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Please Give me Advice.... Just had a seizure
Fri, 09/06/2013 - 10:14
Hey guys,
I'm here because I seriously have no clue what to do and I just completely feel alone. Sitting here balling my eyes out out of complete fear.
I'm a 19 year old guy. I have Juvenile Myoclonic Epilepsy. I've had seizures since I was born. Ever since 2008, they slowed down tremendously. (JME is a very mild form of epilepsy).
My last seizure was about a year ago, and judging by how badly my tongue was torn to pieces, it was a pretty serious one. Whenever I have a seizure, it's always grand mal. And it's pretty bad. I had it at about 2 am, and I fell through a wall.
Anyways, I think I just had another seizure. I woke up around 7 with mild twitches and just fell back asleep. I just woke up on the ground in a pool of blood. My body doesn't hurt, but I bit my tongue and I'm 99% sure I just had one.
I took my medication this morning, and I've been drinking water and trying to eat. Here's the thing; I pretty much live on my own. I'm seriously opposed to telling my doctor that I had another seizure. I'm terrified. He said he would take away my license if I had another one. I'm very independant. My license is my LIFELINE. I can't tell my parents or friends because they'll flip out and honestly I don't want to put my mother through that..
What should I do? I don't know I guess I just want to talk to/hear from people. This is the absolute worst feeling in the world. I wouldn't wish it on my worst enemy.
Comments
Re: Please Give me Advice.... Just had a seizure
Submitted by techgeek on Fri, 2013-09-27 - 13:31
Interesting to find others that are on a Vimpat and Keppra combination. It seems to work well for me for SP's and C.P's but not so well with myoclonics. Vitamin B6 really helps with the side effects of the Keppra but if you start taking it be sure to at least tell your doctor that you are.
Myoclonics are a _itch to control I have tried Lamictal, Depakote, Klonopin, and the worst nightmare of all Topamax eegads! I would rather have anything bad than that evil noxious poison.
one thing I found is that any amount of caffiene will set me off to jerking even one half a can of Dr Pepper will do it. Glad to hear that you do not use alcohol or tobacco these are especially bad things for us here.
Interesting to find others that are on a Vimpat and Keppra combination. It seems to work well for me for SP's and C.P's but not so well with myoclonics. Vitamin B6 really helps with the side effects of the Keppra but if you start taking it be sure to at least tell your doctor that you are.
Myoclonics are a _itch to control I have tried Lamictal, Depakote, Klonopin, and the worst nightmare of all Topamax eegads! I would rather have anything bad than that evil noxious poison.
one thing I found is that any amount of caffiene will set me off to jerking even one half a can of Dr Pepper will do it. Glad to hear that you do not use alcohol or tobacco these are especially bad things for us here.
Re: Please Give me Advice.... Just had a seizure
Submitted by just_joe on Fri, 2013-09-27 - 17:54
I have been on keppra for about 10 years. I have even used the generic keppra. My neuros assistant keeps telling me name drand only. My neuro also knows I have a limited income (salary is not as high as I would like) so he also knows that I am paying half my salary for the keppra alone if I uas name rbrand name only. He has me trying the use of vimpat hoping I can get the seizure count down which it did. We have gone up on the dosage to 300 mg a day.
It is helping reduce the seizures and by raising the dosage we are hoping to get the seizures controlled even better.
Now as for caffiene I drink about 1/2-1 pot of coffee a day and have for about 40 years. My doctors and neuro have all said that a glass of wine or a beer now and then is not bad which I know is true. I used to go out and close down bars and clubs now and then and If I drank more than 2-3 beers it did reduce the medications effects (in other words the medications protetial was reduced because of the alcohol) I generally drank Shirley Temples.Most of the people I was with never knew I wasn't drinking the same thing as they were. All it takes is knowing your limits and staying within those limits.
I have been on keppra for about 10 years. I have even used the generic keppra. My neuros assistant keeps telling me name drand only. My neuro also knows I have a limited income (salary is not as high as I would like) so he also knows that I am paying half my salary for the keppra alone if I uas name rbrand name only. He has me trying the use of vimpat hoping I can get the seizure count down which it did. We have gone up on the dosage to 300 mg a day.
It is helping reduce the seizures and by raising the dosage we are hoping to get the seizures controlled even better.
Now as for caffiene I drink about 1/2-1 pot of coffee a day and have for about 40 years. My doctors and neuro have all said that a glass of wine or a beer now and then is not bad which I know is true. I used to go out and close down bars and clubs now and then and If I drank more than 2-3 beers it did reduce the medications effects (in other words the medications protetial was reduced because of the alcohol) I generally drank Shirley Temples.Most of the people I was with never knew I wasn't drinking the same thing as they were. All it takes is knowing your limits and staying within those limits.
Re: Please Give me Advice.... Just had a seizure
Submitted by man2013frank on Fri, 2013-09-27 - 00:22
It is best to talk to your family and your doctor due to the fact that I just lost me right to drive and my wife has to take care of me, but I look at it this way, I would rather not drive than know that I hurt someone by having a spell when I was driving. Believe me it is not easy, but we all have gone through feeling like we can not do anything for our self, but we need to look that it is better to be safe than sorry