Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Hi there (UPDATES)

Wed, 08/28/2013 - 09:41

Hi there my name is natasha and I have just joined today.  I stumbled upon this site whilst researching about my 3 year old daughters symptoms. I think she maybe experiencing absence seizures and mycolonic(sp) seizures also.

We have been to the doctors twice. At first I was concerned about her sleep. From the age of 6 months she has slept through the night maybe 10/15times.....my daughter turns 4 in november.  She can wake numerous amounts of times theres no pattern.

Then about 3 months ago I noticed what I was referring to as a twitch.  Its the same everytime she does it... her mouth twitches then she shakes her head ( not violently,just like shes saying no).This lasts about 5 seconds or so.  This can happen 10/15 times a day....well the ones that I notice.

I explained this to the doctor and she told me to get a video of it so I can show her.  I got two videos,one while she was awake and one while she was falling asleep ( its worse when shes falling asleep ).  They have referred me to a paediatrician and he also mentioned an eeg. (this was yesterday)

However yesterday I decided to film her sleep. I always knew she moved around and twitch a bit,but never put two and two together.  When I was filming her, her hand started twitching, actually it was worse than a twitch. very quickly her hand opened, closed, pointing fingers and so on.

I dont really know what else to say apart from I am interested to know what the process will be so I can kind of prepare my daughter,she was very scared at the doctors appointment and she can be a bit anxious  around strangers/doctors, especially since she had her immunistations 

All my family keep telling me its just a twitch and it took a video for them to even start questioning it. So ive kinda been feeling alone and frustrated recently.

Should I go back to the doctors about a sleep study or would this be something that the paediatrician will deal with.

Thanks for listening xxx

***UPDATE***

My daughter had her appt yesterday with the ped.  I showed her the videos and she also made my daughter hyperventilate which she reacted to.  The ped agrees that it is definitely some sort of seizure but we need to pin point what type it is. Doctor mentioned Focal or Generalised which I have  learned is either the whole brain or part of the brain...if im right.

Anyway im just glad we are getting somehere if you know what I mean

Comments

Re: Hi there

Submitted by mereloaded on Wed, 2013-08-28 - 14:43
Honestly, it doesn't sound like epilepsy. Everyone twitches in their sleep. When you have evening seizures, the whole bed will shake with convulsions and/or, people hit themselves and wake up bruised. I think that you are over thinking this. Best wishes and I hope that you find your answers.

Re: Hi there

Submitted by Masterjen on Thu, 2013-08-29 - 15:52

"When you have evening seizures, the whole bed will shake with convulsions and/or, people hit themselves and wake up bruised".

This is not always the case with nocturnal seizures, which is why the other responders are suggesting this parent have her daughter thoroughly checked over.

At first I took immediate offense to your comment, but I'm now over that :)  I have nocturnal seizures but fortunately not the tonic-clonic kind. It is a sore spot with me because for nearly a year I was misdiagnosed for the very reason I did not have tonic clonic night seizures. They were later identified as complex partial.  So, you are not alone in your belief and even some neurologists believe this.

If this little girl does have a form of epilepsy and it is identified sooner rather than later, medication may help stop whatever type of seizure the girl has, and she and her family can perhaps avoid the trauma of her ever having a full tonic-clonic seizure.

 

 

"When you have evening seizures, the whole bed will shake with convulsions and/or, people hit themselves and wake up bruised".

This is not always the case with nocturnal seizures, which is why the other responders are suggesting this parent have her daughter thoroughly checked over.

At first I took immediate offense to your comment, but I'm now over that :)  I have nocturnal seizures but fortunately not the tonic-clonic kind. It is a sore spot with me because for nearly a year I was misdiagnosed for the very reason I did not have tonic clonic night seizures. They were later identified as complex partial.  So, you are not alone in your belief and even some neurologists believe this.

If this little girl does have a form of epilepsy and it is identified sooner rather than later, medication may help stop whatever type of seizure the girl has, and she and her family can perhaps avoid the trauma of her ever having a full tonic-clonic seizure.

 

 

Re: Hi there

Submitted by mereloaded on Thu, 2013-08-29 - 21:48
Guys, no need to be upset. It could also be Tourette's and many other things, not just epilepsy. I did not mean to offend anyone, we are not neurologist, just regular folks trying to help. Let the doctors give their professional opinion. Peace and bet wishes.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.