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The feelings after a seizure.

Sun, 01/23/2005 - 10:41
Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will start to have them while awake. Well the next day I just layed down. When ever I got up I got a strange feeling. Just like before I do have a seizure. So of course this is terrifying. I'm sure if anyone has felt like this that you can understand. Does this happen to anyone else??? Here is one more question. It's 2 days later and nothing tastes right. Could this be a result of biting my tounge?? Today has been a hard day. Nothing feels right. Just to hear that I am not crazy would help so much. I've stated before that I don't know anyone else who suffers seizures.Thank you.Stacey.

Comments

RE: RE: The feelings after a seizure.

Submitted by ashkazz on Sat, 2004-11-13 - 22:47
So it is true that you can have several types of seizures at once?  Sometimes i feel symptom of complex partial, but some are auras or simple partial.  some have felt like general (according to the symptoms).  sometimes i will just stop and stare THROUGH some point on the floor.  My head rolls to the left and my eyes go up and leftward.  But when i stop, it's like i stop and slow down like a machine until i come to a full stop.  other times i just stare, but i can still resume what i was doing, but really slowly, almost like a dance.  This will also explain the times i had my whole left arm totally numb (feeling nothing, not even pressure) and i couldn't explain why. My feet too.  sometimes when i am walking, i'll ust get weak all of a sudden, and i have to struggle to sit down.  but i don't know whether to report to my doctor about my "seizure" because i thought that maybe i just can't concentrate (this is just the staring, which lasts about 5 to 10 secs, i guess, because no one's timed it. )  if this is so, then either the meds don''t work (the dose i'm supposed to take my body can't handle so i have to take about half.  My bAC is at 11, which to them is ideal but then is this enough meds to control it?) or the dose is too low, and i should not come off the meds like i was scheduled to do this Christmas.  i do't know what to do.  when i stare, my vision turns double, like my eyes cross (unfocused), but not really crossed.  most of the time i feel like staring (like almost the whole day) but i only succumb whe i can't take it any more and it's too strong to fight back.  ist this a sezure, or is it just a concentration problem?   Sorry, but i am new to this.  i was diagnosed 2 yr ago but i took the diagnosis and left it at that.  i recently started developing more and more staring, so i became curious.

RE: RE: RE: The feelings after a seizure.

Submitted by LeeMc on Tue, 2004-11-16 - 14:20

For me the feelings and behavior after a seizure were usually rudeness on my part and such total exhaustion that all I wanted to do was sleep.  I didn't want anybody to touch me, try to help me or bother me - I was nasty - I'd sleep about 6 hours and then wake up groggy and feel a little like I had a hangover.  That would pass in about an hour and if everybody kind of left me alone until I came out of the mood on my own and I would be back to normal - but if they bugged me I got defensive and nasty again and it could take a couple of hours or more for me to get back to some degree of normal.

Our minds and our bodies can be under such stress and tension for that minute or so that the seizure lasts that total exhaustion results.  Our organs are also affected and therefore blood may not get to everywhere as well as it should causing some of the after-effects.  We also can get in to positions that further slow blood flow.  You know how your foot goes to sleep if you sit on it too long?  It is similar to that.

Talk to your neuro about what is happening and how you feel.  If the neuro has no answers for you then maybe you want to see an Epileptologist.  That is a neuro who has taken additional training in epilepsy and it's effects on the body, the psyc and the emotions.  There are also whole clinics with specialists from several fields working together on the issues that epilepsy cause for us.

If there is anything I have learned in the last few years it is that this doesn't end with the diagnosis or even with meds that do work.  Life changes us.  Our bodies under go changes and then our seizures begin to manifest themselves in new or different ways.  We slow down and we begin to notice things that we would have ignored or not even noticed when we were chasing kids around the house or stuggling to make ends meet.

New challenges come up like age, menopause or other illnesses.   Each day is a new day and a different day.  Talk to your doc about what is happening for you.  I wish you the best...................Lee 

For me the feelings and behavior after a seizure were usually rudeness on my part and such total exhaustion that all I wanted to do was sleep.  I didn't want anybody to touch me, try to help me or bother me - I was nasty - I'd sleep about 6 hours and then wake up groggy and feel a little like I had a hangover.  That would pass in about an hour and if everybody kind of left me alone until I came out of the mood on my own and I would be back to normal - but if they bugged me I got defensive and nasty again and it could take a couple of hours or more for me to get back to some degree of normal.

Our minds and our bodies can be under such stress and tension for that minute or so that the seizure lasts that total exhaustion results.  Our organs are also affected and therefore blood may not get to everywhere as well as it should causing some of the after-effects.  We also can get in to positions that further slow blood flow.  You know how your foot goes to sleep if you sit on it too long?  It is similar to that.

Talk to your neuro about what is happening and how you feel.  If the neuro has no answers for you then maybe you want to see an Epileptologist.  That is a neuro who has taken additional training in epilepsy and it's effects on the body, the psyc and the emotions.  There are also whole clinics with specialists from several fields working together on the issues that epilepsy cause for us.

If there is anything I have learned in the last few years it is that this doesn't end with the diagnosis or even with meds that do work.  Life changes us.  Our bodies under go changes and then our seizures begin to manifest themselves in new or different ways.  We slow down and we begin to notice things that we would have ignored or not even noticed when we were chasing kids around the house or stuggling to make ends meet.

New challenges come up like age, menopause or other illnesses.   Each day is a new day and a different day.  Talk to your doc about what is happening for you.  I wish you the best...................Lee 

RE: The feelings after a seizure.

Submitted by gregydj on Wed, 2004-10-20 - 06:17
Dear friend, I really feel for you when I saw what you wrote. Well, I would like to tell you that my girl friend just got cured last two months when we where told by our travel agent here in Egypt about some herbal treatment and we have to try it and I am happily tell you that she is a free as air now as the doctor confirmed that she is not having any trace of epilepsy again in her.If you would like to have the drugs, tell me so that I will give you the man contact email.Bye,Greg.gregrb232@yahoo.com

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