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Treating seizures today
Fri, 08/02/2013 - 09:10Comments
Re: Treating seizures today
Submitted by Kathy781 on Fri, 2013-08-02 - 15:28
Re: Treating seizures today
Submitted by just_joe on Fri, 2013-08-02 - 17:52
OH yes they did control the seizures but they also made you tired. They slowed you down because they worked on the whole brain. Add the phenobarb to them and you have stuff that will put men to sleep. I have been taking more meds than the manufactors recomended amount becasue I can handle more than most people. I have also taught myself to block out things like head achs.When I had surgery on my knee I was given a RRX for a pain killer. I took 1 pill after that I used asperin. The mind can do things most people don't think about. I have litterally gotten my blood presure down. It was high when I saw my PCP knowing I had to see him in a three days I aske him what he wanted it to be and what it was. Three days later it was what he wanted.That has happened with my neuro too. I will be taking meds the rest of my life. I know it and have accepted that fact.
I was tired of meds and got on a kick and stopped taking my meds when I was 19-20 I went a little over a week and was on my way home and I was tired. I stopped at my mothers house rather than go home to my apartment. I can say I am glad I stopped there. While I was asleep that night I went into status epilepicus. I was having 40-50 convulsions an hour. I passed out after the third. I work up 3 days later. I talked to the doctors who said I could split a hair a thousand times and thats how close to seeing Gods face I was . They had given up on me. The head of the Hospital had called my mother to come pick me up and before she got there I had gone into Status again. People can come out of status gnerally with few problems but back then if you went into it again you might not live thru it. Like I said the doctors had given up on me. The head doc said they had but my mother never quit praying. So I know that if it werent for a mothers prarer I wouldn't be hear. Relegious kick can do things. I do know I was put here to help people in any way I can, I also heard him say I can heal but I also teach others to heal thats what doctors are to do.
I have been blessed to have a team of neurologists handing me when one retires of moves over to a different speciality I get introduced to the one handling me. I have had 5 different neuros since I landed in Dallasand the ones I have today knew the first the one before this one retired before that one he went to some other project that nedds neuros.He was good and had handled me in the early 80's.
Later
OH yes they did control the seizures but they also made you tired. They slowed you down because they worked on the whole brain. Add the phenobarb to them and you have stuff that will put men to sleep. I have been taking more meds than the manufactors recomended amount becasue I can handle more than most people. I have also taught myself to block out things like head achs.When I had surgery on my knee I was given a RRX for a pain killer. I took 1 pill after that I used asperin. The mind can do things most people don't think about. I have litterally gotten my blood presure down. It was high when I saw my PCP knowing I had to see him in a three days I aske him what he wanted it to be and what it was. Three days later it was what he wanted.That has happened with my neuro too. I will be taking meds the rest of my life. I know it and have accepted that fact.
I was tired of meds and got on a kick and stopped taking my meds when I was 19-20 I went a little over a week and was on my way home and I was tired. I stopped at my mothers house rather than go home to my apartment. I can say I am glad I stopped there. While I was asleep that night I went into status epilepicus. I was having 40-50 convulsions an hour. I passed out after the third. I work up 3 days later. I talked to the doctors who said I could split a hair a thousand times and thats how close to seeing Gods face I was . They had given up on me. The head of the Hospital had called my mother to come pick me up and before she got there I had gone into Status again. People can come out of status gnerally with few problems but back then if you went into it again you might not live thru it. Like I said the doctors had given up on me. The head doc said they had but my mother never quit praying. So I know that if it werent for a mothers prarer I wouldn't be hear. Relegious kick can do things. I do know I was put here to help people in any way I can, I also heard him say I can heal but I also teach others to heal thats what doctors are to do.
I have been blessed to have a team of neurologists handing me when one retires of moves over to a different speciality I get introduced to the one handling me. I have had 5 different neuros since I landed in Dallasand the ones I have today knew the first the one before this one retired before that one he went to some other project that nedds neuros.He was good and had handled me in the early 80's.
Later
Re: Treating seizures today
Submitted by just_joe on Fri, 2013-08-02 - 13:04
I understand where you are coming from. I have been taking AEDs since 1962. So I do know about the medicines back then and now. Most medications prior to the late 1970's were basically downers. The medications back then worked on the whole brain calming it down. My neuro asked me how I woke up in the morning considering I was taking enough phenobarb to put the average man to sleep for 24 hours I was also taking dilantin and tegratol.
Medications today are being designed to work on different parts of the brain. They have reduced the length of time in the seizures and the length of time to focus (get back to normal0. In the 80'sand 90's the seizures I had would last several minutes and focusing would be 30-45 minutes sometimes longer and if I was at work and it was longer than the 30 minutes I went home. The new medicines have reduced those same seizures to seconds instead of minutes and the focus time is from 1-3 minutes. There are many more people with epilepsy who are seizure free now compared to 20-30 years ago. Some have even had brain surgery and have no seizures.
The neuro would need your information or medical files. He wouls also do some tests. The information in your files and the EEG he has done would give him options on procedures and tests. The EEG would show any seizure activity and where that activity is. The more information he has the better he can determine which options would be better for you. Which things can be done to get you seizure free.
I hope this helps
I understand where you are coming from. I have been taking AEDs since 1962. So I do know about the medicines back then and now. Most medications prior to the late 1970's were basically downers. The medications back then worked on the whole brain calming it down. My neuro asked me how I woke up in the morning considering I was taking enough phenobarb to put the average man to sleep for 24 hours I was also taking dilantin and tegratol.
Medications today are being designed to work on different parts of the brain. They have reduced the length of time in the seizures and the length of time to focus (get back to normal0. In the 80'sand 90's the seizures I had would last several minutes and focusing would be 30-45 minutes sometimes longer and if I was at work and it was longer than the 30 minutes I went home. The new medicines have reduced those same seizures to seconds instead of minutes and the focus time is from 1-3 minutes. There are many more people with epilepsy who are seizure free now compared to 20-30 years ago. Some have even had brain surgery and have no seizures.
The neuro would need your information or medical files. He wouls also do some tests. The information in your files and the EEG he has done would give him options on procedures and tests. The EEG would show any seizure activity and where that activity is. The more information he has the better he can determine which options would be better for you. Which things can be done to get you seizure free.
I hope this helps