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2 year old -

Mon, 11/15/2004 - 10:10

Hi all, I'm new here and don't have diagnosis yet but am working on it. I'm just wondering if anyone has ever experienced anything similar to what is going on with my 2 year old daughter.  Mostly they have noticed it at day care but I have seen her do this a couple of times and even my cousin that has cared for her a couple of weeks ago while I was away saw it happen. 

She will just stop what she is doing, or mostly it is when she wakes up from her nap.  She stands up and starts to tremble and shake as if "she is freezing".  She seems to be alert and if you ask her a question she just keeps saying "No, No".  When I saw it happen she seem to be more looking through me than at me.  When it was over she kind of whined a little and then walked off and started to play.  It lasted 2 or 3 minutes.  At day care they said basically the same thing.  The say its becoming more and more frequent an we are sceduled for an EEG on Wed.  I just wanted to know if anyone has had anything similar.  Thanks.

 

Monique

 

Comments

RE: 2 year old -

Submitted by wendymartinez on Sat, 2004-11-13 - 11:03

Monique,

My 4 year old son doesn't shake, but about 2 months ago would just kind of stare off and I couldn't get his attention while he would do it.  At first it was 1-2 times a day (lasting only about 5 sec) and with in 3 weeks it progressed to 6-7 times a day.  Sometimes he would get extreemly tired afterwards. We saw a Nurologist and did an MRI and EEg and he was diagnosed with Epilepsy (I think its called Generalized Epilepsy, but not 100% sure of they type)  He was put on Lamicital starting at 5mg 2x daily and we are working up to 25mg 2x daily.  We are now at 15mg 2x daily and I haven't noticed a seizure in 3 days now (thank the Lord!!). 

The weeks leading up to the tests and waiting for the results were the toughest days of my life, but now that we know the diagnosis and we are making steps to take care of it, its much easier.  The other good thing is the Nurologist says that with this type of Epilepsy he has a 90% chance of outgrowing.  If he stays seizure free on Medication for 2 years, we can then try to slowly take him off medication and pray that the seizures don't come back.  Even though its not a guarantee that it will happen, it makes me feel better and when researching Epilepsy on the internet it seems like the milder types of Epilepsy have a good chance of not lasting into adulthood.  Does anyone out there have a story of a child outgrowing Epilepsy?  I would love to hear it. 

So hang in there Monique,  I think once you find out the problem it gets a little easier because you know what your dealing with and can take steps to getting your little girl better.  I'll keep your daughter and your family in my prayers.

Wendy

 

Monique,

My 4 year old son doesn't shake, but about 2 months ago would just kind of stare off and I couldn't get his attention while he would do it.  At first it was 1-2 times a day (lasting only about 5 sec) and with in 3 weeks it progressed to 6-7 times a day.  Sometimes he would get extreemly tired afterwards. We saw a Nurologist and did an MRI and EEg and he was diagnosed with Epilepsy (I think its called Generalized Epilepsy, but not 100% sure of they type)  He was put on Lamicital starting at 5mg 2x daily and we are working up to 25mg 2x daily.  We are now at 15mg 2x daily and I haven't noticed a seizure in 3 days now (thank the Lord!!). 

The weeks leading up to the tests and waiting for the results were the toughest days of my life, but now that we know the diagnosis and we are making steps to take care of it, its much easier.  The other good thing is the Nurologist says that with this type of Epilepsy he has a 90% chance of outgrowing.  If he stays seizure free on Medication for 2 years, we can then try to slowly take him off medication and pray that the seizures don't come back.  Even though its not a guarantee that it will happen, it makes me feel better and when researching Epilepsy on the internet it seems like the milder types of Epilepsy have a good chance of not lasting into adulthood.  Does anyone out there have a story of a child outgrowing Epilepsy?  I would love to hear it. 

So hang in there Monique,  I think once you find out the problem it gets a little easier because you know what your dealing with and can take steps to getting your little girl better.  I'll keep your daughter and your family in my prayers.

