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Taking Potiga
Fri, 06/08/2012 - 22:59My name is Naori and I recently started taking Potiga (an AED to my other meds, Lamictal & Vimpat). I was wondering if anyone else has started this med - I know it is very new - but I wanted to see how others are responding to it. So far it has decreased my seizure activity, and also made my seizures less severe. However, the time period of adjusting to the med has been somewhat long, with significant side effects. One of the most positive things is that it finally helps me sleep at night. One of the negative things is that I feel like I am asleep all day. Love to hear anyone else's experience with Potiga so far.
Comments
Re: Taking Potiga
Submitted by nikkiwright1 on Tue, 2013-04-16 - 23:06
Naori,
I wanted to update you on my progress. I took Potiga for over three months before my doctor decided that it was not providing the best treatment. While taking Potiga, my daily partial seizures did not decrease and I was stiill having grand mal seizures near the days of my monthly period.
I began taking Onfi at this beginning of this year. It's doing okay without any severe side effects. I take Onfi, Dilantin, and Lamictal. Onfi seems to have stopped all of my grand mal seizures. However, I still have the same partials daily and now also while sleeping. Thankful to not have the grand mals, but we're still searching to find my best treatment for the partials.
I took a neuropsycological evaluation last week and should get my full results by next month. I am diagnosed with left temporal lobe seizures and trying everything to avoid surgery.
I hope that Potiga continues to be a great treatment for your seizures. How are you?
Take care,
Nikki
Naori,
I wanted to update you on my progress. I took Potiga for over three months before my doctor decided that it was not providing the best treatment. While taking Potiga, my daily partial seizures did not decrease and I was stiill having grand mal seizures near the days of my monthly period.
I began taking Onfi at this beginning of this year. It's doing okay without any severe side effects. I take Onfi, Dilantin, and Lamictal. Onfi seems to have stopped all of my grand mal seizures. However, I still have the same partials daily and now also while sleeping. Thankful to not have the grand mals, but we're still searching to find my best treatment for the partials.
I took a neuropsycological evaluation last week and should get my full results by next month. I am diagnosed with left temporal lobe seizures and trying everything to avoid surgery.
I hope that Potiga continues to be a great treatment for your seizures. How are you?
Take care,
Nikki
Re: Taking Potiga
Submitted by junesy on Sun, 2012-10-07 - 11:13
My son has been prescribed Potiga and will be starting this medication tomorrow. Thanks to everyone for your feedback on how the medication has helped and also the common side effects. My son is 18 and taking a very light load at a local junior college, however for the past 2 weeks he has experienced clusters of seizures 5 out of the 7 days in the week. He is currently on a host of medicines, Keppra, Vimpat, Depakote and Clonazapem for prolonged seizures. We are hopeful that Potiga will offer some relief from the seizures and so that he can slowly get off some of these other medications. Thanks again and this is my first time ever posting on a discussion board. I will be checking back to see if there are any new updates and to let everyone know how our transition on the new med goes.
I have done lots of research on this med and hopefully these side effects don't crop up too severely.
My son has been prescribed Potiga and will be starting this medication tomorrow. Thanks to everyone for your feedback on how the medication has helped and also the common side effects. My son is 18 and taking a very light load at a local junior college, however for the past 2 weeks he has experienced clusters of seizures 5 out of the 7 days in the week. He is currently on a host of medicines, Keppra, Vimpat, Depakote and Clonazapem for prolonged seizures. We are hopeful that Potiga will offer some relief from the seizures and so that he can slowly get off some of these other medications. Thanks again and this is my first time ever posting on a discussion board. I will be checking back to see if there are any new updates and to let everyone know how our transition on the new med goes.
I have done lots of research on this med and hopefully these side effects don't crop up too severely.