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Please Give me Advice.... Just had a seizure

Fri, 09/06/2013 - 10:14

Hey guys,

I'm here because I seriously have no clue what to do and I just completely feel alone. Sitting here balling my eyes out out of complete fear.

I'm a 19 year old guy. I have Juvenile Myoclonic Epilepsy. I've had seizures since I was born. Ever since 2008, they slowed down tremendously. (JME is a very mild form of epilepsy).

 My last seizure was about a year ago, and judging by how badly my tongue was torn to pieces, it was a pretty serious one. Whenever I have a seizure, it's always grand mal. And it's pretty bad. I had it at about 2 am, and I fell through a wall.

Anyways, I think I just had another seizure. I woke up around 7 with mild twitches and just fell back asleep. I just woke up on the ground in a pool of blood. My body doesn't hurt, but I bit my tongue and I'm 99% sure I just had one.

I took my medication this morning, and I've been drinking water and trying to eat. Here's the thing; I pretty much live on my own. I'm seriously opposed to telling my doctor that I had another seizure. I'm terrified. He said he would take away my license if I had another one. I'm very independant. My license is my LIFELINE. I can't tell my parents or friends because they'll flip out and honestly I don't want to put my mother through that..

What should I do?  I don't know I guess I just want to talk to/hear from people. This is the absolute worst feeling in the world. I wouldn't wish it on my worst enemy.

Comments

Re: Please Give me Advice.... Just had a seizure

Submitted by idkwhat2do on Sun, 2013-09-15 - 01:37

Hey Zach, thanks for sharing your story man. I have to say I'm humbled by your will to carry on will epilepsy like that.

I have juvenile myoclonic epilepsy, so mine is very well controlled. I'm only 19, so I'm still in college, but I've had a job ever since my 18th birthday, and thankfully I've never had a seizure there. I only have my seizures in the morning right when I wake up. I've only had probably 3 since 2008.

But your advice is great advice...when I get out of college I definitely do need to tell my employer just in case I suppose. My plan is to start my own company, which would be amazing. 

I'm sad to hear about your employers though. Man, only we can understand that you've been to hell and back several times, and that you know what the definition of fear can be. I look up to you, good for you consistently trying to work and find a job. The fact that you're not just pulling unemployment shows that you're a VERY decent person with a strong will. People like that are rare. I hope I can have that will someday.

Hey Zach, thanks for sharing your story man. I have to say I'm humbled by your will to carry on will epilepsy like that.

I have juvenile myoclonic epilepsy, so mine is very well controlled. I'm only 19, so I'm still in college, but I've had a job ever since my 18th birthday, and thankfully I've never had a seizure there. I only have my seizures in the morning right when I wake up. I've only had probably 3 since 2008.

But your advice is great advice...when I get out of college I definitely do need to tell my employer just in case I suppose. My plan is to start my own company, which would be amazing. 

I'm sad to hear about your employers though. Man, only we can understand that you've been to hell and back several times, and that you know what the definition of fear can be. I look up to you, good for you consistently trying to work and find a job. The fact that you're not just pulling unemployment shows that you're a VERY decent person with a strong will. People like that are rare. I hope I can have that will someday.

Re: Please Give me Advice.... Just had a seizure

Submitted by shumma on Sun, 2013-09-15 - 09:34

Hi,I am 22 and have epilepsy from childhood.

I had many types of epilepsy-childhood absence seizures,grand mal and other. I can loss consciouness may not. May feel seizure coming may not. I had operation,but seizures came back!

I want to tell that epilepsy isn''t a simple illness that's why you must give your doctor all information you have. May become harder or may be late to do something with treatment!

Some time ago I though like you. Relatives every time worring about us. But if you wont tell any one about your problem in crisis situation you my not receive help or adequate help.

About social life I understand your thoughts, but without healts you will have no need in a lot of things! Friends if they are such will stay in any your life situation!

Be not afraid of seizures! Take a fight withthem!

Hi,I am 22 and have epilepsy from childhood.

I had many types of epilepsy-childhood absence seizures,grand mal and other. I can loss consciouness may not. May feel seizure coming may not. I had operation,but seizures came back!

I want to tell that epilepsy isn''t a simple illness that's why you must give your doctor all information you have. May become harder or may be late to do something with treatment!

Some time ago I though like you. Relatives every time worring about us. But if you wont tell any one about your problem in crisis situation you my not receive help or adequate help.

About social life I understand your thoughts, but without healts you will have no need in a lot of things! Friends if they are such will stay in any your life situation!

Be not afraid of seizures! Take a fight withthem!

Re: Please Give me Advice.... Just had a seizure

Submitted by shumma on Sun, 2013-09-15 - 09:34

Hi,I am 22 and have epilepsy from childhood.

I had many types of epilepsy-childhood absence seizures,grand mal and other. I can loss consciouness may not. May feel seizure coming may not. I had operation,but seizures came back!

I want to tell that epilepsy isn''t a simple illness that's why you must give your doctor all information you have. May become harder or may be late to do something with treatment!

Some time ago I though like you. Relatives every time worring about us. But if you wont tell any one about your problem in crisis situation you my not receive help or adequate help.

About social life I understand your thoughts, but without healts you will have no need in a lot of things! Friends if they are such will stay in any your life situation!

Be not afraid of seizures! Take a fight withthem!

Hi,I am 22 and have epilepsy from childhood.

I had many types of epilepsy-childhood absence seizures,grand mal and other. I can loss consciouness may not. May feel seizure coming may not. I had operation,but seizures came back!

I want to tell that epilepsy isn''t a simple illness that's why you must give your doctor all information you have. May become harder or may be late to do something with treatment!

Some time ago I though like you. Relatives every time worring about us. But if you wont tell any one about your problem in crisis situation you my not receive help or adequate help.

About social life I understand your thoughts, but without healts you will have no need in a lot of things! Friends if they are such will stay in any your life situation!

Be not afraid of seizures! Take a fight withthem!

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