hear me whereas before he definitely did not...after the fact he didn't seem to remember what happened but being 4 it is hard to judge his recollection ability....after he had "woken" up it was like nothing had happened and he was perfectly fine the rest of the evening......it seems seizure like but not what i understand to be a seizure...I do not want to "create" a seizure when it could be a pain response (to his GI issues) which does happen for him but not "this" way in the past....I feel like i am looking for seizure"activity" to justify the EEG results (several generalized spike and waves during drowsey period) which i do not want to do....can anyone tell me what this may or could have been...i do remember that you are not all drs but your experience seems so vast and full...i hope that you might be able to offer me some advice and guidance...of course this all happened after our paeds office had closed and on a Friday so i haven't contacted anyone...thank you all so much and please if i am asking too much let me know...

Karen

Comments

RE: Please I have another question...

Submitted by wendymartinez on Sat, 2005-01-29 - 13:20

Karen,

I agree with the other post, that you should contact your pediatrician and see if the appointment to the Neuro can be bumped up.  I keep reading how hard it is to see a Neurologist with some people.  When my son started having seizures, I went to see his Pediatrician and he was in the process of setting us up with an EEG, then his seizures went from 3 to 8 in one afternoon, I went to urgent care (not the hospital, just urgent care at my medical clinic) and they sent me immediatly to the Pediatric Neurologist that day.   After seeing the Neuro, he had us scheduled for a Stat MRI the next day and a stat sleep deprived EEG the day after. 

Now I don't know if my situation was just the grace of God being in the right place at the right time, or if it was because it was so evident that he was having seizures on that particular day that the Urgent Care Pediatrician felt we should see the Neurologist immediatly.  In an ugent situation where they see your child is disoriented and they actually witness them not acting quite right, They might see the urgency we as moms see.

I think what you described sounds like some kind of seizure activity and I would definatly contact the Pediatrician immediatly.  If something like this happens again, I would rush to urgent care, so they can see what you see.  You know what I mean?  Sometimes, it feels almost like the doctors think we are overreacting, but when they actually see it, things might get moving quicker.  Also, I was calling everyday to the Pediatrician to see the status of the EEG to keep them on their toes.

Good Luck,

Wendy

Karen,

I agree with the other post, that you should contact your pediatrician and see if the appointment to the Neuro can be bumped up.  I keep reading how hard it is to see a Neurologist with some people.  When my son started having seizures, I went to see his Pediatrician and he was in the process of setting us up with an EEG, then his seizures went from 3 to 8 in one afternoon, I went to urgent care (not the hospital, just urgent care at my medical clinic) and they sent me immediatly to the Pediatric Neurologist that day.   After seeing the Neuro, he had us scheduled for a Stat MRI the next day and a stat sleep deprived EEG the day after. 

Now I don't know if my situation was just the grace of God being in the right place at the right time, or if it was because it was so evident that he was having seizures on that particular day that the Urgent Care Pediatrician felt we should see the Neurologist immediatly.  In an ugent situation where they see your child is disoriented and they actually witness them not acting quite right, They might see the urgency we as moms see.

I think what you described sounds like some kind of seizure activity and I would definatly contact the Pediatrician immediatly.  If something like this happens again, I would rush to urgent care, so they can see what you see.  You know what I mean?  Sometimes, it feels almost like the doctors think we are overreacting, but when they actually see it, things might get moving quicker.  Also, I was calling everyday to the Pediatrician to see the status of the EEG to keep them on their toes.

Good Luck,

Wendy

RE: RE: Please I have another question...

Submitted by wendymartinez on Sat, 2005-01-29 - 13:24
I forgot to add, that when Zach had his MRI, it showed he had a sinusitus, which was probably causing the sudden increase in seizure activity.  I just mention this because I had no idea he was even sick, there were no signs, he had actually just gotten over a cold and I thought it was gone.  If I hadn't done the MRI, I don't think we would have caught the sinusitus and I'm not sure if it just goes away on its own. 

RE: Please I have another question...

Submitted by kaaye on Sat, 2005-01-29 - 22:15

Thank you all very much...I really appreciate the support and information.  I will call his paed on Monday and let him know what happened... Ethan has been fine today

I will update when I can...thank you

Karen

Thank you all very much...I really appreciate the support and information.  I will call his paed on Monday and let him know what happened... Ethan has been fine today

I will update when I can...thank you

Karen

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