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Newly diagnosed
Wed, 11/13/2013 - 13:32Comments
Re: Newly diagnosed
Submitted by just_joe on Wed, 2013-11-13 - 15:32
You tagged it merelo.
I have to say that in some peoples posts I may seem like I am comming from another angle but I try to show them that if they have dreams follow them they may have to take another road to get there but dreams and success is highly possiable.
Joe
You tagged it merelo.
I have to say that in some peoples posts I may seem like I am comming from another angle but I try to show them that if they have dreams follow them they may have to take another road to get there but dreams and success is highly possiable.
Joe
Re: Newly diagnosed
Submitted by mereloaded on Wed, 2013-11-13 - 14:33
This is the place to vent. There is no judging in here. First, it is completely under stable to feel that way. Epilepsy is such an ugly word and it carries stigma nd undue shame. The good news is that epilepsy is not a death sentence and it is just like having any other condition. You don't see people with diabetes to cancer hiding, they go on with pride and courage, and so should you. I understand your feelings, I totally do. I have kept my sons epilepsy hidden from family and friends because I am afraid that he will be treated different or that people may be afraid of him, but to my surprise, those that know have been nothing but supportive and caring, people are more compassionate and understanding than in the past. I, like you, went to a phase of anger and even denial (that still lingers) but I am happy and thankful for my son medication that has fully control his seizures. He has been on remission for precious 9 months now. There are new therapies, devices, even surgery. Having epilepsy is not having a death sentence, and there are FAR worse things out there. If you see things on that light, you will feel much better. See, when I take my son to the pediatric neurologist, I have to wait in the waiting room and see all of this poor families tending to wheel chair bound children that will never talk, play or have friends. I thank sweet Jesus for my problems and thank my lucky starts for my sounds cards. Yes, epilepsy sucks, no doubt, but you have a supportive husband and medical care, things to be grateful for. Many people here are alone and cannot afford insurance or medicine. So all things considered, you are lucky :) also you got 28 years seizure free! A lot of folks here have had it since birth, so more to smile about. Please know that I am not trying to minimize your feelings, i am simply trying to point out all of the wonderful blessings. It will take sometime to be able to find the correct dosage and treatment, so please talk to your physician or neuro about increasing, switching or adding medications so you can have better seizure control. Last, I wanted to add that these feelings will subside and that you will come to terms with this. I know I did. My son was scared about his diagnosis and I told him that there is nothing to be fear but fear itself. It has brough us closer too. I will tell you what I told him:follow your dreams and carry on. Do not let this stop you. Best wishes!