Last December while sick with the flu my 10 year old daughter started having episodes of feeling everything around her was moving really fast. Noises were going fast, people/objects in the room that were moving were moving fast, her thoughts were racing. She is completely conscious/alert and can move/talk during these episodes. These episodes lasted usually around 4 min. The episodes have been continuing on and off (usually 2-3 x a week) sine then. She has gone several weeks without an episode only to have them start up again. Some of her most recent episodes have been 10 min long.
We were recently referred to a pediatric neurologist. MRI was negative except for chronic sinusitis. A sleep deprived EEG showed abnormality in the Occipital Lobe and Temporal Lobe. She recently had an inpatient, 72 hour EEG in hopes of capturing one of these episodes on an EEG. She did have an episode while hooked up in the hospital. But it was not typical. Only lasted 2 minutes. It showed no changes/abnormalities on the EEG. The EEG however, did show other abnormalities that were not picked up in the sleep deprived EEG. It showed abnormalities in the Rolandic area.
Our neurologist feels that despite the episode not showing changes in the EEG, that she has Epilepsy. He feels these speed up episodes are a manifestation of all the abnormalities on the EEG. I assumed that if it was a seizure it would show up on the EEG. We have started her on Trileptal.
We are getting a lot of pressure from family to get a second opinion. Not only are our daughter's episodes not typical for Epilepsy, people have lots of other ideas about what it could it be. (hormones, adrenaline, anxiety etc.) Wouldn't these episodes show up on an EEG if they were epileptic? Or are just these abnormalities are enough to treat?
I would appreciate any feedback anyone has or love to hear of any similar experiences.