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Please Give me Advice.... Just had a seizure

Fri, 09/06/2013 - 10:14

Hey guys,

I'm here because I seriously have no clue what to do and I just completely feel alone. Sitting here balling my eyes out out of complete fear.

I'm a 19 year old guy. I have Juvenile Myoclonic Epilepsy. I've had seizures since I was born. Ever since 2008, they slowed down tremendously. (JME is a very mild form of epilepsy).

 My last seizure was about a year ago, and judging by how badly my tongue was torn to pieces, it was a pretty serious one. Whenever I have a seizure, it's always grand mal. And it's pretty bad. I had it at about 2 am, and I fell through a wall.

Anyways, I think I just had another seizure. I woke up around 7 with mild twitches and just fell back asleep. I just woke up on the ground in a pool of blood. My body doesn't hurt, but I bit my tongue and I'm 99% sure I just had one.

I took my medication this morning, and I've been drinking water and trying to eat. Here's the thing; I pretty much live on my own. I'm seriously opposed to telling my doctor that I had another seizure. I'm terrified. He said he would take away my license if I had another one. I'm very independant. My license is my LIFELINE. I can't tell my parents or friends because they'll flip out and honestly I don't want to put my mother through that..

What should I do?  I don't know I guess I just want to talk to/hear from people. This is the absolute worst feeling in the world. I wouldn't wish it on my worst enemy.

Comments

Re: Please Give me Advice.... Just had a seizure

Submitted by idkwhat2do on Mon, 2013-09-09 - 23:45

Thanks Joe, very helpful yet again. It seems like you have some very supportive friends that really helped you out. All of my reliable friends are off at their respective colleges now, or moved away, so hopefully we'll move closer again or I'll make a bunch of new friends. When it gets down to it, I don't want to put people in harms way of my disorder.

I like that system of buying gas and exchanging favors. I seriously hope I can find someone like that to help me out. Now would be a good time for a reliable girlfriend or something. hahaha.

My neuro put me on Keppra XR (or extended release) so that I could take them once at night. My seizure threshold is always lowest in the morning, so that way my blood is ready every morning. 1000mg has been controlling it very well so far, I just wish I never forgot a dose. 

Thanks for all your advice Joe. I would type more but I'm rushing to finish my homework as well hahaha. Thank you so much. Even the slightest bit of help means the world to me.

Thanks Joe, very helpful yet again. It seems like you have some very supportive friends that really helped you out. All of my reliable friends are off at their respective colleges now, or moved away, so hopefully we'll move closer again or I'll make a bunch of new friends. When it gets down to it, I don't want to put people in harms way of my disorder.

I like that system of buying gas and exchanging favors. I seriously hope I can find someone like that to help me out. Now would be a good time for a reliable girlfriend or something. hahaha.

My neuro put me on Keppra XR (or extended release) so that I could take them once at night. My seizure threshold is always lowest in the morning, so that way my blood is ready every morning. 1000mg has been controlling it very well so far, I just wish I never forgot a dose. 

Thanks for all your advice Joe. I would type more but I'm rushing to finish my homework as well hahaha. Thank you so much. Even the slightest bit of help means the world to me.

Re: Please Give me Advice.... Just had a seizure

Submitted by just_joe on Thu, 2013-09-26 - 09:21

it's me again

Your comment  "I just wish I never forgot a dose" make me think some people today aren't thinking or using common sense at times. there are watches with alarms in them My nokia 6010 has an alarm which can also be used and thre are some real cheap alarm clocks which can be used the take you pill every day at the same time. About 12 years ago I was taking keppra 3 times a day so I used my watch. I also set a timer up on my computer at work so my medication was taken on time. I might add that keppra ahd been controlling my seizures well but I still had partial seizures. Doc and I discussed the issue and he wanted me to add vimpat 100mg 2 times a day and since it was added the seizures have gone down. We are in the process of changinf the dosage to 150mg and that 2 has reduced the seizures. If you still ahve those twitches you might ask your neuro if adding anotherr medication would help.

There are a lot of medications today that can be added which work on certain seizures and I know thehre are several that can and have been added with keppra which has gotten peoples seizure count down and in some cases they have been without seizures for awhile.

hope you get the assistance you need and do get you an alarm either a clock watch or even your cell phone

Later

Joe

it's me again

Your comment  "I just wish I never forgot a dose" make me think some people today aren't thinking or using common sense at times. there are watches with alarms in them My nokia 6010 has an alarm which can also be used and thre are some real cheap alarm clocks which can be used the take you pill every day at the same time. About 12 years ago I was taking keppra 3 times a day so I used my watch. I also set a timer up on my computer at work so my medication was taken on time. I might add that keppra ahd been controlling my seizures well but I still had partial seizures. Doc and I discussed the issue and he wanted me to add vimpat 100mg 2 times a day and since it was added the seizures have gone down. We are in the process of changinf the dosage to 150mg and that 2 has reduced the seizures. If you still ahve those twitches you might ask your neuro if adding anotherr medication would help.

There are a lot of medications today that can be added which work on certain seizures and I know thehre are several that can and have been added with keppra which has gotten peoples seizure count down and in some cases they have been without seizures for awhile.

hope you get the assistance you need and do get you an alarm either a clock watch or even your cell phone

Later

Joe

Re: Please Give me Advice.... Just had a seizure

Submitted by lorianne61 on Tue, 2013-10-22 - 19:33
I have had tonic-clonic seizures since birth and absence seizures since I entered my teenage years. I am now 52. I have taken so many combinations of medications, I think I've gone thru the PDR as far as anticonvulsive medications go. At the moment, I am taking Zonegran BID, Lamictal BID, and Clonazepam BID for the seizures. I am only having the petit mal seizures but have had to surrender my driver's licence since my children were born over 20 yrs. ago. I was in a one car accident(thankfully) my son and I weren't hurt. I got a few facial cuts but he was in his car seat in the back seat so wasn't injured. I just wish I was in an area where we had a regular bus system, but still manage to get to appointments. Please speak to your doctor and keep a journal of your seizures. Keep an alarm on your watch or phone as when to take your medicines. I am terrible forgetting my meds, so I am speaking from experience.

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