Seizures and Restraints

Back in the 70's (when we were still working on a diagnosis and getting my seizures under control) I occasionally had seizures at work.  I shared an office  with others but they were out in the field more then me so I was most often alone.  I usually came out of a seizure and found myself on the floor or something.  Nobody was called and probably nobody but me ever knew.....When siezures became more frequent and more intense others did begin to notice.  After the second ambulance call the local EMTs knew who I was and what the problem was.  They treated me appropriately.  I then informed all of my co-workers of my problem, what we were doing to get it under control and what they should do if I had another seizure.  I also asked them to call my husband before they called an ambulance.  Provided with some information they were less alarmed and waited a few minutes before making any 911 calls.  By that time everything was usually over and there was no need for an ambulance.  However one day one of the office girls upstairs saw me sitting on the front steps of the building (waiting for my husband to pick me up) and witnessed me go in to a seizure.  She called 911 without asking anyone.  The ambulance arrived at the same time as my husband.  They asked him if he thought I needed to be taken in.  He said no since he could see that the seizure was passing by then.  He had to sign a paper for them refusing the ambulance (a liabilty release).  There was no charge because we did not call for the service.Don't get pissed at the folks who are trying to help you! They are doing the best they know how with the information that they have....and they may not have all the information they need for treating seizures..........We can all can become advocates for each other by using our heads and providing these people (EMT, Fire and LEO) with the information that they need to recongnise and properly deal with people who have had or who are having an epileptic seizure. Go to the local Emergency Service centers and introduce yourself so they know who you are.  Ask to speak at one of their monthly safety meetings and then get information prepared for handout to their staff (Local Epilepsy Center should have plenty).  Give them accurate facts and information.  Let them ask questions and provide ideas for solutions to problems experienced by us when we are treated by them.  Don't forget family and friends either.  They are the ones who feel the most helpless and scared because of their closeness to us.  Teach them and give them instructions.  You can even have the information typed up for them to follow - or for them to provide to emergency personel if they are called.  Carry a copy of those instructions with you too in an easy to find place - like by your ID.It's easier to head it off at the start then to try to control an out of control moment - so get people educated and then thank them for being there to help you and for being willing to hear you and learn more.Later........................Lee