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Psychogenic and Epileptic seizures HELP

Tue, 10/29/2013 - 19:34

Ok I am so confused! The doctor told me I look like I have epileptic seizures but he's not sure. The Keppra is working and I don't have anything but auras now for almost two weeks! He told me he has no idea so he's going to call it non-epileptic seizures but still give me keppra and all that. WHAT???? Will someone please explain to me what the heck is going on? Two EEGS are normal so what does this mean? I know that I have PTSD but I really don't think I am having psychogenic seizures. I know that can happen but it doesn't make sense for my situation. I have my PTSD issues well controlled with counseling and therapy. I am in the best part of my healing since I started therapy four years ago! I am happy he is keeping me on the keppra but at the same time I don't understand? I feel like he is giving up on me and basically telling me I have no idea why you are having seizures so I'm going to blame it on something else. If it looks like a duck, quacks like a duck isn't it a duck? I've had a friend who had to have five FIVE EEGS and they still don't know what is wrong with him but they said it was epilepsy finally after five of those tests! I don't want anymore of those tests. I feel fried and upset and jittery and not to mention having a seizure freaking hurts! Someone please tell me what to do? I know a seizure is still a seizure but in a way I feel like the doctor is just saying I don't know so here's some epilepsy medication and continue therapy. I wanted a definite answer because I am not sure... I thought it would help me cope better somehow. Am I just being overly emotional? Can anyone just tell me what to do?! I feel like my whole life is just up in the air because no one can give me a diagnosis. Has anyone ever been where I have been? if you have please tell me what you did and if you think I'm just being overly emotional you can tell me I won't get mad. I feel like my mom who doesn't have seizures is just not understanding me she just tells me why are you letting it bother you. I just wanted it in black and white and no one is giving that to me. I felt like if I had it in black and white then I could somehow cope. Is this normal to be so upset about this kind of diagnosis or rather unsure diagnosis?

 

Thanks for listening

Comments

Re: Psychogenic and Epileptic seizures HELP

Submitted by missionmelissa on Fri, 2013-11-01 - 10:09
My family in nearly identical situation as you have described encountering in past yourself. Could you share how you got to resolution? New to using this forum.....

Re: Psychogenic and Epileptic seizures HELP

Submitted by missionmelissa on Fri, 2013-11-01 - 21:00
Would greatly appreciate hearing details of your journey if you would please share.

Re: Psychogenic and Epileptic seizures HELP

Submitted by losgirl68 on Mon, 2013-11-18 - 22:52
Omg my 14 year old son is having seziures almost everyday and they just started on halloween. Took him to 3 diffrent hospitals before they admitted him to a childrens hospital in Syracuse. And I was also told by a neurologist that it was stress and anxiety. But my son is not easily stressed or anxious. Then a phyc neurologist came and seen my son and said 5hat was not it. I just really want answers because my son was perfectly healthy untill halloween. Please someone help me. If you have had a similar experience and have had good results please let me know

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