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keppra and psychotic behavior

Tue, 09/09/2008 - 12:36
my daughter is 11 and just started having grand mal seizures in may 08. in june she was put on keppra 500mg twice a day. a couple weeks ago she started having  what looked like focal seizures. but the drs say its not a seizure. they think its behavioral or maybe even hallucinations. if anyone has had this happen to them please help me. i and the neurologists have taken her off but im worried that the keppra may have caused permenant damage. she also had trouble walking and needed a wheelchair to get around as i cannot carry a 106lb child!

Comments

Re: keppra and psychotic behavior

Submitted by Auntie C on Wed, 2013-11-13 - 18:21

My nephew is 19 yrs. of age and has down' syndrome.  He recently began having seizures, and as treatment his neurologist prescribed Keppra.  Within the span of one month's time, he began having extreme psychotic breaks.  Since then, the psychosis has increased in frequency and intensity, so his neurologist has stepped him off of the Keppra.  He is now about two weeks out from the complete removal of the Keppra from his treatment, but it seems as though this horrific drug has already taken it's awful toll.  A recent MRI now shows evidence of schizophrenia.  Before all this began, he was the most mild-tempered, sweet and gentle soul!  I've found through research that this is a drug that should never have been prescribed to him due to his developmental disabilities.... as he is completely incapable of communicating the horror he is experiencing in his mind.  We need help!!  As of today, he has been removed from his home, as he poses a danger to himself and his parents.  Is there any way to reverse the damage?.... Maybe through detoxification of the liver and/or the monitored use of B vitamins to replace those 'dumped' by the brain as a result of Keppra use.  I feel desperate!

 

My nephew is 19 yrs. of age and has down' syndrome.  He recently began having seizures, and as treatment his neurologist prescribed Keppra.  Within the span of one month's time, he began having extreme psychotic breaks.  Since then, the psychosis has increased in frequency and intensity, so his neurologist has stepped him off of the Keppra.  He is now about two weeks out from the complete removal of the Keppra from his treatment, but it seems as though this horrific drug has already taken it's awful toll.  A recent MRI now shows evidence of schizophrenia.  Before all this began, he was the most mild-tempered, sweet and gentle soul!  I've found through research that this is a drug that should never have been prescribed to him due to his developmental disabilities.... as he is completely incapable of communicating the horror he is experiencing in his mind.  We need help!!  As of today, he has been removed from his home, as he poses a danger to himself and his parents.  Is there any way to reverse the damage?.... Maybe through detoxification of the liver and/or the monitored use of B vitamins to replace those 'dumped' by the brain as a result of Keppra use.  I feel desperate!

 

Re: keppra and psychotic behavior

Submitted by weeangel8 on Thu, 2013-11-14 - 15:55

I started of seizures at 17 (simple partial, complex partial and grand mal).  I'm 34 now and have tried most drugs out there like dilantin, lamictal, neurontin, tegretol, tegretol XR, trileptal, and keppra.  The combination of trileptal and keppra are controlling my seizures, almost seizure free for 7 years in a few months.  I had heard about the moodiness and irritiability (putting it mildly) about Keppra, so I was nervous.  I take 2000mg of it daily, a lot basically.  I do have my moments when the smallest, insignificant things will set me off.  I have to catch myself so I don't scream and want to hit my co-worker or loved ones.  I sometimes just have to walk away and cool down.  I haven't had such severe episodes like what I've read, but I know they do happen for others.  My neurologist in works carefully about the moodiness issues when I talk with her and my epileptologist discussed it with me thoroughly also.  They felt it was worth a try.  I do take 5 mg of lexapro to help with moodiness and vitamin B, both doctors recommending is helping offset that effect.

If the effects are severe as what I've read, then I'd definitely get off the medication slowly and find something new to try.

I started of seizures at 17 (simple partial, complex partial and grand mal).  I'm 34 now and have tried most drugs out there like dilantin, lamictal, neurontin, tegretol, tegretol XR, trileptal, and keppra.  The combination of trileptal and keppra are controlling my seizures, almost seizure free for 7 years in a few months.  I had heard about the moodiness and irritiability (putting it mildly) about Keppra, so I was nervous.  I take 2000mg of it daily, a lot basically.  I do have my moments when the smallest, insignificant things will set me off.  I have to catch myself so I don't scream and want to hit my co-worker or loved ones.  I sometimes just have to walk away and cool down.  I haven't had such severe episodes like what I've read, but I know they do happen for others.  My neurologist in works carefully about the moodiness issues when I talk with her and my epileptologist discussed it with me thoroughly also.  They felt it was worth a try.  I do take 5 mg of lexapro to help with moodiness and vitamin B, both doctors recommending is helping offset that effect.

If the effects are severe as what I've read, then I'd definitely get off the medication slowly and find something new to try.

My beautiful daughter has

Submitted by Willow tree on Mon, 2018-01-22 - 07:13
My beautiful daughter has autism and epilepsy. At the age of 12 yrs she had her first seizure and then a second that nearly killed her. The neurologist suggested keppra, not questioning his advice we gladly went on our way.... there was no further information as to the possible negative symptoms...My daughter was quite happy with it at first for 2 yrs but as she grew to an adult dealing with raging hormones her behaviour deteriorated, I observed her and recognised her aggressive behaviour came straight after her keppra medication 200ml in the morning and in the evening- as I couldn’t take her off it immediately without the neurologists advice on my observations which in interim took 3 months for an appropriate. In that time my daughter who was 14 was ready to kill herself and anyone in her path.... the aftermath and the consequences of her trauma were horrible. She never stayed in her bedroom again! I was then told that violence is a common side effect to keppra? By a professional? Why oh why was this drug still on the market. With this level of incompetence and to be so blasé with patients health to allow this medication to be perscibed in the first place and even to a child is abhorrent. Medical practice!? Say what you mean and mean what u say...

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