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The feelings after a seizure.

Sun, 01/23/2005 - 10:41
Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will start to have them while awake. Well the next day I just layed down. When ever I got up I got a strange feeling. Just like before I do have a seizure. So of course this is terrifying. I'm sure if anyone has felt like this that you can understand. Does this happen to anyone else??? Here is one more question. It's 2 days later and nothing tastes right. Could this be a result of biting my tounge?? Today has been a hard day. Nothing feels right. Just to hear that I am not crazy would help so much. I've stated before that I don't know anyone else who suffers seizures.Thank you.Stacey.

Comments

RE: The feelings after a seizure.

Submitted by jennie262 on Wed, 2004-03-31 - 17:01
Thanks for posting. My teenaged son had noctunal seizures. His dr would always say that he could go to work that same day but he would always be too worn out to work. He would feel totally zapped the day after a seizure. After reading posts on this site I realized that ds was not the only one who needed a 'recovery' time. I wish that doctors would give some useful information regarding recovery time after seizures. Its almost like the dr felt that since medically ds was ok - he could do his normal activities - while ds always felt he needed a day off. Thanks for posting & letting me gain a little insight into ds's world.

RE: The feelings after a seizure.

Submitted by stefvie on Fri, 2004-04-02 - 19:03
I can totally relate. I'm new to these forums. I've been diagnosed with epilepsy just this week (2 days ago).I've had a feeling that I had epilepsy for a while. Started back around Sept. '03. Woke up one morning feeling like a steamroller had rolled over me a few times. I figured I might have just turned the wrong way during sleep and strained my back. So I made my way to work...Well, since that time I bit my tongue a few times and had a few more morning feeling like "beep". Then, in early Feb. '04 I woke up on my bedroom floor. With the computer monitor next to me, flat on the screen. Went to the bathroom and noticed I had 2 black eyes and blood red eyes. Turns out I had a concussion.My co-workers at work convinced me to go see a Doctor, which I did. He refered me to a Neurologist... did an EEG. While I was waiting for my result (which is next Monday) I had another seizure, again, woke up on the floor but I had cut myself that time. I had about 8 cuts around my right eye browe (?!? don't know if that's the right word since I'm french) and there was a puddle of blood...Made my way to the hospital emergency. They kept me there for two days. Did an ECG, CAT Scan and EEG. No tumor which is good... probably gonna do an MRI in the near futur.Anyway, sorry for the blah blah... this is my first time really speaking out on this scary subject. Mine are also nocturnal seizures. Except for a few (maybe 3 or 4) "auras" when I get up fast. I have a feeling of having a tunnel vision and can't say if I semi-blank out for one second or one hour. I really loose the notion of time. It's really an odd fealing (turns out it's not a long duration from what witnesses said).As for food tasting weird, I don't know. I just know that I feel so burned out that just putting on a sock is quite a task.- Stef.

RE: The feelings after a seizure.

Submitted by mexican_fire on Wed, 2004-06-23 - 14:54
Hi again, Stacey~~No you are not alone. I have seizures as well, only I have 4 types.Having a strange feeling like you are about to have a seizure, could in itself BE a seizure. Simple Partial seizures create all kinds of stuff. Including the foul taste you were experiencing. That is VERY common.During a Simple Partial seizure, the person remains fully conscious and is completely aware of the seizure. It can cause such things as jerking on one side of the body, numbness, tingling, or a pins and needles sensation down one side of the bosy. They usually last for a minute, sometimes less. It can cause sudden emotions such as joy, anger, or sadness for no reason. The person can experience a multitude of strange feelings and sensations, as well as have an unusual smell, usually unpleasant, a taste that is off or unpleasant, visual hallucinations of people who are not there, auditory hallucinations of music or voices that are not there, see flashing lights or patterns, or have some phenomenom that makes things look larger than they are or smaller than they are.So, you could very well be having a bunch of simlpe partial seizures. That happens to me. I can have days where I can not walk in a straight line, I fall over all the time, I feel shaky, and have that stupid smell on and off all day long. That just tells me that my brain is producing seizure activity that has not stopped all day, and that I am "in-seizure" at the point in time.If I miss one dose of my Neurontin, I am in deep trouble.I smell urine and dust for my seizures.My brain damage is mostly on the right side, so when I fall over for any reason, seizure or not, I always fall to the left.Nancy

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