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epilepsy has ruined my life.

Wed, 11/20/2013 - 17:14
epilepsy has ruined my life. and it pisses me off how people think nothing of the diagnosis. it doesn't get the attention it needs for sure. when i was a kid, i didn't plan to NOT get a drivers license. i didn't plan on spending money on medicine for the rest of my life. i didn't plan that in the future it would be life-threatning to cross the road, cuz what if i have a seizure there? i hate this shit, and pardon my french, but this shit is too much, and it needs to get way more attention.

Comments

Re: epilepsy has ruined my life.

Submitted by ral on Thu, 2013-11-21 - 07:27

Sorry to hear what you are dealing with Sesat.

If misery loves company though i deal with the same anger towards E every day.  Personally i get a little tired of the "kum by yah" do as you're told and everything will be fine message.  Please hit me up on the side if you'd like someone to vent back and forth with!

Sorry to hear what you are dealing with Sesat.

If misery loves company though i deal with the same anger towards E every day.  Personally i get a little tired of the "kum by yah" do as you're told and everything will be fine message.  Please hit me up on the side if you'd like someone to vent back and forth with!

Re: epilepsy has ruined my life.

Submitted by sesat13 on Thu, 2013-11-21 - 08:07
thank you. yeah, especially to hear that from people who don't live with the condition. they just don't understand. you know when someone says they have cancer, people tilt their heads and go "aww". where's our aww's though? i'd gladly trade epilepsy for cancer.

Re: epilepsy has ruined my life.

Submitted by mereloaded on Thu, 2013-11-21 - 14:52
Oh my, please ont say that. Cancer is such a terrible disease. I don't have epilepsy, but my son does. I am grateful everyday I get to spend with my son., he is my inspiration and I love him. Cancer takes your life away. I have seen families devastated by the loss of precious little children due to cancer. I know personally one friend loss their 4 year old to leukemia. Parents later divorced because thy could not cope with their loss. A neighbor loss her precious 3 year old daughter from a cancerous brain tumor, I just met a family with a two year old that has a face tumor that has pretty much ate his face off. I could go on and on. Please, I am not saying that epilepsy doesn't suck or that people should not complain, everyone is entitled to their feelings. With that being said when my son was first diagnosed I was angry and very upset, his first neuro appointment was in a pediatric neuro office. There I waited with other families and their children. Children wheelchair bound, children that will never be able to walk, play, talk or make a friend, leave alone complain. That night, I went on my knees and thank the good Lord for my problems. No doubt, epilepsy is a scary thing to have, but there are worse things out there. I am sure the families of those children would trade anytime. Count you blessings. Best wishes. Be strong.

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