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Please Give me Advice.... Just had a seizure

Fri, 09/06/2013 - 10:14

Hey guys,

I'm here because I seriously have no clue what to do and I just completely feel alone. Sitting here balling my eyes out out of complete fear.

I'm a 19 year old guy. I have Juvenile Myoclonic Epilepsy. I've had seizures since I was born. Ever since 2008, they slowed down tremendously. (JME is a very mild form of epilepsy).

 My last seizure was about a year ago, and judging by how badly my tongue was torn to pieces, it was a pretty serious one. Whenever I have a seizure, it's always grand mal. And it's pretty bad. I had it at about 2 am, and I fell through a wall.

Anyways, I think I just had another seizure. I woke up around 7 with mild twitches and just fell back asleep. I just woke up on the ground in a pool of blood. My body doesn't hurt, but I bit my tongue and I'm 99% sure I just had one.

I took my medication this morning, and I've been drinking water and trying to eat. Here's the thing; I pretty much live on my own. I'm seriously opposed to telling my doctor that I had another seizure. I'm terrified. He said he would take away my license if I had another one. I'm very independant. My license is my LIFELINE. I can't tell my parents or friends because they'll flip out and honestly I don't want to put my mother through that..

What should I do?  I don't know I guess I just want to talk to/hear from people. This is the absolute worst feeling in the world. I wouldn't wish it on my worst enemy.

Comments

Re: Please Give me Advice.... Just had a seizure

Submitted by tcameron on Wed, 2013-10-23 - 17:20

Hi, we all hate not being able to drive.  Did you know if you have a seizure while driving & kill someone you're guilty of murder?  You have a mild form of epilepsy.  Your problem might be as simple as adusting your AEDs.  How can your doctor treat your seizures if he isn't aware of them?  It might be as simple as a stronger dose, or another AED.  You're crying?  Which would you rather do:  Take some pills & not drive until you're seizure free for less than a year or spend several years in prison?

I used to lie to my neuro all the time 'cause 'I wasn't about to lose my license.'  One day while driving I had an aura with less than a second to act.  I was going to crash.  I veered off and plowed into a bush.  The only injury was to the bush.  The building next door was to a preschool.  My car was only a few yards from its driveway.  I could have murdered a child!  That scared me out of my car.  I'd never be able to live with that kind of guilt.  

I decided that day I was determined to get my license back.  The only way to do it was to work with my neurologist, so he could adjust my AEDs to stop my seizures.  Your problem could be as simple as your doctor adjusting your dose.... a mild form of epilepsy.  Be honest with yourself.  You can't get better if you don't let your doctor help you.

There are other forms of transportation than a car.  Perhaps you can commute to work.  You can always take public transportation, a cab, or if necessary, paratransit.   What about dating?  Take a cab or double date.  Epilepsy isn't the end of your life.  You're only 19.  Your life is just beginning.  Do you really believe your're NEVER going to crash if you don't take care of your brain; the most sensitive organ of your body?    

There could be an epilepsy support group in your area.  Check it out.  I'm the co-facilitator for my local epilepsy support group.  

 

 

Hi, we all hate not being able to drive.  Did you know if you have a seizure while driving & kill someone you're guilty of murder?  You have a mild form of epilepsy.  Your problem might be as simple as adusting your AEDs.  How can your doctor treat your seizures if he isn't aware of them?  It might be as simple as a stronger dose, or another AED.  You're crying?  Which would you rather do:  Take some pills & not drive until you're seizure free for less than a year or spend several years in prison?

I used to lie to my neuro all the time 'cause 'I wasn't about to lose my license.'  One day while driving I had an aura with less than a second to act.  I was going to crash.  I veered off and plowed into a bush.  The only injury was to the bush.  The building next door was to a preschool.  My car was only a few yards from its driveway.  I could have murdered a child!  That scared me out of my car.  I'd never be able to live with that kind of guilt.  

I decided that day I was determined to get my license back.  The only way to do it was to work with my neurologist, so he could adjust my AEDs to stop my seizures.  Your problem could be as simple as your doctor adjusting your dose.... a mild form of epilepsy.  Be honest with yourself.  You can't get better if you don't let your doctor help you.

There are other forms of transportation than a car.  Perhaps you can commute to work.  You can always take public transportation, a cab, or if necessary, paratransit.   What about dating?  Take a cab or double date.  Epilepsy isn't the end of your life.  You're only 19.  Your life is just beginning.  Do you really believe your're NEVER going to crash if you don't take care of your brain; the most sensitive organ of your body?    

There could be an epilepsy support group in your area.  Check it out.  I'm the co-facilitator for my local epilepsy support group.  

 

 

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