Outgrown Epilepsy

RE: Outgrown Epilepsy

Submitted by tibet2 on Sat, 2004-01-03 - 16:45

luddites are people who are mistrustful of technological inventions and advances. the name comes from the british movement in the early 1800s dedicated to halting the industrial revolution - it was a violent movement - but i don't know that the word still has those connotations today.... at least not in england. and not the way i hear it used.... it seems to mean people who can't be bothered to learn to program their vcr or whatever.but to get back to your problem.... you shouldn't be feeling as bad as you do. and i think everyone would agree with that.getting in for a sleep study would be great. two alpha females in the same family and the same town? that can be tough... but don't let that get in the way of treatment.change is scarey but sometimes neccessary. i need to change my meds because i have some obscure and very painful side effects from long terrm mysoline use (metabolizes to phenobarb) and i have been thinking about it for a couple of years and am just now ready for the change (i have seizure control - so it's a hard thing to risk giving up - but i've been supplementing with triletpal for the last couple of years) . i didn't look that long and hard - but your med is an amphetamine and i thought it would be contra-indicated for seizures - but i didn't see that warning off hand.....that doesn't mean it isn't out there - it just means i didn't see it.....so epilepsy.com can step in any minute now and give some advice on that.....post to jeff.... a lot of people double post on more than one support board.... and it's totally kosher.... sometimes there is someone on a given board who are very knowledgable about a given subject. jeff's very good at sleep. he's not a "handholder" but is very consistent and will point you in the right direction for reading.TLE - temporal lobe epilepsySPS - simple partial seizureCPS - complex partial seizureTCS - tonic clonic seizurehere's an article many people with TLE really relate to....http://www.psychiatrictimes.com/p950927.htmlsee what you think... and maybe your psychiatrist would be interested in it as well.... it has one of the best approaches for dealing with some of these surreal E experiences that i have seen...."Often such details must be elicited by careful, tactful questioning, because the patient will be reluctant to describe the experience; its intensity and bizarre nature arouses fears of insanity. The physician frequently can sidestep this reaction by asking: "Have your episodes ever involved anything strange?" with a lack of emphasis on the word strange, thereby suggesting that strange experiences are not at all unusual with these kinds of seizures. Another approach is to say: "On occasion persons who have experienced some of the things you have told me about have described other experiences they have been reluctant to discuss because they were afraid other people, even their doctors, might think them crazy." Questions about specific epileptic experiences should be delayed until the end of the interview to avoid suggestibility. "i think we all want a neuro with that approach. i once had one like that and would love to have one like that again and i think i am on my way toward that kind of a relationship with my new neuro. i do think that the doctor-patient is a two way street and that a patient has responsibility to make the relationship work (just as the doc does) and to be forthcoming with the doc. that means not just saying what you think the doc wants to hear... it means thinking about things before you go in for a visit and being organized, keeping a seizure (or migraine or whatever) log.... reading on your own..... good luck with the education degree. what exactly does Ed.s stand for?