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partial seizures and dizziness

Sat, 06/25/2005 - 14:31
HI MY NAME IS TAMMY. I HAVE PARTIAL SEIZURES. I STAY DIZZY 24 HOURS A DAY. ONE DOCTOR SAYS IT IS THE SEIZURES AND ANOTHER SAYS THAT SEIZURES ARE EPISODIC AND I WOULD ONLY BE DIZZY DURING THE SEIZURE. THIS HAS BEEN GOING ON FOR ABOUT 9 MONTHS NOW. I HAVE BEEN TO THE EAR DOCTOR AND THEY SAY MY EARS ARE FINE. WAS JUST WONDERING IF ANYONE ELSE HERE HAS EXPERIENCED THIS DIZZINESS AS WELL. YOUR INFO IS GREATLY APPRECIATED. HAVE A GREAT DAY. TAMMY

Comments

Re: partial seizures and dizziness

Submitted by attila on Fri, 2013-01-18 - 15:51

Hi Tammy,

 

I realize this is an old thread, but do you have any updates on your condition? I have the same problem. I was diagnosed with epilepsy as a teen (JME), but have not had a grand mal in 10 years. In the past several years, I've been having relentless dizzy spells (feels like an aura and very uncomfortable). It lasts for several months and then gets better, but never really goes away. I also have memory and speech issues associated with it. This last few months, its intensified and Ive been taking Depakote as a result. It has not helped as much as it did when I was a teen. I had my ears checked along with every blood test imaginable. What the heck is happening, why is it getting worse, and what can I do to stop it??? Getting desperate.

 

Hi Tammy,

 

I realize this is an old thread, but do you have any updates on your condition? I have the same problem. I was diagnosed with epilepsy as a teen (JME), but have not had a grand mal in 10 years. In the past several years, I've been having relentless dizzy spells (feels like an aura and very uncomfortable). It lasts for several months and then gets better, but never really goes away. I also have memory and speech issues associated with it. This last few months, its intensified and Ive been taking Depakote as a result. It has not helped as much as it did when I was a teen. I had my ears checked along with every blood test imaginable. What the heck is happening, why is it getting worse, and what can I do to stop it??? Getting desperate.

 

Re: partial seizures and dizziness

Submitted by HiDmarie on Wed, 2013-08-21 - 10:54

Hi Tammy, I also have lots of dizziness also pain in the back of the head.  MRI's, labs etc, done, and no changes.  Med change from tegretol to carbatrol.  This seemed to help, for about 2 months.  Now I am looking into taking the carbatrol 4x a day to see if it helps.  Like everyone on this thread I also have partial complex seizures-some speech and memory problems. 

 

Hi Tammy, I also have lots of dizziness also pain in the back of the head.  MRI's, labs etc, done, and no changes.  Med change from tegretol to carbatrol.  This seemed to help, for about 2 months.  Now I am looking into taking the carbatrol 4x a day to see if it helps.  Like everyone on this thread I also have partial complex seizures-some speech and memory problems. 

 

Re: partial seizures and dizziness

Submitted by snickloy1 on Mon, 2013-10-28 - 16:49

I know this is a late response and you probably won't see this, but it's worth the shot. I've had epilepsy my entire life and growing up I played soccer. When I was younger, I couldn't get through a whole practice or a game without getting dizzy or vomiting.  I was afraid to go out on that field every week because I knew what was going to happen - the whole world continued to spin right underneath my feet, and I ended up falling down. After a long, horrific search for the "perfect" medicine, we finally found a medication to stop the dizzy spells. I think it's different for every person, but right now, I'm taking a generic version of Zonegran and it really has made an improvement.

The last time I was dizzy was last Saturday night, which was the same night I was invited to a Halloween party.  The host of this party had multiple strobe lights in his front yard - all set on a different timer. Here it is, Monday, and I'm still a little lightheaded. 

When I have a seizure, my whole body doesn't go into a muscle spasm.  I stare into outer space for long periods of time - sometimes, I have to force myself out of it.  I get, like, these twitches in my arms and legs every now and then - and that's a sign of having a seizure.  I also think that dizziness {which isn't listed as a seizure} Is a seizure. 

I hope this helps! 

And I hope you see this :)

Sophia, 21

I know this is a late response and you probably won't see this, but it's worth the shot. I've had epilepsy my entire life and growing up I played soccer. When I was younger, I couldn't get through a whole practice or a game without getting dizzy or vomiting.  I was afraid to go out on that field every week because I knew what was going to happen - the whole world continued to spin right underneath my feet, and I ended up falling down. After a long, horrific search for the "perfect" medicine, we finally found a medication to stop the dizzy spells. I think it's different for every person, but right now, I'm taking a generic version of Zonegran and it really has made an improvement.

The last time I was dizzy was last Saturday night, which was the same night I was invited to a Halloween party.  The host of this party had multiple strobe lights in his front yard - all set on a different timer. Here it is, Monday, and I'm still a little lightheaded. 

When I have a seizure, my whole body doesn't go into a muscle spasm.  I stare into outer space for long periods of time - sometimes, I have to force myself out of it.  I get, like, these twitches in my arms and legs every now and then - and that's a sign of having a seizure.  I also think that dizziness {which isn't listed as a seizure} Is a seizure. 

I hope this helps! 

And I hope you see this :)

Sophia, 21

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