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Timing of medication

Wed, 10/16/2013 - 01:05
When my son sleeps in on the weekends even just past an hour when he usually takes his meds during the week, he starts his morning with simple seizures. Anyone experiencing this? Does it mean more medication in the evening to tie him over? Will ask his neuro about this, but wondering if this is common?

Comments

Re: Timing of medication

Submitted by just_joe on Wed, 2013-10-16 - 09:57

Morning Purlover

Well I read your post and have a couple of questions. When talking about medications you failed to mention the names of those and if they were regular medications or extended release.

I know about medication in several ways. When I take my medications I have them timed where I take them 12 hours apart. Basically I take them morning and night. Or 8am and 8pm.

If he is on er he needs to take them 24 hours apart. If he is on regular meds they need to be taken basically 12 hours apart.

Medication lose strength nearing the end if the time frame which is why he may be having simple seizures if he sleeps in and his meds are not taken at dertain time.

I had the same thing happening so I asked Doc if that could be the reason and at that time he thought it could be, After I started that I had fewer seizures. 

Hope this helps

Morning Purlover

Well I read your post and have a couple of questions. When talking about medications you failed to mention the names of those and if they were regular medications or extended release.

I know about medication in several ways. When I take my medications I have them timed where I take them 12 hours apart. Basically I take them morning and night. Or 8am and 8pm.

If he is on er he needs to take them 24 hours apart. If he is on regular meds they need to be taken basically 12 hours apart.

Medication lose strength nearing the end if the time frame which is why he may be having simple seizures if he sleeps in and his meds are not taken at dertain time.

I had the same thing happening so I asked Doc if that could be the reason and at that time he thought it could be, After I started that I had fewer seizures. 

Hope this helps

Re: Timing of medication

Submitted by puglover on Wed, 2013-10-16 - 23:12
Thanks, Joe. Your responses are helpful. My son's seizure cocktail is keppra, lyrica, clonapin and carbetrol; none of these are the extended release form. During the week he takes his evening meds at 6:00 and his morning meds at 8:00. Then if he sleeps in even a little past nine during the weekend, the trouble starts. What you said makes sense and I will review it with his neuro. From reading your posts you've been dealing with seizures a long time. Is there an age when I your seizures settled down? My son is in his late twenties, so growth spurts, etc. aren't a factor. Thanks again for responding.

Re: Timing of medication

Submitted by just_joe on Thu, 2013-10-17 - 13:13

Hi again Puglover

No problem answering your questions.

First thing I would suggest is changing the evening meds to 8. since medicationslose their strength over timeso the medications he takes at 8 in the morning he is on medications that he took 14 hours before. I take mine at 8 am and 8pm. That is a simple fix. But do check with his neuro.

As for the medications he is on I have taken several of them and they are better than the ones I was taking years ago. I am currently taking Keppra 750g 3-morning and night. Which is maximum dosage. A few months ago we added Vimpat which the dosage was increased at to 150mg morning and evening. Keppra has been the best medication I have been on in the last 15 years. It reduced the number of seizures I was having. It also reduced the length of time in th seizures as well as the time to focus (get back to normal). With the addition of vimpat the seizure count has gown down even farther. We are working with this combination thinking it might get me seizure free. Medications are being created to work on types of seizures and they work better than they did when I was young. I know because I have been in several drug studies because I want people today to get medications that don't drug them down like the medications did when I was a teen. 

As for the time I have been dealing with seizures. Wellllllllll I was diagnosed with epilepsy when I was 13 which was in 1963. I had seizures the year before. I have been dealing with epilepsy for a little over 50 years. Back in the 1960's people with epilepsy were still being put in homes away from the public. In the 1970's many states were still not letting people with epilepsy get marriage licenses. 

