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Outgrown Epilepsy
Thu, 01/08/2004 - 12:36Topic: Family & Friends
I am 36 years old and had my last seizure at the age of 14. It was probably what is now being called BRE but it was always called a petit-mal/temporal lobe cross when I was young. I was on many medications from phonbarb to Dilantin and Depakene and zorontin (sp?). It was an odd thing as I outgrew it twice. I went off meds at about 5 years old after having seixures for about 2 years, only to go back on them when I hit puberty in the 6th grade. When I began meds the second time I was having (according to my mom) 100-200 seizures per day even on meds. Needless to say I was not the most popular kid at school.My question is, now that I have not taken any meds for over 20 years and have been seizure free for as long, are the sleep crashes, anxiety, sleep deprivation and foggy feelings (I have had the foggy feelings for as long as I can remember) related to my epilepsy history? Is there some research out there That I can look into? I have looked on the internet but I have not found anything specific to what I am looking for.Tracy
RE: Outgrown Epilepsy
Submitted by stearmn on Thu, 2004-01-08 - 12:36
No I have never had an MRI. My psych thought the sleep clinic thing was interesting but he said we would discuss it and some other things in further detail in a couple of weeks as we were running out of time. I believe he thinks that it might be something psychological. (My mother caused me tremendous panic last spring when I was taking a nap one sunday afternoon- she came by and took my kids and their bikes without leaving a note or message of any kind). In the meantime, he has added effexor to my meds (which I have yet to get filled due to lack of funds). But, I must say that last night I actually got in bed about 10:30 and WENT RIGHT TO SLEEP! YAHOO! I slept till 7:00 but I could have slept longer!It was the best night's sleep I can remember in sooooooooooo long!Why? Have you had an MRI? I have been seizure free and med free for over 20 years. I had an EEG about 10 or 15 years ago and all was fine then.