Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

epilepsy has ruined my life.

Wed, 11/20/2013 - 17:14
epilepsy has ruined my life. and it pisses me off how people think nothing of the diagnosis. it doesn't get the attention it needs for sure. when i was a kid, i didn't plan to NOT get a drivers license. i didn't plan on spending money on medicine for the rest of my life. i didn't plan that in the future it would be life-threatning to cross the road, cuz what if i have a seizure there? i hate this shit, and pardon my french, but this shit is too much, and it needs to get way more attention.

Comments

Re: epilepsy has ruined my life.

Submitted by ral on Mon, 2013-11-25 - 07:20
Molson, i see that you took an early retirement and the seizures started at 40.  Mind my asking how old you were when you did that & what age you are now?  There certainly is no need to view yourself as a coward for having natural thoughts that have occured to many of us.  I'd be careful with the medications you are on.  I tried many different ones that had very little impact on slowing down my seizures but had a very strong impact on my wishing to die.  I stopped taking them and am in a much better place now.  Please feel free to email me and i'd be happy to discuss in greater detail with you.

Re: epilepsy has ruined my life.

Submitted by Januarymommy2005 on Mon, 2013-12-02 - 03:21
I am so sorry. My 5 year old was recently diagnosed, and I agree. People seem to think its not a big deal. "Oh, there are meds for that right", and then its like its not that bad. They don't realize how awful it is to give a five year old meds that could have her think of suicide, along with all the other horrible side effects. They don't understand I'm already thinking about her driving, dating ,working, living on her own alone....will this affect her. Everyone is so nonchalant. Even the school nurse tried to make me feel like I was overreacting about my concerns. I wanted to scream at her "you have your child in the hospital a week and then have to leave her every day". It's a horrible feeling. I know you are in a different sage of your life but I completely understand and sympathize with your situation. Good luck.

i'm in the same sort of

Submitted by tundratrekker on Wed, 2017-11-08 - 21:31
i'm in the same sort of situation. the best neurologist in Europe couldn't even do a damn thing and he had been using me like a project for about 15 years. it also cuts all the fun out of life as well. snowboard? red light. mountain bike? red light. foreign holiday? red light and so on and so forth. anyway, as i was saying in agreement to...i didn't get the login same of this person, but either way, in agreement- LIFE TOTALLY SUCKS!!!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.