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Why have my seizures gotten worse?

Wed, 01/28/2004 - 00:48
I was diagnosed with epilepsy when I was almost 5 years old, in other words, early 1988. My epilepsy was kept under control for so many years. My epilepsy was kept under control until 2003. So that is what? That is fifteen years. I still don't know why my seizures have been gradually, yet steadily getting worse within the past 13 or 14 months. All I can say is that it is frustrating to not be able to work very much. I am unable to work enough to support myself. My situation right now is really difficult sometimes. There is a good possibility that I will loose my health insurance since I'm not able to work very much, and I get my insurance through where I work. Plus, the co-pays of my epilepsy medication is expensive. I also have anxiety attacks at night. There is a very good possibility that I will need surgery, but surprisingly, that is the least of my worries. My medications have been changed so much over the past 4-6 months, it gets to be pretty rediculous. If anyone could post something anything, I need all the support that I can get. I feel like I am fighting this battle alone even though my family, friends, and other loved ones have been absolutely wonderful. They have supported me thus far, and I know they always will. I just feel all alone despite the fact that I have a wonderful support system. I will leave it at that. Thank you for reading this.

Comments

RE: medications I have been on

Submitted by poetrywriter2004 on Tue, 2004-01-27 - 10:01
I am so glad that you replied. You are just the person that I need to talk to. I don't know if I have a loss of left peripheral vision. I probably have though. I didn't have to start wearing glasses until August of 1997. I was 15 years old at the time. It is very possible that I just don't realize that I have a loss of left peripheral vision since it may have been that way all along. My mom did tell me that after I was daignosed with Epilepsy, doctors checked my vision. I don't know the specifics or anything of that. Oh, and no, I have never seen an opthamologist to have that checked. I don't know if I saw one right after I was diagnosed when I was four years old or not because I don't remember any of that. I am just going by what my mom told me. What my mom told me what happened was that part of my right occipital lobe never formed, and the area right next to it is malformed. That's all I know. I don't know if my mom knows more or not. I don't think so, otherwise I would think she would have told me. But I will ask her anyway. The possibility of my having to have surgery is pretty much an absolute certainty. That is really my only hope to possibly get back to a normal life. I go back to my neurologist in April, unless something happens and I have to go sooner.Thanks again for replying. I am sure that we can help each other. I have to go now, but I will tell you about what has been happening to me because of my Epilepsy. In fact, here is my e-mail address. It is poetrywriter@yahoo.com. If you want, you can email me. And thanks again for replying. I know that we can help each other greatly since we can relate to each other so well. Now I really feel better now that I know someone is going through what I am. I hope to hear from you soon. Thanks again.Renee

RE: medications I have been on

Submitted by e_nuffofthis on Tue, 2004-01-27 - 16:45
I tried to email you, but it was returned. Maybe your box is full? I'll try again later.

RE: medications I have been on

Submitted by poetrywriter2004 on Wed, 2004-01-28 - 00:48
There is a possibility that I wrote down the wrong email address. I'll give it to you again.poetrywriter2004@yahoo.com.Hopefully it will go through this time. Renee

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