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seizures at night

Mon, 01/03/2005 - 18:50

I have a question to ask anyone out there.  I have complex partial seizures.  I do not know what happened, but this morning I woke up and my back was killing me.  I would like to know if it is possible if someone like myself could have a seizure at night, and hurt their back by doing something to it?  Reason I ask this is because I did nothing that I can think of that would have hurt my back this much

 

Comments

RE: RE: RE: RE: seizures at night

Submitted by stressedparent on Tue, 2004-12-28 - 23:48

HELLO AGAIN,AS I SAID EARLIER,MY SON HAS SEIZURES DURING HIS SLEEP.WHAT I WANT KNOW IS,ARE THERE ANY OTHER PARENTS OF CHILDREN WITH THE SAME PROBLEM OR ADULTS THAT HAVE SEIZURES DURING THE DAY AND IF SO,WHAT DO THE SEIZURES LOOK LIKE? THANKS

HELLO AGAIN,AS I SAID EARLIER,MY SON HAS SEIZURES DURING HIS SLEEP.WHAT I WANT KNOW IS,ARE THERE ANY OTHER PARENTS OF CHILDREN WITH THE SAME PROBLEM OR ADULTS THAT HAVE SEIZURES DURING THE DAY AND IF SO,WHAT DO THE SEIZURES LOOK LIKE? THANKS

RE: RE: RE: RE: RE: seizures at night

Submitted by stella on Thu, 2004-12-30 - 22:08
I have had seizures since I was fourteen.  Seizures are a scary thing for loved ones to have to watch, but trust in the fact that they are more scary and painful for you to have to watch than they are for those who have them.  ( Not that they don't freak me out too or anything.)  My mother had a hard time watching me have them as well, any parent would.  My seizures are usually right before bed, while I sleep I have mild ones, or right when I get out of bed.  The ones durring my waking hours are like what you described with your son.  There is a lot of jerking, scary noises, foaming at the mouth and biting of the tounge.  When the worst is over I more or less pass out for a minute or two.  Waking up is the worst part for me personally.  I am pretty much delerious and tend to scream, cry, spit, and run.  If you are standing in my way it's not a pretty picture.  I don't know if this is how they go for everyone.  If your son is only having them durring sleep that's a good thing.  He's safe, not in danger of hurting himself etc.  I wish you all the luck in dealing with this, my mother still calls every day to see that I took my pills and see whethter or not I've had one on that particular day.  Keep in mind, Im twenty five now and married.  A parents love and concern will always be there, but over time it will get easier for you to handle as it did for my mother.  Best wishes and good luck with the new year.

RE: RE: RE: RE: RE: RE: seizures at night

Submitted by Gretchen on Thu, 2004-12-30 - 22:32
When I first got epilepsy I read someone say they only had seizures in their sleep and I thought - lucky ducky - until I started having seizures in MY sleep. Having said that.....I have what I call "nocturnal seizures". Whether it is during the awake or sleeping hours I just about get used to my seizure patterns and they change. Every single night of my now world right before I'm about to drop off to sleep I'm treated to about 30 minutes of jerks. That I'm used to now and that is the one seizure activity that has remained stable for me throughout this journey. Currently I'm having CPs but only apparently nocturnally. This is difficult to explain but I'll try. When I have a CP, and I'm coming out of it? I start having awareness of thoughts, actions and I'm "stuck" in it for a short while and often I'll be doing something, talking, my latest is wondering around the house calling for my mother, who is deceased. I remembered yesterday I woke up sobbing my lights a few mornings before but couldn't remember what in the world upset me that much. I did some investigating called asking my husband some questions and apparently once again I was coming out of a CP. BUT I do get injured during nocturnals of any sort. If I'm walking around in a CP the dangers are obvious. Here is what more typically happens to me though, frequently. Whatever kind of seizure it is I might have had, and often I don't know and suspect I had a Drop since that's been recorded freqently on VEEGs, at the end of the seizure my bladder sphincter muscles relax as it does in many people, I become slowly aware, with horror, I'm wetting the bed and try to rush to the bathroom but my legs aren't strong enough yet from the seizure and often I've gotten thrown sideways into a wall, fallen countless times and crawled to the bathroom, gone into a walk in closet (taking a left, not a right in confusion after we moved and our bathroom location reversed) and got stabed by a hanger and for the first time I shall reveal that one very special time I came karooming up off the bed too fast apparently, lost my balance and instead of banging my shoudler into the wall? It was summer, I was next to the window and you got it - I dumped myself straight out the first floor bedroom window. I didn't make it all the way out. We still laugh until tears run at my husband's sleepy impression awakening to the clatter to see his wife's legs - hanging in the windows! Yes that really did hurt me but it is a funny memory.Epilepsy is not fun to have. I despise it but some of my funniest moments have happened because of this syndrome. I think it interesting though you brought up injuries because it is my big personal beef. If I have to have seizures isn't that enough? I'm injured constantly and I mean I've had some doozies. Good grief I walk around bruised, stitched, missing a front tooth, broken toes and fingers, casted, splinted, in pain some where all the time and I never hear anyone else say much about the injury potential. Maybe I'm just whiney? I also wear a helmet much of the time.We did put a special sensor pad on my side of the bed for a short period of time that was set to alarm if I left the bed. The alarm was SO loud and alarming I secondized into a grand mal. I think it's a good idea, if it would have had a different alarm. We do have the same sensor pad on my 4 year old's bed although she has been put back into a crib for safety. My son somehow brought the alarm mechanism's wiring into their bedroom so that loud alarm wouldn't scare her.

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