As for when I had seizures settle down. WHen I was a teen and in school I had more convulsive seizures. I also had others which most teachers didn't think were seizures butthey found out they could have been. I was constantly being written up in class for day dreaming of not answering the question asked promptly. Those could have been absence or partial seizures. Especially when my test an quize scores were amontg the highset in class. The convulsions werew different and I had themabout once a month or every other month. Those aren't pretty to look at and they are kinda wierd to be in. Most epileptic or people that think afo seizures know about grande mal seizures where the person goes into a convulsion and they black out, Wellll grand mal seizures do but then so do focal motor seizures in some ways. Focal motor seizures start in one part on the brain which effects a part of the body on the other side. My seizure activity is in my left lobe which controls the right side of my body. My confulsive seizures would start with my right hand feeling wierd and rising up once it got shoulder level I went down and was in a convulsion which looked like a grande mal but I was aware of everything going on around me. I could see,hear and I understood what was being said. Friends would say ewwwwwwww I don't want to be around him any more. I avoided that person for a few days and they came and asked questions. Once they knew what was happening and they got everything explained they were generally the best friends I had and they not only watched out for me but they helped anybody with any handicap. In 1969 I came out of the hospital and I went over 3 years without any seizures what so ever. Not even Deja Vu. Since then I have had seizures now and then and the medication needed to be changes either the dosage or the medication. After being on 1 for 30 years I got toxic on it. Now I have seizures about 1 a week or 10 days. 6 mnths ago those were 8-10 a month. But these seizures are short generally 2-10 seconds and I am back to normal in 1-2 minutes. So  the seizures last seconds when before they lasted 2-8 minutes. When I was in my 20 + 30's I had fewer seizures but then I was drugged down alot. Back then I was asked by my new neuro "How do you wake up in the morning". He also told me the amount of phenobarb I took in one day could put the average man to sleep for 24 hours. Durgging the brain down stopped seizures but it was not easy on the body. I was great at work and did what was needed but on the way to and from I was asleep goingto and from work. Age does do things but medications are what id helping now. As for growth spurts wellllllllllllll yes the year I had the first seizures I was the one that grew and it was wellllllllll new jeans in april which were tucked under 2 inches so I would still have new jeans for school late in august. Nope never happened those jeans were ankle high and that groth spurt was when the seizures started. During that year and about 3 more months I grew about 10-12 inches. Since then I have maybe grown a total of 2 morew inches. I went from 85 in 6th grade to 148 in 9th grade. When I was a senior I weighed 156 and I didn't gain any more until I was 35. Yup I was put on a medication that made me retain water which I was taken off of but mt weight went back down to 165. 10 years later I weighed 185. I was also put on another medication which made me retain water again but it went to 265. The medication didn't do what we had hoped it would so I dropped some weight. But then with age and not getting the exercise I used to  get I have droped some of that. Currently I weigh 215 at one doctors office and 217 at another doctors office. But age does do things too

As for cocktails I have had many. both medication and drinking. When I was your sons age welllll I did go out and had fun with the guys. a couple of them knew I limited my drinks but then others were amaized at the number of drinks I had. Shirley Temples can do that and you can have fun and stay withing doctors guidlines. ALl of my doctors have said a drink or beer now and then does not hurt but no more tha 2 and they needed to be 2-3 hours apart ,I have beer and wine here in the house which will be brought out if comapny comes over. But then I also use them for beer beans or beer bread. And the wine is drinkable none goes to waste since I also use drinking wine to cook with.

I hope I answered you questions but do change the time he takes his meds at night and that could stop those seizures he has been having. I say that because I was basically having the same issue many years ago and once the change was made I had fewer seizures in the morning. But then sleeping in for me was waking up between 6:30 and 7. I have rarely gotten 8 hours of sleep. Even when I was in my early teens. Consider I had a paper route and the papers were dropped off on my proch between 4-5 and they had to be delivered in time to change clothes eat and catch the bus which was about 7:30

I hope this helps

Joe

Hi again Puglover

No problem answering your questions.

First thing I would suggest is changing the evening meds to 8. since medicationslose their strength over timeso the medications he takes at 8 in the morning he is on medications that he took 14 hours before. I take mine at 8 am and 8pm. That is a simple fix. But do check with his neuro.

As for the medications he is on I have taken several of them and they are better than the ones I was taking years ago. I am currently taking Keppra 750g 3-morning and night. Which is maximum dosage. A few months ago we added Vimpat which the dosage was increased at to 150mg morning and evening. Keppra has been the best medication I have been on in the last 15 years. It reduced the number of seizures I was having. It also reduced the length of time in th seizures as well as the time to focus (get back to normal). With the addition of vimpat the seizure count has gown down even farther. We are working with this combination thinking it might get me seizure free. Medications are being created to work on types of seizures and they work better than they did when I was young. I know because I have been in several drug studies because I want people today to get medications that don't drug them down like the medications did when I was a teen. 

