Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

non convulsive absence status epilepticus

Sun, 08/25/2013 - 21:42
Hi!! I am new to this site. I am hoping to find others like me...or maybe to help or giv any info I have learned. I was diagnosed with vertigo seizure disorder when I was 5 yrs old....I would get dizzy...room spinning etc. which would then result in vomiting. I was put on Dilantin which I took until I was 8..I had severel EEGs during this time...and they were all abnormal. Stress always triggered yhe seizures. My parents got divored when I was 5. My mom took me back and forth to neurologists. Then my mom moved out of state when I was 8....I lived with my dad. He had a hard time believing the diagnoses....so I was not treatetd from 8 yrs old to 36 yrs old...at 36 I had lived with vertigo seizures several times a month...then one morning 30 yrs later I woke up one morning...did not know my name....where the bathroom was in my house....what year it was...my husband rushed me to the ER...they called my current nerologist in and he gave me a shot of Adavan....and I snapped out of it...by yhat time I had been having a on going seizure for more than 6 hours..I wad diagnosed with non convulsive status epilepticus......put on Keppra 2000 mg a da...no seizures for almost 2 yrs until a month ago....I had another one....the same thing...I joined this site with the hopes of finding others with a diagnoses like mine....my doc says it is rare...no convulsions.....any and all replys and responses will be much appreciated.

Comments

Re: non convulsive absence status epilepticus

Submitted by pgd on Mon, 2013-08-26 - 18:01
A good look at the large idea of non-convulsive epilepsy is contained in an educational book titled Nerves in Collision by Walter C. Alvarez, M.D. Best wishes.

Re: non convulsive absence status epilepticus

Submitted by cancun01 on Mon, 2013-08-26 - 21:38
Thank you so much for the info! I plan on checking out that book....I want to learn as much as i can about what I have!!!

Re: non convulsive absence status epilepticus

Submitted by 3Hours2Live on Tue, 2013-08-27 - 02:44
Hi CanCun01, My favorite book on nonconvulsive status epilepticus is "Nonconvulsive Status Epilepticus" edited by Kaplan & Drislane (Oct 2008), but, at $90 to $109, I still don't own my own copy. Amazon-dot-com has a search preview of some of the hardcover edition and an intro Kindle sample. Books-dot-google has a preview, too: samples for vertigo, http://books.google.com/books?id=YkRH6cL1ziAC&printsec=frontcover&dq=nonconvulsive+status&hl=en&sa=X&ei=Xz8cUrLrHIf8iwKY3YBI&ved=0CC8Q6AEwAA#v=onepage&q=vertigo&f=false for absences, http://books.google.com/books?id=YkRH6cL1ziAC&printsec=frontcover&dq=nonconvulsive+status&hl=en&sa=X&ei=Xz8cUrLrHIf8iwKY3YBI&ved=0CC8Q6AEwAA#v=snippet&q=absences&f=false for clusters, http://books.google.com/books?id=YkRH6cL1ziAC&printsec=frontcover&dq=nonconvulsive+status&hl=en&sa=X&ei=Xz8cUrLrHIf8iwKY3YBI&ved=0CC8Q6AEwAA#v=snippet&q=clusters&f=false Sometimes, my periodic clusters become (for a day or two) either dense, frequent, or continuous enough to be regarded as my being in status epilepticus, which is difficult to accept when they were simple partials to early moderate complex partials. But, once they regularly started to kindle into secondarily generalized tonic-clonic seizures that often wouldn't pause at all between cycles, the label "status epilepticus" is more stickier. I get enough early warning of the start of clusters that a strong dose of Keppra will keep them more simple and more separate & distinct than tending to any more lasting continuousness than minutes. (I minimize my regular dosages of Keppra between the about monthly clusters, which is unorthodox, but for me, it works & saves on Keppra (I dislike the Valium family over potential of dependence in lesser than formal or more than infrequent usages, which would be a little more than monthly in what-not situations)). Tadzio

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.