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VNS question

Wed, 07/31/2013 - 02:46

Topic: Complementary Therapies

I am thinking now of getting the vns and have some questions. I've already had a right temporal lobectomy about five years ago and it didn't work and I feel getting the vns might help. I really don't want another brain surgery. Has anyone had any problems with the vns? Has it stopped anyone from having seizures? I always feel my seizures coming on and I think this might help. So does it stop the seizure when you feel an aura? Do you get any pains or discomfort from it? How many people have gotten it and it didn't work and how many people have gotten it and it helps them a lot?

I know so many questions, but I need to know before I start considering this. I feel ready, but would like to know more from someone who already has one.

Thanks,

Nicole

Comments

Re: VNS question

Submitted by rtmucerino on Fri, 2013-08-23 - 16:08

Also, I forgot to address having a second brain surgery. Having a second brain surgery can usually cause more harm than good. So keep that in mind of you're thinking of having another surgery.

I want to get the VNS

Submitted by CatClifton on Sat, 2018-09-22 - 06:10

I suffer from Atonic seizures but also the twitches and spasms that you have. I have suffered from these since I was 13 years old. I was only diagnosed last July after lots of misdiagnoses. Because you had similar seizures to me, were you on lots of tablets before? Did you try a variety of tablets?

Re: VNS question

Submitted by cfreudmann on Wed, 2013-07-31 - 13:05

I suffer from grand mal seizures but have no warning. The VNS was suggested for me as medication was not controlling my seizures. I had one for about 11 months before I insisted they took the box out (the wiring becomes too embedded). It did not help me in any way. The strength was progressively increased along with the frequency of the pulses. I experienced a dry throat sensation and a slight twitch toward the end because it was turned up so high. I believe your idea about the aura helping it work will be something to ask about because mine was just applied continually (my seizures are very random and unpredictable) and just felt unpleasant.

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