Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

drowsinessworse with Keppra

Sun, 03/30/2008 - 23:51

Hi everyone- I am new to this forum and I hope somebody can give me some insight. I have been on dilantin for 26 years and now my new neurologist is having me switch to Keppra. I am still waiting for the results of my bone density scan. My biggest problem is the drowsiness and I haven't even started my full dose yet. I can barely make it through the day without caffeine in my system. I started drinking coffee the same year I started on dilantin because I couldn't stay awake in school. It didn't help that my first class of the day was physics!  Anyways, I have to drink twice as much coffee in order to function normally and I want to know if anyone has had side effects that persisted after going off there original medicine? Any advice in combating drowsiness while on AED? Thanks, nancy

Comments

Re: drowsinessworse with Keppra

Submitted by CJ89 on Mon, 2012-09-17 - 04:56

I've been on Keppra for about 8 years now. I take 3500mg/day, but am also on 500mg/day of Lamotrigine, so the two together make me ridiculously drowsy & I'm still having fits. To make matters worse, I've had to start taking a small dose of Frisum am & pm, for the time being, so I can barely stay awake!

Quite common with taking Keppra or Lamotrigine is small hair loss, which is only really noticeable when washing or brushing your hair. It doesn't come out in clumps luckily - though all medication effects people in different ways.

Keppra for me I believe is the strongest drug out of the three that I'm on (with little side effects that are managable), but could be worse off for others.

I tried Topiromate for a while, but my speech started becomming slurry & it was difficult to process my thoughts into actions as quick as i usually would. The tingling around my mouth was wierd to say the least.

Keep on with the Keppra unless something drastic happens & certainly try an acitivity that keeps you concentrating, for example I'm an instructor at Sea Cadets, so my thoughts are always on the go!

 CJ

I've been on Keppra for about 8 years now. I take 3500mg/day, but am also on 500mg/day of Lamotrigine, so the two together make me ridiculously drowsy & I'm still having fits. To make matters worse, I've had to start taking a small dose of Frisum am & pm, for the time being, so I can barely stay awake!

Quite common with taking Keppra or Lamotrigine is small hair loss, which is only really noticeable when washing or brushing your hair. It doesn't come out in clumps luckily - though all medication effects people in different ways.

Keppra for me I believe is the strongest drug out of the three that I'm on (with little side effects that are managable), but could be worse off for others.

I tried Topiromate for a while, but my speech started becomming slurry & it was difficult to process my thoughts into actions as quick as i usually would. The tingling around my mouth was wierd to say the least.

Keep on with the Keppra unless something drastic happens & certainly try an acitivity that keeps you concentrating, for example I'm an instructor at Sea Cadets, so my thoughts are always on the go!

 CJ

Re: drowsinessworse with Keppra

Submitted by ral on Thu, 2013-10-03 - 10:51

i'm the counterpoint.  i prefer the siezures to the side effects of keppra when i was on it as well as many other drugs.  hope you find what's right for you.

i'm the counterpoint.  i prefer the siezures to the side effects of keppra when i was on it as well as many other drugs.  hope you find what's right for you.

58 yrs old. Had 3 seizures in

Submitted by Norris on Thu, 2017-06-08 - 03:20
58 yrs old. Had 3 seizures in a month. Last one I ended up in the hospital. They can't tell me why I had them. Prescribed me keppra. Now I feel like I'm on an acid trip all day long. Sleep pattern all jacked up. Are these normal side effects?????? And if so how long do they last?

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.