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Please Give me Advice.... Just had a seizure

Fri, 09/06/2013 - 10:14

Hey guys,

I'm here because I seriously have no clue what to do and I just completely feel alone. Sitting here balling my eyes out out of complete fear.

I'm a 19 year old guy. I have Juvenile Myoclonic Epilepsy. I've had seizures since I was born. Ever since 2008, they slowed down tremendously. (JME is a very mild form of epilepsy).

 My last seizure was about a year ago, and judging by how badly my tongue was torn to pieces, it was a pretty serious one. Whenever I have a seizure, it's always grand mal. And it's pretty bad. I had it at about 2 am, and I fell through a wall.

Anyways, I think I just had another seizure. I woke up around 7 with mild twitches and just fell back asleep. I just woke up on the ground in a pool of blood. My body doesn't hurt, but I bit my tongue and I'm 99% sure I just had one.

I took my medication this morning, and I've been drinking water and trying to eat. Here's the thing; I pretty much live on my own. I'm seriously opposed to telling my doctor that I had another seizure. I'm terrified. He said he would take away my license if I had another one. I'm very independant. My license is my LIFELINE. I can't tell my parents or friends because they'll flip out and honestly I don't want to put my mother through that..

What should I do?  I don't know I guess I just want to talk to/hear from people. This is the absolute worst feeling in the world. I wouldn't wish it on my worst enemy.

Comments

Re: Please Give me Advice.... Just had a seizure

Submitted by idkwhat2do on Fri, 2013-09-06 - 10:17
Sorry for the double post, but I just wanted to say you guys that have seizures frequently and carry on with your lives are just amazing to me. I'm not quite that strong. The slightest threat to my life/independance just scares the everything out of me. I literally feel like I just died. I also woke up not knowing what day it is, what I did last night, where I was, or who exactly I was. Took me about 10 minutes to get my bearings together.....ugh so terrifying.

Re: Please Give me Advice.... Just had a seizure

Submitted by mereloaded on Fri, 2013-09-06 - 10:57
Yes, you are strong... And there is nothing to fear but fear itself. Being confused is normal after having a seizure. The good news is that 10 minutes is not bad at all to regain full consciousness, some people take hours, if not days. Your independence will not be threatened if your seizures are properly controlled and that cannot be achieved unless your neuro adjusts the med/dosage combo. Please tell mom and dad, they will love to help you am sure. I hope you feel better and remember, we are all here in the same boat. Chin up! Best wishes.

Re: Please Give me Advice.... Just had a seizure

Submitted by idkwhat2do on Fri, 2013-09-06 - 11:15

Thank you thank you thank you....

What I think I'm going to do is tell them about the twitches, since I had those this morning. The doctor won't take away my license and I'll go up on my dosage (that's what he told me if I had twitches again). If I have another one, then I'll tell my parents, because I am not trying to die and leave them clueless.

 It's so incredibly frustrating. I almost made it a full year with no seizures. There really is nothing worse.

Good luck to you and your son.

Thank you thank you thank you....

What I think I'm going to do is tell them about the twitches, since I had those this morning. The doctor won't take away my license and I'll go up on my dosage (that's what he told me if I had twitches again). If I have another one, then I'll tell my parents, because I am not trying to die and leave them clueless.

 It's so incredibly frustrating. I almost made it a full year with no seizures. There really is nothing worse.

Good luck to you and your son.

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