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16 Year old Son just diagnosed with JME
Sat, 10/19/2013 - 01:27I am very new to the world of JME. My son was diagnosed in early September with JME after 3 months of 10-20 times a day of him experiencing dizziness, loss of sight, can hear but unable to respond spells. The diagnosis was made after a 24 hour eeg that lasted 1 hour, due to him having 3 seizures after being connected. The neurologist started him on Lamotrigine and he is now at 200mg and continues to have the seizures. It seems that the seizures are more frequent when he is inactive. He has not had a Grand Mal Seizure, only the 10-30 second seizures. I am curious if anyone else has these type of seizures without the jerking motions? He does not seem to have the jerking motions at this time during the seizures. I am just concerned that they may not have the correct diagnosis, due to the medication not effecting the seizures. We go back to the neurologist on Wednesday and I can really use some advice on what I need to discuss with the doctor. I am feeling helpless and frustrated while my son becomes withdrawn and angry as he stands on the sidelines with his football team waiting for the medication to work.
Re: 16 Year old Son just diagnosed with JME
Submitted by mereloaded on Sat, 2013-10-19 - 07:31
Those are called partial seizures. Please know that there are 60 different types of seizures and only a handful the convulsive type. What he may be experiencing are what are known as absence seizures in which a person temporarily stops what they are doing, and even though they are conscious, they are unable to move or respond. Typically the last for a few seconds up to a few minutes. Some partial seizures may develop to tonic clonic, so it is important to take the medication. It may take some time to be able to find the correct dosage/medicine combo, so please be patient. I know all of this can be scary and frustrating. Have a list of questions for the neurologist, make the best out of your visit that way. For what I hear, absence seizure are hard o control, so again, it may take some time to find the correct medication and dosage combo. Last, do you know that epilepsy can be aggravated by hitting ones head or that seizures can be triggered by hitting the head? You may want to discuss that with the neurologist. I don't know what position your son plays, but accommodation may have to be made. I believe Jme js a general term used to describe childhood onset epilepsy, but more test are needed to determine which type is pilepsy it is, where is it moving from etc. Best wishes