Wendy

 

RE: RE: 2 year old -

Submitted by nique313 on Sun, 2004-11-14 - 17:46

Thank you for the reply, I do have another question though, what happens if they run this eeg and it shows nothing, am I left wondering what is wrong with my child?  Everyone keeps asking me does eplilesy run in your family. No, it doesn't run in my husbands either.  But I know plenty of people that have it and it doesn't run in their family.

People seem greatly uneducated about it.  I just want her to have the best shot at a normal life.   As I'm sure we all do for our children.  As I stated previously I take anticonvulsants for Migraines and they have been a God send for me.  I hope your little one stays on the right track!  Thanks for you kind words! 

 

Thank you for the reply, I do have another question though, what happens if they run this eeg and it shows nothing, am I left wondering what is wrong with my child?  Everyone keeps asking me does eplilesy run in your family. No, it doesn't run in my husbands either.  But I know plenty of people that have it and it doesn't run in their family.

People seem greatly uneducated about it.  I just want her to have the best shot at a normal life.   As I'm sure we all do for our children.  As I stated previously I take anticonvulsants for Migraines and they have been a God send for me.  I hope your little one stays on the right track!  Thanks for you kind words! 

 

RE: RE: RE: 2 year old -

Submitted by wendymartinez on Mon, 2004-11-15 - 01:13

I'm still new at all this since my child was diagnosed about 1 month ago, and I've been asking around and trying to research this as well.  From what I've heard and read, a lot of EEGs do not show much, if they have a seizure during the EEG it will tell more, so for my son, it was a sleep deprived EEG (which is not much fun) and lack of sleep triggers his seizures so he had at least one during his EEG which helps with the diagnosis.  When my son saw the Nurologist the first time, he actually had a seizure in the Doctor's office as well, so the Nurologist wanted to put him on Lamicital before even seeing the results of the EEG and MRI, which alarmed me and I questioned him that maybe we should wait and see the results, but he had told me he didn't expect to see anything in the tests and he said he could tell just by watching him have these seizures that he has Epilepsy. 

From what I understand, the MRI is to check the brain and rule out other problems and the EEG shows the brain waves.  Again, this is just what I have heard and read and I don't want to give you any misinformation, but I can tell you this, after his results came back, I feel so much better just knowing what I'm dealing with. 

I have a cousin who has Epilepsy, my uncle says it was caused from lack of oxygen during birth, so there was some Nurelogical damage as well and he is 33 now, so I don't know it this is actually a fair diagnosis for him.  The reason I'm telling you this is because the doctors kept asking me if anyone in my family has Epilepsy and I would tell them about my cousin and they act like he's not close enough to consider this to be inherited and his was from lack of oxygen at birth. 

Anyway,  I hope this help you a little.  Good luck and God Bless you.

Wendy

I'm still new at all this since my child was diagnosed about 1 month ago, and I've been asking around and trying to research this as well.  From what I've heard and read, a lot of EEGs do not show much, if they have a seizure during the EEG it will tell more, so for my son, it was a sleep deprived EEG (which is not much fun) and lack of sleep triggers his seizures so he had at least one during his EEG which helps with the diagnosis.  When my son saw the Nurologist the first time, he actually had a seizure in the Doctor's office as well, so the Nurologist wanted to put him on Lamicital before even seeing the results of the EEG and MRI, which alarmed me and I questioned him that maybe we should wait and see the results, but he had told me he didn't expect to see anything in the tests and he said he could tell just by watching him have these seizures that he has Epilepsy. 

From what I understand, the MRI is to check the brain and rule out other problems and the EEG shows the brain waves.  Again, this is just what I have heard and read and I don't want to give you any misinformation, but I can tell you this, after his results came back, I feel so much better just knowing what I'm dealing with. 

I have a cousin who has Epilepsy, my uncle says it was caused from lack of oxygen during birth, so there was some Nurelogical damage as well and he is 33 now, so I don't know it this is actually a fair diagnosis for him.  The reason I'm telling you this is because the doctors kept asking me if anyone in my family has Epilepsy and I would tell them about my cousin and they act like he's not close enough to consider this to be inherited and his was from lack of oxygen at birth. 

Anyway,  I hope this help you a little.  Good luck and God Bless you.

Wendy

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