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I have seizures and they affect my speech

Tue, 01/25/2005 - 16:10

Hi,

 I am 33 years old and I have been having seizures now for about 3 years. It happened shortly after a toxic reaction to topomax. I was in the hospital for a week then and every since then I have had minor seizures off and on. When I do it affects my speech and I stutter bably and lose my thoughts and words. I feel so weird when this happens. I don't know anyone else like this. I have bipolar and dissociative identity disorder (multiple personality). I heard people with these illnesses can have seizures, I just don't know what type. I hate being like this. It makes me more depressed. I am getting so frustrated. I have two young boys and they don't understand why all of a sudden I loose my words or thoughts or I sound funny as they call it. My oldest one is 7 and he does ok. He helps me with my words and he answers the phone for me when I am having trouble talking. I just don't know what to do. My therapist wants to know more information about why it affects my speech but I have nothing to offer because I have been struggling to find information myself. Does anyone have suggestions?

Kym

Comments

RE: RE: RE: RE: RE: I have seizures and they affect my speech

Submitted by pongosmommy on Sun, 2005-01-23 - 16:29
Hi I am also having trouble with my speach,I started having my seizures in October. My family called them episodes before this last week because I wasn't diagnosed as having seizures until then. But my darling 12 year old daughter can always tell when ever I am going into a partial sz because of my speach. I start speaking slower. It has happened so many times in a store that she can just tell by looking at me... and she just grabs hold of my hand and heads to somewhere to sit quietly. Because she doesn't know if it is going to be just an aura or if we are going to go into a full t/c sz. We both(as well as my husband) have our cell phones on us at all times. She just says my Mom is not feeling well and needs some privacy please to any rude people...and when I am unable to speak correctly and people look at me? She glares at them until they look away. Lets just say with her Red hair and Green eyes most people give up the stare before she does.I am still looking for the answers as to what is causing my seizures. I was just hospitalized for 2 days at UCLA- Not quite sure what was happening there. I was sitting there in a wheelchair(due to chance of sz) waiting to be admitted for some tests, next thing I know I am naked on a table in the xray room with some nurse named Romeo putting a gown on me. I couldn't speak for about 5-10 more minutes. A little later another nurse came up and asked me "aren't you the one we just brought back here "status"?" , I was was sitting there as if nothing had ever happened. she was amazed. They did a portable EEG in my Hospital room and it came back normal as did the CT scan. Now they want me to talk to a Psychiatrist.Dayna

RE: RE: RE: RE: RE: RE: I have seizures and they affect my speec

Submitted by pongosmommy on Sun, 2005-01-23 - 16:33
The doctors also took me off of my medications Effexor and are tapering me off of the Topamax. Pretty soon the only Med I will be taking is my Blood Pressure med. And My Head feels like it is going to explode.

RE: RE: RE: RE: RE: RE: RE: I have seizures and they affect my s

Submitted by kymlovejoy on Mon, 2005-01-24 - 07:12

Hi

When I was on topomax I had my first seizure and I was hospitalized for a week and they did numerous test and finally said that the topomax had gotten toxic in my system because it wasn't being filtered through my liver right. I was soon taken off depekote because my liver functions declined so drastically. I am now on trileptal,kolonipin, gabitril and diamox for my seizures. I don't know what is going on but since the trileptal was added a week ago my head feels like it is about to explode. These headaches are so bad and the seizures are happening almost every night. I am so depressed I just want to go away and hide. I hate life right now, I feel like giving up. My speech is horrible. I talk so slow and it is stuttery. I don't know what to do. The doctor says it takes about two to three weeks before it will get in my system good. I don't know if I can wait that long.

Kym

Hi

When I was on topomax I had my first seizure and I was hospitalized for a week and they did numerous test and finally said that the topomax had gotten toxic in my system because it wasn't being filtered through my liver right. I was soon taken off depekote because my liver functions declined so drastically. I am now on trileptal,kolonipin, gabitril and diamox for my seizures. I don't know what is going on but since the trileptal was added a week ago my head feels like it is about to explode. These headaches are so bad and the seizures are happening almost every night. I am so depressed I just want to go away and hide. I hate life right now, I feel like giving up. My speech is horrible. I talk so slow and it is stuttery. I don't know what to do. The doctor says it takes about two to three weeks before it will get in my system good. I don't know if I can wait that long.

Kym

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