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Administration of Diastat in public school

Sun, 01/02/2005 - 00:06

My family lives in Santa Clara County, Ca. and our 5 year old son needs Diastat given to him immediately if he has a seizure. We've been told by our School District only an RN can give it. The problem is we only have an RN on site approximately 4 hours per week. We believe our son is entitled to  FAPE in the least restrictive environment. Any suggestions on how to fight this?? What laws support our argument that this is a "related service" Thank you!

Comments

RE: Administration of Diastat in public school

Submitted by jazzygirl on Sun, 2005-01-02 - 00:06

Our daughter, who is 9, also needs diastat at school in an emergency and the nurse is there only 2 days a week.  We have it set up so a paramedic will give the diastat.  We do not want school personnel administering this medication nor does her neuro.  We feel it changes the relationship between our daughter and the staff there.  Our daughter is self conscience having someone seeing that part of her body unless it is a medical person or her parents.  We do have a very quick response time for a medic unit so it works for us.  However, the school nurse did say that if we needed the medication to be administered immediately and we could not wait for the medic unit the school district would be required to hire a nurse that would be with our daughter at all times.  This would include her bus ride to and from school, field trips as well as regular school hours.  I'm sure every state law is different.  It's worth checking with the school district or state to determine what your child's entitlement is. 

Jazzygirl's Mom

Our daughter, who is 9, also needs diastat at school in an emergency and the nurse is there only 2 days a week.  We have it set up so a paramedic will give the diastat.  We do not want school personnel administering this medication nor does her neuro.  We feel it changes the relationship between our daughter and the staff there.  Our daughter is self conscience having someone seeing that part of her body unless it is a medical person or her parents.  We do have a very quick response time for a medic unit so it works for us.  However, the school nurse did say that if we needed the medication to be administered immediately and we could not wait for the medic unit the school district would be required to hire a nurse that would be with our daughter at all times.  This would include her bus ride to and from school, field trips as well as regular school hours.  I'm sure every state law is different.  It's worth checking with the school district or state to determine what your child's entitlement is. 

Jazzygirl's Mom

Re: RE: Administration of Diastat in public school

Submitted by karenowen on Fri, 2006-05-19 - 21:27
Hi Jazzygirl's Mom and all that have been involved in this discussion. My name is Karen and I have a 7 year old daughter who just had a tumor resection in November. I am currently working with her school on a safety plan and finding that it is a very touchy subject when it comes to diastat, BUT I found this article yesterday which I intend to take with me to the IEP meeting next week, I am also working with a PAVE representative to help me find out where the truth lies in the diastat administration guidelines for schools, I will repost if I get any more information there... but in the meantime, you might want to look at this link http://www.epilepsyfoundation.org/advocacy/care/treatmentsinschool.cfm Karen

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