Seizures while sleeping~

RE: RE: RE: Seizures while sleeping~

Submitted by SMBF on Sat, 2005-01-22 - 13:04

My son, now 19, began having seizures in his sleep at age 9, with no apparent illness or cause. Looking back on his behavior I remember he was having trouble in school some ADHD like difficulty, hard time fitting in with peers but healthy. (The disturbances in the brain effects behavior I now know.) The diagnosis he received was Benign Rolandic Seizure Disorder, and was started on Tegretol. His Dr. could not find any thing abnormal on his MRI, and his EEG had very slight abnormality. He was told he would out grow his seizures. He continued having mores seizures; Tonic – Clonic in his sleep, and I noticed other abnormalities in his behavior, talking odd, shaking one arm, blanking out, just as he awoke. His Dr. discounted this as sleepiness. Well to make a long story short he continued to have more tonic clonic seizures, more odd behavior unable to be successful in school due to sleepiness and stomach problems. Last year his tonic clonic seizures began coming in sets of three. I looked for another DR. I took him to Stanford Epilepsy Clinic, where after a 5 day VEEG, where he was hooked up to an EEG for 5 days while being watched by a video camera, he was diagnosed with nocturnal frontal lobe epilepsy. he continues on Tegretol 1800 mg with some Klonopin. He still has seizures; those odd behaviors the other Dr. dismissed are complex partial seizures only in his sleep or upon awakening. I continue to seek a correct treatment for him. Benign Rolandic Epilepsy BRE is a type of epilepsy where seizures occurs mostly at night with little evident abnormality in either EEG or MRI, and is outgrown. Your son might have that type, mine did not. Good Luck Sue