As for the time I have been dealing with seizures. Wellllllllll I was diagnosed with epilepsy when I was 13 which was in 1963. I had seizures the year before. I have been dealing with epilepsy for a little over 50 years. Back in the 1960's people with epilepsy were still being put in homes away from the public. In the 1970's many states were still not letting people with epilepsy get marriage licenses. 

As for when I had seizures settle down. WHen I was a teen and in school I had more convulsive seizures. I also had others which most teachers didn't think were seizures butthey found out they could have been. I was constantly being written up in class for day dreaming of not answering the question asked promptly. Those could have been absence or partial seizures. Especially when my test an quize scores were amontg the highset in class. The convulsions werew different and I had themabout once a month or every other month. Those aren't pretty to look at and they are kinda wierd to be in. Most epileptic or people that think afo seizures know about grande mal seizures where the person goes into a convulsion and they black out, Wellll grand mal seizures do but then so do focal motor seizures in some ways. Focal motor seizures start in one part on the brain which effects a part of the body on the other side. My seizure activity is in my left lobe which controls the right side of my body. My confulsive seizures would start with my right hand feeling wierd and rising up once it got shoulder level I went down and was in a convulsion which looked like a grande mal but I was aware of everything going on around me. I could see,hear and I understood what was being said. Friends would say ewwwwwwww I don't want to be around him any more. I avoided that person for a few days and they came and asked questions. Once they knew what was happening and they got everything explained they were generally the best friends I had and they not only watched out for me but they helped anybody with any handicap. In 1969 I came out of the hospital and I went over 3 years without any seizures what so ever. Not even Deja Vu. Since then I have had seizures now and then and the medication needed to be changes either the dosage or the medication. After being on 1 for 30 years I got toxic on it. Now I have seizures about 1 a week or 10 days. 6 mnths ago those were 8-10 a month. But these seizures are short generally 2-10 seconds and I am back to normal in 1-2 minutes. So  the seizures last seconds when before they lasted 2-8 minutes. When I was in my 20 + 30's I had fewer seizures but then I was drugged down alot. Back then I was asked by my new neuro "How do you wake up in the morning". He also told me the amount of phenobarb I took in one day could put the average man to sleep for 24 hours. Durgging the brain down stopped seizures but it was not easy on the body. I was great at work and did what was needed but on the way to and from I was asleep goingto and from work. Age does do things but medications are what id helping now. As for growth spurts wellllllllllllll yes the year I had the first seizures I was the one that grew and it was wellllllllll new jeans in april which were tucked under 2 inches so I would still have new jeans for school late in august. Nope never happened those jeans were ankle high and that groth spurt was when the seizures started. During that year and about 3 more months I grew about 10-12 inches. Since then I have maybe grown a total of 2 morew inches. I went from 85 in 6th grade to 148 in 9th grade. When I was a senior I weighed 156 and I didn't gain any more until I was 35. Yup I was put on a medication that made me retain water which I was taken off of but mt weight went back down to 165. 10 years later I weighed 185. I was also put on another medication which made me retain water again but it went to 265. The medication didn't do what we had hoped it would so I dropped some weight. But then with age and not getting the exercise I used to  get I have droped some of that. Currently I weigh 215 at one doctors office and 217 at another doctors office. But age does do things too

As for cocktails I have had many. both medication and drinking. When I was your sons age welllll I did go out and had fun with the guys. a couple of them knew I limited my drinks but then others were amaized at the number of drinks I had. Shirley Temples can do that and you can have fun and stay withing doctors guidlines. ALl of my doctors have said a drink or beer now and then does not hurt but no more tha 2 and they needed to be 2-3 hours apart ,I have beer and wine here in the house which will be brought out if comapny comes over. But then I also use them for beer beans or beer bread. And the wine is drinkable none goes to waste since I also use drinking wine to cook with.

I hope I answered you questions but do change the time he takes his meds at night and that could stop those seizures he has been having. I say that because I was basically having the same issue many years ago and once the change was made I had fewer seizures in the morning. But then sleeping in for me was waking up between 6:30 and 7. I have rarely gotten 8 hours of sleep. Even when I was in my early teens. Consider I had a paper route and the papers were dropped off on my proch between 4-5 and they had to be delivered in time to change clothes eat and catch the bus which was about 7:30

I hope this helps

Joe

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