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VNS question
Wed, 07/31/2013 - 02:46I am thinking now of getting the vns and have some questions. I've already had a right temporal lobectomy about five years ago and it didn't work and I feel getting the vns might help. I really don't want another brain surgery. Has anyone had any problems with the vns? Has it stopped anyone from having seizures? I always feel my seizures coming on and I think this might help. So does it stop the seizure when you feel an aura? Do you get any pains or discomfort from it? How many people have gotten it and it didn't work and how many people have gotten it and it helps them a lot?
I know so many questions, but I need to know before I start considering this. I feel ready, but would like to know more from someone who already has one.
Thanks,
Nicole
Re: VNS question
Submitted by just_joe on Wed, 2013-07-31 - 10:00
My neuro hassaid several things abou the VNS. It is basically a pace maker for the vagus nurve which controls the electrical impulses in the brain. Some people have goten it and it does work for many epileptics.
Go to your search engin be it google or bing and type in V N S and you can read about it. I did and there is a lot of information there. being an implant if you travil you should not be scaned.
I did not get the procedure because in my seizures I can't move. So the procedure which envolves moving to the wrist band would not work because I can not move during my seizures. I will be checking to see if there have been any advances in it during my next visit.
New medications are getting better in stoping hte electrical impulses. The medications I am on have shortened the length of time I am in the seizure. They have also reduced the time it takes to get back to normal.
I hope you get the information you are wanting, You might start a seizure diary because the more information your neuro has the more options he has to get you seizure free. The diary can be found near the top of this page under My Epilepsy Diary. There is a place for notes and I use it to note the time I am in the seizure and the time it takes to get back to normal. I also not what I think could have caused or triggered the seizure. What some people do not know is that information is helpful. Many things can trigger seizures heat, stress just being sick can and does in many people.
Hope this helps some
good luck and I hope you get seizure free
My neuro hassaid several things abou the VNS. It is basically a pace maker for the vagus nurve which controls the electrical impulses in the brain. Some people have goten it and it does work for many epileptics.
Go to your search engin be it google or bing and type in V N S and you can read about it. I did and there is a lot of information there. being an implant if you travil you should not be scaned.
I did not get the procedure because in my seizures I can't move. So the procedure which envolves moving to the wrist band would not work because I can not move during my seizures. I will be checking to see if there have been any advances in it during my next visit.
New medications are getting better in stoping hte electrical impulses. The medications I am on have shortened the length of time I am in the seizure. They have also reduced the time it takes to get back to normal.
I hope you get the information you are wanting, You might start a seizure diary because the more information your neuro has the more options he has to get you seizure free. The diary can be found near the top of this page under My Epilepsy Diary. There is a place for notes and I use it to note the time I am in the seizure and the time it takes to get back to normal. I also not what I think could have caused or triggered the seizure. What some people do not know is that information is helpful. Many things can trigger seizures heat, stress just being sick can and does in many people.
Hope this helps some
good luck and I hope you get seizure free